Lupus Foundation of America, Philadelphia Tri-State Chapter
February 2011

Greetings!

 

I hope this email finds you well!
  

No shadow means spring is nearly here!  Well, at least according to Punxsutawny Phil!  At the Chapter office we are yearning for warmer weather, and planning our spring activities helps!  Read about our upcoming programs and events below!  

 

We continue to host our Telephonic Support Group Meetings where we will discuss all aspects of living with lupus. Family and friends are welcome to attend. The meetings are held the second Thursday of every month from 7:30-8:30pm. The next meeting is this Thursday, February 10, 2011 from 7:30-8:30pm.  To participate, simply dial 1-866-210-1669 and use the Participant Code 8345078.  Our community-based support groups begin re-convening in March.  A detailed listing can be viewed on our website at lupustristate.org. 

 
There is lots of information in this issue!  Fast approaching is our annual trip to Washington, D.C. to meet with our legislators and educate them about lupus.  We must encourage Members of Congress to support more funding for lupus research and education programs. All the details are listed below.  Please consider joining this most important effort and make your voice heard!

 

We also need your help to spread the word about our new Facebook Page at facebook.com/LupusTriState!

Help us raise awareness for lupus online!


Many thanks for your continued support of the Lupus Foundation of America and I hope to see you at one our our upcoming events.

  
Wishing you good health,
  
Annette Myarick
Chief Executive Officer  
Lupus Foundation of America
Philadelphia Tri-State Chapter
  

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IN THIS ISSUE
Donate Now
Research
Programs and Events
Support and Services
About Lupus
Volunteer
Join LFA

By clicking the Donate Now button, you can choose to
  • Support the 2011 Annual Fund
  • Become a Member of the LFA
  • Make an Honorary Tribute
  • Make a Memorial Donation
  • Commemorate a Special Occasion
  • Support the Hortense Guggenheim Grant-In-Aid Program
  • Support he Julius Erving Fund to Benefit Research
  • Register or Donate to our 3rd Annual Walk for Lupus Now events in South Jersey or Delaware  
Thank you for your generous support!

In The Community

Treasures On Broadway Presents:

The Spring Butterfly

A Fashion Event for Lupus Awareness
Sunday March 20, 2011 1:00PM
Bogey's Club & Cafe
501 Pitman Road
Sewell, New Jersey 08080

 

A fun afternoon of fashion, food, laughter, silent auction and surprises!  Proceeds benefit the LFA, Philadelphia Tri-State Chapter.

 

Click here for more information

 



February is American Heart Month:

Recent Lupus Research Summaries on Lupus and Cardiovascular Disease

Click the "Read More >>" link below each study to read a summary, learn the limitations of the study, and to find out what the study's results may mean for you.

Lupus Antibodies Related to Persistent Disease Activity and Heart Disease
People with lupus are at increased risk for developing heart disease. It is known that lupus patients make antibodies that could interfere with some of the proteins that control cholesterol. Since unregulated cholesterol is a risk factor for heart disease, it is possible that these particular antibodies might increase the risk for this in lupus patients. The researchers hoped to learn whether antibodies to cholesterol regulators are associated with disease activity or heart disease in people with lupus.
Read more >>

Anti-malarial Drugs Decrease Risk of Blood Clots in People with Lupus
Many study reports have suggested that people with lupus have an increased risk for blood clots, but the degree of this increased risk has varied widely across studies. In addition, previous studies have found that anti-malarial drugs such as hydroxychloroquine (Plaquenil) may decrease the risk for blood clots, but the patients in these studies might have had different amounts of these treatments, or had differing severity of lupus for differing amounts of time. This could have led to confusion about whether it was the Plaquenil protecting these patients or some other factors. In this study, the researchers hoped to determine the risk of developing blood clots in people with lupus, while factoring in the year of diagnosis and disease severity.
Read more >>

Risk Factors for Heart Disease in People with Lupus
Although it is known that people with lupus are at greater risk for coronary heart disease (CHD), very little is known about which people with lupus really are at risk and which are not. This study confirms certain "classic" risk factors for CHD like high cholesterol or blood pressure, smoking, and a family history of CHD, as well as some lupus-related characteristics (i.e., azathioprine treatment, high creatinine levels), which might increase CHD risk.
Read more >>


Study Finds Risk Factors for Heart Disease in People With Lupus
Some people with lupus seem to be at increased risk for heart disease. It would be very helpful to know about specific factors that could help to predict this risk. The researchers hoped to learn what characteristics of lupus patients might help to predict heart disease.
Read more >>

Read More Recent Lupus Research Summaries

LFA's National Advocacy Day in Washington DC 
Register to join us for the LFA's National Advocacy Day in Washington DC
LFA's National Advocacy Day   

Tuesday, March 1, 2011

Free Bus transportation from PA and DE to Washington DC

There is no program charge to advocates who participate in Advocacy Day with the LFA, Philadelphia Tri-State Chapter

  

Join us to make your voice heard on Capitol Hill! Let our legislators know that we want more funds allocated for lupus research and education! 


Click on the banner above for additional program details and an application to attend with the LFA, Philadelphia Tri-State Chapter. If you have any questions about Advocacy Day, reply to this email or call the Chapter office at 215-517-5070 or toll-free in DE, NJ, and PA at 866-517-5070.   

 

Lupus: Learn from the Experts Teleconferences
A New Education Series from the Lupus Foundation of America  

For more information, and to register visit lupus.org/learn or call 800-372-9405

  

 
Clinical Trials and Lupus
Saturday, February 19, 2011
1:00-2:00pm
Available via a toll-free telephone conference call
Presenter: Joan T. Merrill, M.D.
Register on lupus.org/learn

 

Kidneys and Lupus
Thursday, February 24, 2011
2:00-3:00pm
Available via a toll-free telephone conference call
Presenter: Ellen M. Ginzler, M.D., MPH
Register on lupus.org/learn

 
Central Nervous System (CNS) and Lupus
Saturday, June 11, 2011
1:00-2:00pm
Available via a toll-free telephone conference call
Presenter: Betty Diamond, M.D.
Register on lupus.org/learn

 
Social Security and Disability and Lupus
Saturday, September 17, 2011
1:00-2:00pm
Available via a toll-free telephone conference call
Presenter: Sheri R. Abrams, Attorney at Law
Register on lupus.org/learn

 
Parents Caring for Children with Lupus
Saturday, November 19, 2011
1:00-2:00pm
Available via a toll-free telephone conference call
Presenter: Emily von Scheven, M.D.
Register on lupus.org/learn



Educational Series Event in New Jersey!

 

We are extremely excited to offer an Educational Series Event in New Jersey! On March 9, 2011 we will be having an Educational Series Event at Underwood Hospital in Woodbury, NJ from 12:30 to 1:30pm. Our guest speaker will be Dr. Raymond Adelizzi, Director of the Arthritis and Osteoporosis Center of South Jersey. He will be speaking on lupus, lupus facts as well as taking questions from the audience.  Through the efforts of the Walk for Lupus Now South Jersey we are able to offer this program free of charge! Please register online..

 

So, come out to learn more about lupus, as well as more about the Lupus Foundation of America and how to become more involved in our fight against lupus!


3rd Annual Walk for Lupus Now South Jersey

3rd Annual Walk for Lupus Now Delaware
Lupus: Learn from the Experts Teleconference Series
Chapter Logo


Support Group Updates

Living Well With Lupus Chat
A Telephonic Support Group
2nd Thursday of every month
7:30-8:30pm
Next meeting: Thursday, February 10th
Email or call the chapter office at 855-517-5070 for more information.
 
To view a full list of Support Groups, please visit the Support & Services page on lupustristate.org. If you are interested in helping to expand our Support Group Program please contact Cate for PA at 215-517-5070 or Chris for DE or NJ at 302-622-8700.
 

The Lupus Foundation of America, Philadelphia Tri-State Chapter is proud to be your source of information and education about lupus, and is pleased to provide referrals to area resources as well as the following services:

Contact Us for more information about education, support and other services.




Vasculitis
Vasculitis is an inflammation of the blood vessels. Inflammation is a condition in which tissue is damaged by blood cells entering the tissues. In inflammatory diseases, these cells are mostly white blood cells. White blood cells circulate and serve as our major defense against infection. Ordinarily, white blood cells destroy bacteria and viruses. However, they can also damage normal tissue if they invade it.

Learn more about vasculitis.
 

Visit the American Heart Association's Website for Heart Healthy Tips
 

Visit the Getting Healthy center now, or click below for specific topics:


Heart Disease Among Women With Lupus

Women with lupus are at great risk of developing heart disease. Several studies have confirmed that women with lupus have a five- to ten-fold increased risk of coronary heart disease compared to the general population, especially women with lupus who are younger than 55. Ninety percent of people with lupus are women and the 80 percent of new cases of lupus develop among women ages 15-44. Read more.
 



Your Lupus Expert for the February 2010 Topic:  

Cardiovascular Issues with Lupus


Lupus can affect almost any part of the body, including the cardiovascular system, which is made up of the heart and the circulatory system. Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. This is partly because people with lupus have more risk factors, which may include: hypertension from kidney disease or corticosteroid use, elevated cholesterol levels and type 2 diabetes from corticosteroid use, and an inactive, sedentary lifestyle due to fatigue, joint problems, and/or muscle pain. This month, Dr. Amy H. Kao

will answer your questions about cardiovascular issues and lupus.


 

Submit your questions to Dr. Kao

Here's a Preview of the Upcoming Topics in the About Lupus Section: 

  • March 2011 - Kidney Issues with Lupus/ Stroke Risk/ Co-Morbidities with Lupus
  • April 2011 - Strategies for Restful Sleep/ Clinical Trials/ Minority Health and Lupus
     
  • May 2011 - Exercising and Staying Fit with Lupus
  • June 2011 - Nervous System Issues/ Ultraviolet Radiation and Lupus/ Lupus Pain
  • July 2011 - Healthy Eating/ Complementary and Alternative Medicine
  • August 2011 - Men and Lupus/ Skin Lupus/ Coping with Lupus
  • September 2011 - Reproduction and Contraception Health with Lupus/ Bone Health/ Musculoskeletal Issues with Lupus
  • October 2011 - Pediatric Lupus/ Medication Adherence/ Dental Issues with Lupus
  • November 2011 - Transitioning from Pediatric to Adult Care/ Lupus Caregivers
     
  • December 2011 - Dealing with the Stress of Being a Parent with Lupus/ Lupus and Depression

Please Contact Us if you would like to receive any print materials about lupus.


We need dedicated people to help with Lupus Foundation of America projects. Volunteers need to be at least 14 years of age. Please download and complete the Volunteer Application Form, and submit to our office in order to register to be a volunteer. Please click on the Volunteer Today tab on lupustristate.org for more information. Thank you for your interest in volunteering with the LFA Philadelphia Tri-State Chapter.

The Lupus Now magazine includes tips for living your best life with lupus, relevant news and educational articles, and expert responses to questions from other people affected by lupus.

Your subscription to the Lupus Now magazine is included as a benefit of membership in the Lupus Foundation of America, Philadelphia Tri-State Chapter. 
Become a member or renew your membership online today!

Click Contact Us above, and complete the online form to request information or to ask a question. Your inquiry will be responded to promptly.

Our chapter office staff is available Monday - Friday from 9am - 5pm to answer questions or to respond to requests for information, please contact 215-517-5070 or 302-622-8700 for South Jersey or Delaware.
The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus. LFA is a grassroots, volunteer-driven organization. The Lupus Foundation of America Philadelphia Tri-State Chapter serves southeastern Pennsylvania, Delaware, and southern New Jersey.

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