ACC patients are the cornerstone of all ACC research. Nothing may be achieved by scientists without the generous
donation of tumor specimens
ACCRF is excited to be working with
to empower patients to direct their excess cancer tissue samples to research projects. Initially, samples donated via Pattern.org will be sent to the
Broad Institute of MIT and Harvard
, where they will be used to attempt to develop research models.
ACCRF's partnership with Pattern.org and the Broad Institute is part of a larger effort to establish and genetically characterize cancer cell lines, which are cancer cells that keep dividing and growing over time, under certain conditions in a laboratory. In developing these cancer cell lines, the Broad Institute is trying to enable the scientific community to improve our understanding of cancer, including ACC.
ACCRF is engaging its patient community
to directly donate tissue samples from surgeries through Pattern.org
. This website contains information about research projects ACCRF is supporting.
links to an electronic consent form where patients can learn more about projects, find contact information for the protocol team at the Broad Institute so they can reach out should they have questions, and provide consent if they wish to contribute. Should a patient decide to provide consent, Pattern.org arranges for excess tissue to be shipped to a research lab.