Scleroderma Foundation eLetter
eLetter #448
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Greetings!  

Scholarship Deadline Approaching
Apply By Friday, April 20! 

You have one week left to apply for a scholarship to attend the National Patient Education Conference in Dallas in July.

Conference scholarships are intended for those who would be unable to attend without outside financial assistance. We regret we are unable to assist all those who apply for conference scholarships; however, the Foundation will use the resources of our scholarships funds to assist as many applicants as we are able. A patient-led committee will administer the award process based on available funds.

To learn more or to download the application, please visit our website. You also can call (800) 722-4673 for more information.

New Classification Criteria for Sjogren Syndrome  

An international team of researchers released new classification criteria for Sjogren Syndrome, the National Institutes of Health (NIH) announced Wednesday. Importantly, the American College of Rheumatology (ACR) voted to accept the new criteria created by the Sjogren's International Collaborative Clinical Alliance, or SICCA. This is the first time that ACR has approved classification criteria for Sjogren Syndrome. It recognizes the need for rheumatologists, ophthalmologists and oral medicine practitioners to collaborate in research studies to diagnose the condition.

 

Read the full press release from NIH now

Two Research Studies Actively Enrolling Patients 

The National Institute of Environmental Health Sciences (NIEHS) is actively enrolling patients in research studies with adult and juvenile rheumatoid arthritis, systemic lupus erythematosus, systemic sclerosis and polymyositis/dermatomyositis.

 

The NIH Twin-Sib Studyis attempting to understand risk factors and mechanisms for the development of systemic autoimmune diseases in adults and children. In this study, researchers will evaluate same-sex siblings within four years of age, where one has been diagnosed within the last four years with adult rheumatoid arthritis, polyarticular juvenile idiopathic arthritis, lupus, systemic sclerosis or polymyositis/dermatomyositis, and the other has no autoimmune disease.

 

The MYORISK Study wants to determine if persons with myositis and the anti-synthetase syndrome (with frequent interstitial lung disease) have experienced different environmental exposures before disease onset compared to other polymyositis/dermatomyositis patients. All adult or juvenile polymyositis/dermatomyositis patients diagnosed within the last year are eligible for enrollment.

 

Both studies involve a single visit to the National Institutes of Health, a collaborating center, or a local physician's office to

complete patient/parent and physician questionnaires, and a blood draw and urine sample.   

 

Call the NIH recruiting center toll-free at (800) 411-1222 to learn more about this studies or to review your eligibility requirements.

How Often Should Women Have Bone Tests?  

More than 40 million Americans have osteoporosis, a disorder where a person's bones are weakened and more prone to fractures, or are at an increased risk for broken bones because of low bone mineral density.

 

Find out how often you should be screened for these bone diseases in this article from National Institutes of Health (NIH).

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