There's something for everyone in this issue of Keeping You Informed.







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KEEPING YOU INFORMED
May 27, 2016
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In This Issue...
NEWS
Up-to-date disability-related news and information from various state and national sources
PRIVACY LAWS FOR PARENTS: WHAT YOU SHOULD KNOW ABOUT HIPAA
Presented by Disability Rights Iowa
The Health Insurance Portability and Accountability Act, "HIPAA, Privacy Rule establishes national standards to protect individuals' medical records and other personal health information and applies to health plans, health care clearinghouses, and those health care providers that conduct certain health care transactions electronically. The Rule requires appropriate safeguards to protect the privacy of personal health information, and sets limits and conditions on the uses and disclosures that may be made of such information without patient authorization. The Rule also gives patients' rights over their health information, including rights to examine and obtain a copy of their health records, and to request corrections." [Source]

So, what does that mean for you and your child with special needs? Find out in this informational webinar, hosted by ASK Resource Center on May 18, 2016, presented by Jane Hudson, J.D., and Nathan Kirstein, J.D., of Disability Rights Iowa. 

This webinar can be found in ASK's Webinar Archive.
CREDIT FOR CARING ACT FEEDBACK REQUESTED
From the Iowa Senate
The following information is provided to inform families on current legislation activity; it is not an endorsement:  Family caregivers play an invaluable role in ensuring their loved ones have access to the support they need, from the comfort of their own home. As Iowans take on the added financial responsibility of long-term care for their family members, Senator Ernst believes this bipartisan tax credit proposal will ease the difficulties working caregivers face, while providing their loved ones with quality care. Questions and comments should be directed to Joni Ernst .  Learn more | Full Bill Text
FATHERS OF CHILDREN WITH AUTISM NEEDED 
From Lead Researcher Stephen Nadel, Boston University
If you are the father of a child with autism (moderate to severe), ages 5 to 12, and you co-parent this child with a female partner, we need your help for an online survey.
The study concerns the support needs of fathers of children with autism. The world does not know enough about you and your needs for support! Knowledge gained from your help may positively influence better delivery of support for fathers by aiding program planners in designing, implementing, and evaluating support opportunities.
 
Your participation requires you to spend about 30 minutes online. You will:
  • Answer questions on several prescreening screens. 
  • If you do not qualify, the system will immediately notify and you will not have to spend any more time.
  • If you do qualify, you will take a survey about father support.
As a small appreciation for your participation in completing the survey, you will receive your choice of one $10 gift cards from three major retailers. Survey Link

If prefer to do a written version by snail mail, please call: 617-358-2958
FOLLOW-UP VIDEO: GETTY'S DOOR TO INCLUSION
From Desired Results Access Project
"Chance To Be Just Like Any Other Kid," which showed how Getty, a young girl who cannot physically be near other children because of health issues, was able to virtually participate in preschool. A new, follow-up video has just been released.
  • Getty's Door to Inclusion shows Getty virtually attending a typical kindergarten classroom. It illustrates the importance of having consistent and high expectations for all children, sound communication strategies, and effective parent-teacher collaboration. It provides important messages for all those interested in early childhood and elementary school inclusion, for all current and future early childhood educators, and for families who are looking for solutions for their children who cannot attend school due to health issues.
  • Both videos are available in the  Desired Results Access Project Video Library (at the top of the page, select the "General Interest" tab). As with all Desired Results videos, they can be viewed online or downloaded at no cost for use in educational and professional development activities. 
TRAINING OPPORTUNITIES
Information on training events available for parents and professionals in and around the state of Iowa. Find upcoming conferences, webinars, workshops and more!
PLANNING FOR SUCCESSFUL TRANSITIONS
June 11, 2016 | Dubuque | 8:15 a.m. - 2 p.m. | FREE
ASK, IFAPA, and the Iowa Department of Education invite you to attend a workshop filled with helpful information and resources for transition-aged students to plan for success in living, learning, and working. 
HANDS AND VOICES ASTRA ADVOCACY TRAINING
June 18, 2016 | Des Moines | 7:30 a.m. - 4:30 p.m. | FREE
ASTra is a replicable Deaf and Hard of Hearing Educational Advocacy Program that embodies the mission and vision of Hands & Voices, which is to provide support to families with children who are deaf or hard of hearing (D/HH) without a bias around communication mode, method, and educational setting so that every child who is D/HH has the opportunity to achieve their full potential. ASTra content is derived from years of direct advocacy experience working with families in schools, attending advocacy trainings from legal experts, providing trainings, and the Hands & Voices Educational Advocacy Guidebook. Register now
EVENTS & ACTIVITIES
Connections to events and activities for individuals with disabilities, their families, and the people who serve them
IOWA WALK FOR EPILEPSY & 5K
June 4, 2016  | Iowa City 
The Iowa Walk for Epilepsy & 5K is being presented by University of Iowa Health Care - Department of Neurology & Neurosurgery and organized by the Epilepsy Foundation of North/Central Illinois, Iowa, Nebraska. Come together and join others to raise money to help support the services to people living with Epilepsy in Iowa! The 5K run will be a chipped timed event again this year!  The 5K Run and 1 mile walk will start at 10:30 a.m. at Shelter #6, Lower City Park, Iowa City. This is your opportunity to impact people's lives by raising funds as a team in honor of your loved one for people living with epilepsy in Iowa. *Families living with epilepsy who would like to participate in the 1 mile walk, but are unable to pay the registration fee, please call the Epilepsy Foundation's Iowa office at 515-238-7660 for more information. Register now
2016 MIDWEST SUMMER INSTITUTE
June 27-28, 2016 | Des Moines
A handful of faculty from the University of Northern Iowa in collaboration with local advocates are following these forces of nature and have conspired to make a worthy conference happen. For five years, UNI has been host to the Midwest Summer Institute, where students, families, self-advocates, teachers, administrators, and educators of all sorts work the cracks and create fissures in a system that has long excluded the voices of those who desire inclusive educational spaces and opportunities for all. Joining with the Second City International Conference on Disability Studies in Education we hope to deepen and widen those cracks and rule the world, if just for two days.

Hotels must be reserved by May 28th to receive the special conference rate. 
Learn more
Copyright © ASK Resource Center, 2016. All rights reserved.
 
You're among 4,668 others who received this email because you wanted us to keep you informed of the latest disability-related news, educational opportunities, events, and more from in and around the state of Iowa.

 
The contents of this listserv blast were partially funded under grants from the US Department of Education, #H328M140017, Project Officer, David Emenhesier, and a grant from the US Department of Health & Human Services, #H84MC24065, Project Officer, LaQuanta Smalley. The contents of this listserv blast do not necessarily represent the policy of those Departments, and the reader should not assume endorsement by the Federal Government. ASK's Family to Family Iowa Project serves as Iowa's Family Voic es State Affiliate Organization. ASK is also Iowa's Parent to Parent USA Alliance Member.

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