APRIL 2016

Dear Friends,

Just like the spring, where the weather changes, The Matty Fund has been changing. As of February, I have been appointed Interim Executive Director by the Board to oversee the daily operations of The Matty Fund.

I arrived here first as a constituent when my daughter, Francesca, was diagnosed in 2013. 
I joined the board in 2015 , and in April of last year, was appointed Director of Development. With my newest opportunity, I see a partnership with our board to achieve our strategic initiatives and keep the mission our utmost priority. Also, please join me in welcoming two new employees to the organization, Christina Coffey and Sergio Suhett, who are working with me to meet your needs and deliver our message. Their profiles are below.

You will see changes in our communications in the next few months , as well as in our core programming. We hope to enhance our successful programs to make sure that our children and families are being best aided by our services. We invite you to let us know how we are doing.

We look forward to seeing you at Camp Matty April 18-21. Camp and volunteer applications are available here . Our biggest awareness event of the year arrives on Saturday, May 28th at Quonset Point, North Kingstown, when we sponsor our Matty Fund 5k Run/Walk for Epilepsy. You can join us, create a team, or volunteer by visiting our website. Considering starting a team? Contact sergio@mattyfund.org for step by step instructions on how to create a fun and exciting campaign for epilepsy awareness.

We thank you for your continuing support, and look forward to seeing you and your families at our upcoming events!

Best regards,

Kate Spinella
Interim Executive Director
Our New Family Outreach Coordinator
Christina Coffey
Christina Coffey
Our New Family Outreach Coordinator
Christina Coffey has 10 years of experience in the healthcare and nonprofit industry, most recently as a Pediatric Palliative Care Coordinator in Massachusetts.  

Christina learned of The Matty Fund after her youngest daughter was diagnosed with epilepsy last year. She understands the difficult path that families are navigating because it is personal for her; as such, she is truly excited to expand Matty Fund's support and programs on behalf of this amazing community.
Our New Communications and Events Associate
Sergio Suhett
Sergio Suhett joins us after having just graduated Summa Cum Laude with a BA in Public Relations from the Harrington School of Communication and Media at the University of Rhode Island.

His professional experience includes acting as a Public Relations Intern for Edesia Nutrition, where he helped increase awareness of global childhood malnutrition while raising funds for the manufacture of Ready-to-Use Therapeutic Food (RUTF) products, and as HIV and STD Preventions Manager/Case Manager at Family Service/AIDS Project RI, where he advocated for and taught self-advocacy skills to people living with HIV. He has been motivated throughout by one of his favorite quotes from Ralph Waldo Emerson: "You cannot do a kindness too soon, for you never know how soon it will be too late." 

Sergio, who is from Rio de Janeiro, Brazil, has lived in Rhode Island since 2012 with his spouse and their English Cocker Spaniel. 
Rallo, the Therapy Dog
This year, Campy Matty will have a special volunteer guest - Rallo, the therapy dog! Rallo is a 7-year-old Bernese Mountain certified Therapy Dogs International (TDI®) dog. For the past 6 years, Rallo has brought a smile to many faces at Kent Hospital, Saint Elizabeth Home, and West Bay Manor. Rallo is looking forward to meeting the campers and spending some time with YOU this year. If you have not yet registered for Camp Matty, there is still time!
An Inspiration
Jadyn leads a pretty amazing life for a nine-year-old. She and her mom, Liz, are public advocates for the use of CBD oils in managing the epilepsy that began manifesting itself at 18 months, and with which Jadyn was diagnosed at age four. Her epilepsy is intractable, and after many years of numerous types of treatments, including pharmaceuticals and the ketogenic diet, the Mindas have decided to pursue alternative treatments for Jadyn. You can follow their story on their website and Facebook pages as Jadyn battles the "seizure monster" with the support of her loving family.
An Egg-ceptional Day!
O ur 2016 Matty Egg Hunt, held at the  Matty's Place Playground in Wakefield on Saturday, March 19, was once again an eggcellent time for the hip-hoppy Matty Fund children and their families. Thank you to all who attended and volunteered at the event, and special thanks to our friend and extra special guest,
the Easter Bunny! Go to our Facebook page to see all the pictures from the event. 

April 18 - April 21, 2016

Greenlock Therapeutic
Riding Center
59 Summer Street,
Rehoboth, MA 

Click  here for detailed information .

Or download the application and instructions for registration

A special thanks to the We Promise Foundation for helping to make Camp Matty possible!
Saturday, May 28, 2016 
Quonset Business Park, 
North Kingstown, RI

Click here  to register, donate, 
or to create a team! 

The Matty Fund's mission is to provide family resources, raise epilepsy awareness, promote patient safety, and improve the quality of life for children and families living with epilepsy.

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    The Matty Fund for Epilepsy Top-Rated Awards Badge      

Featured in the January 2013 issue of Family Circle magazine

Named a "2012 Health Hero" by WebMD

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Named "Best Non-Profit" by Rhode Island Monthly