Early registration ends in less than two weeks! June 18th is the last day to register with the early registration fees. Beginning June 19th, the standard registration fees need to be paid.

 

Hotel reservations are filling up fast. If you haven't yet, make your hotel reservations now. To reserve room nights at the conference hotel, Bethesda North Marriott Hotel & Conference Center, go to https://resweb.passkey.com/Resweb.do?mode=welcome_gi_new&groupID=20131228. If you need room nights for the Sunday or Monday after the conference and are unable to book them at the conference hotel, there are rooms available at a nearby Hilton Garden Inn at http://hiltongardeninn.hilton.com/en/gi/groups/personalized/W/WASBTGI-MSF-20140716/index.jhtml?WT.mc_id=POG.

 

Special Tour Friday afternoon of National Institutes of Health (NIH) - On Friday July 18th, there will be a tour of the NIH Clinical Center and Children's Inn for a limited number of people. This tour will take place at the same time as the conference sessions on Friday. The tour is from 4:30 pm to 6:00 pm. There is no cost for the tour, but participation is limited. If you are interested in signing up for the NIH tour, send an email to [email protected].

 

Financial Assistance - Miracle Flights for Kids is accepting applications for free flights to and from Washington DC for the conference for families with children 17 years and younger with Moebius syndrome. You must have a consult appointment scheduled with a physician and must meet their eligibility requirements. Call Miracle Flights for Kids at 702 261-0494 or check their website at  www.miracleflights.org.

 

Sponsorships and Donations - It is not too late to donate towards the conference! Mail your donations to PO Box 20354, Oakland CA 94620, or online through www.moebiussyndrome.com. Contact us at [email protected] with questions or to submit your 'ad' in our conference journal. More information is on our site at http://www.moebiussyndrome.com/go/events/11th-moebius-syndrome-conference.