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April 2016

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Serving Indiana

Question

 

Are people with lupus at increased risk for infections?

                                                Scroll down for the answer.
 


Dear Friends, 

 

May is just around the corner and we have so much in store for LUPUS AWARENESS MONTH!  The picture above shows the "Beacon of Hope" at the Indianapolis Zoo lit purple last year in celebration - we have made even more requests in 2016 and hope to have some new downtown Indianapolis sites participating with us this year. Thanks to Eli Lilly and Company who will dye its fountain outside the corporate headquarters purple and the Alexander Hotel, which will once again glow purple on May 20th - Put on Purple Day.  You can ask buildings in your community, too! If you place a purple light bulb at your front door in May or a local business agrees to help shine a light on lupus, we ask that you please send pictures our way to Susan@lupusindiana.org so we can post to social media and our website as a thank you!

 

 

Another great way to get involved in May is to talk to our office about volunteering. Our Walks would not be possible without the help of all the terrific volunteers who help make our event a safe and fun experience for the participants. Individuals and groups are welcome to volunteer for either the Crown Point or Indianapolis Walks. We have shifts starting at 7:30 a.m. all the way through 1:00 p.m. with roles including: site set-up, registration, parking; kids area, route guides, finish line cheerleaders and clean-up crew. We appreciate the help of the community in supporting this year's Walk events and ensuring their success. Please call us today to learn how you can lend your assistance to our efforts. The Indianapolis Walk, in particular, is recruiting additional Walk Committee members. Start by completing the Volunteer Form on our website at www.lupusindiana.org 

 

Join us in wearing purple on May 20 and ask your friends and family to wear purple to help support those living with lupus. Our office has purple wristbands and other LFA-Indiana swag available for purchase by calling us at 317.225.4400 or emailing to Susan@lupusindiana.org.  Send your pictures of your purple parties to Susan@lupusindiana.org - we will post on Facebook all day on May 20th. When posting on your own, please use the hashtags #POPIndiana or #PutonPurpleIN.  We hope to see you at one of our many May events in our chapter territory. Please let us know if you have your own event planned - we are happy to help promote or lend assistance!

 

Channel 4 newscasters will once again don purple during the morning newshour - be sure to tune in! If you are looking for more resources and tools to plan for and promote Put on Purple Day, click here. 

 

Enjoy the month ahead and happy Spring!

 

  

Morgan E. McGill

CEO, Lupus Foundation of America, Indiana Chapter

Morgan@lupusindiana.org  

 


Walk to End Lupus Now™, Crown Point, May 14 at Noon
Registration for the Crown Point Walk is increasing evey day!  Click here to register and start  raising funds for lupus. 

Discover your Power and 
Become a Club 100 Member
With every dollar raised, you have the power to bring us that much closer to solving the cruel mystery of lupus. Create a personal fundraising page and start by supporting yourself with your first donation. Every walker is encouraged to raise  $100  or more. Raise $100 to become a  Club 100 member. As a member, you will receive a Club 100 Walk to End Lupus Now T-shirt.

Remember, every walker is a fundraiser.   YOU have the power  to enhance the life of someone living with lupus.

Upcoming Events
April 20, 2016
'Living with Lupus' Seminar
Deaconess Hospital
Evansville, Indiana 
6:00-8:15 pm
Register now at www.lupusindiana.org 
______________________________________

April 23 - 24, 2016
WTHR Health & Fitness Expo
Indiana State Fairgrounds Expo Hall
Indianapolis, IN
10:00- 5:00 pm
*Look for us in booth # 734!
______________________________________  
April 23, 2016
Heartbeats Health Festival "Wellness in Bloom"
Hancock Regional Hospital 
Greenfield, IN
7:00 am- 12:00 pm
______________________________________

May 21, 2016
'Hit Lupus Hard' Boxing Event
Title Boxing Club 
Fishers, IN
Registration 1:30  pm
June 1, 2016
'Living with Lupus' Seminar
Sponsored by Celgene
Basile Opera Center -
Indianapolis Opera
Indianapolis, IN
6:00 - 8:15 pm
*Registration available soon on our website


June 30, 2016
A Tasteful Affair
Park Tudor School's Clowes Commons
6-9PM
Indianapolis, Indiana
Tickets will go live in May!

July 21, 2016 
Shopping Event at Details Boutique
8633 River Crossing Blvd, Indianapolis, IN
15% of proceeds benefit LFA Indiana Chapter 
_______________________________________

July 23, 2016 
Krazy Horse Krew's Rockin' 
Purple 4 Lupus Ride
Kokomo, IN


October 1, 2016
Walk to End Lupus Now™, Indianapolis
Historic Military Park and White River State Park, Canal Walk - 12 noon 
Indianapolis, Indiana
*no registration fee this year & we have also added an End Lupus Now 5K Run starting at 11AM - to register for the 5K Run, visit ItsMyRace.com 
____________________________________

September 18, 2016
Indiana Fever vs. Dallas Wings
Tipoff at 4pm; Doors open at 3pm
*Tamika Catchings' final regular season game
Purchase discounted tickets for this game through the Lupus Foundation of America, Indiana Chapter and a portion of the proceeds will go towards our organization!
Order deadline - August 26th
To order tickets - go to fevergroups.com/lupusfoundation 
Contact Ryan Cramer with questions -Rcramer@feverbasketball.com
______________________________________

Save The Date

Lupus Awareness Month
May 2016

World Lupus Day
May 10, 2016

2016 LFA Annual Leadership Meeting, 
Hyatt Indianapolis
June 19-21, 2016
 
Put on Purple Day
May 20, 2016

"Purple with a Purpose"
Youth Event
July 30, 2016

Indiana Black Expo
Indiana Convention Center
July 14-17, 2016

Dr. Dannee Neal Health Fair
Shalom Health Care Center
July 23, 2016



Follow us at lfaindiana.
We would love to get to 200 folllowers by May - Lupus Awareness Month - we are at 196 currently! Thanks in advance!

LFA-Indiana is now accepting applications for our May-August Summer Internship. We need two interns to assist with development work, volunteer organization, event planning tasks, calls to participants, special research projects and various other assignments. If you know of someone interested, please have them email Susan Perry, Office Manager, Susan@lupusindiana.org, for the job description and for further details. We would like at least an 8 hour a week commitment. This position is unpaid, however, invaluable non-profit management experience will be gained! 

Grocery Shopping? 

LFA-IN now partners with Kroger in its Community Rewards program. Enroll by linking your Kroger plus card to the Lupus Foundation of America-Indiana Chapter at


SUPPORT GROUP UPDATE
For a complete list of our support group meetings, please visit our website: 
 
http://www.lupus.org/indiana/pages/find-help




Did you Know?

In 2016, we have added a 5K run - End Lupus Now 5k Run - to both Walk events!

The Crown Point End Lupus Now 5K Run will take place on Saturday, May 14th at 9AM with registration at 8:30AM at Lake County Fairgrounds. 

This is a chip-timed run & all ages are welcome. There will be awards given in several age categories. 

Registration is required.

To Register:
 Go to RunSignUp.com and in the "Find a Race" box type in "Crown Point" and "End Lupus Now" to register to run and start fundraising.  Hurry - prices increase closer to May 14th!








Find out more about National's new initiative, Make Your Mark, a community fundraising program. If you have a love for cooking, biking, performing or just getting together with friends, you can turn that passion into a wonderful way to raise money for a great cause. This program will help you create a unique event in your town! LEARN MORE. 
Crown Point Walk on May 14 


When you take part in a Lupus Foundation of America's  Walk to End Lupus Now™ event, you experience firsthand the  power of the movement to end lupus. The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, while giving caring support to those who suffer from its brutal impact.

Register to walk (registration is free in 2016) and unleash your  power by raising funds for lupus research and local support services, while increasing awareness and public support for those who suffer from lupus.  Every walker is a fundraiser.  With every dollar you raise, you have the power to bring us that much closer to solving the cruel mystery of lupus.

Walkers can stroll the 1 mile route or walk the 5K (3.1 miles) route through the beautiful Lake County Fairgrounds. Strollers and dogs on a leash are welcome. We encourage everyone either bring a picnic lunch and eat at our picnic tables or bring cash to buy lunch at some of the following available vendors in 2016: Hot Dog Guy, Chicagoland Popcorn, Sweet and Savory Delights, Goodman Sweets, Great Harvest Bread Company, Jill Marie's Market.  

Walk to End Lupus Now™ Crown Point
May 14, 2016
Run - 9:00 am
Walk - Noon
Lake County Fairgrounds
*registration free, but everyone must register

Patients who register will receive a Tshirt; all other walkers will earn a Tshirt in 2016 and will receive it on Walk Day if they fundraise $100 by May 1st. If $100 is earned between May 1st and May 14th, they will be mailed their earned Tshirt. 


Walker Tools & Helpful Advice

Facebook Sharing
Social Media is one of the best avenues to enhance your fundraising efforts. Use the social share option to share your personal and/or team page.  It will direct folks to "Donate or Register" and your customized photo will automatically show up. For the best fundraising results add your personal story.
 
Customize Your URL
Customize your personal and team URLs to make it easier for donors and team members to find your page. "Step 3" in our Fundraising Center Guide will show you how it works! 
 
Fundraising Tools & Tips  
To help unleash your power we put together some resources to help you throughout the Walk season.
We are here for you every step of the way.
 
These great guides, useful documents, and digital downloads can be found on the right-hand side of the Walk website under the 'About The Walk' drop-down tab labeled 'Fundraising Tools & Tips'.
 
Here are some links to helpful guides that address some of these same areas:
 
 
Infection Prevention is In Your Hands

We want to talk about one of the most important things you can do to protect yourself or your loved ones with lupus - hand washing. We do it every day, but are we doing it right? Knowing how to wash your hands properly and knowing when to wash your hands is key to avoiding infections for people with lupus.  READ MORE

ATA: Save the Date, Registration Site Live in May

We are holding our

5th Annual A Tasteful Affair at Park Tudor School's Clowes Commons on June 30th in 2016. 

Due to a change of ownership at Oak Hill Mansion we have relocated to a more central location. You will love the high ceilings of this beautiful space when decorated for our event (site pictured here). There is also a nice outdoor brick patio on which to mingle and socialize. Please join us as we are adding sponsorship from Sophisticated Living magazine in 2016, and these new restaurants will have tastes to offer this year, in addition to many of our past restaurant partners:  Big Lug, Tilly's Tea Room, Late Harvest Kitchen, Hoaglin Catering, Giordano's Pizza, and J. Razzo's!


 

Monarch Beverage is sponsoring a champagne tasting station - also new this year . Please mark your calendars to join us!  


 

A Tasteful Affair

Thursday, June 30th from 6-9pm

Park Tudor School's Clowes Commons

7200 N. College Avenue, Indianapolis

$50 pp/ $35 for lupus patients

*Must be 21 to enter

 

Enjoy craft brews, tastes from local restaurants, a wine pull and 50/50 raffle, silent auction with over 75 items, a live auction and a champagne tasting station. 

 

REGISTRATION LIVE IN MAY - www.lupusindiana.org 

Soliciting Assistance with A Tasteful Affair planning


We need your help with ATA, June 30, 2016

Have something you personally or your company might be able to donate to our Silent Auction, Live Auction and/or Wine Pull?  We welcome your support in stocking our auction and raffle packages with some of the most exclusive items! 
  
Here are some items we are looking for:
  • Vacation Homes
  • Dining Gift Certificates
  • Entertainment and Sporting tickets
  • Airline miles
  • Artwork
  • Personal or Professional Services 
  • Jewelry 
  • Sports and Entertainment memorabilia
  • Wine, bottles must be 90 points rated or better (for our Wine Pull)
To donate an item for the silent auction, live auction or wine pull,  please contact Susan at  Susan@lupusindiana.org or 317.225.4400 or 800.948.8806.
   

Wine can be dropped off at 9302 N. Meridian St. Suite 203 during regular business hours, or call us to arrange a pick up!  Thank you!

Committee Members and Day of Event Volunteers still needed - contact Susan Perry at susan@lupusindiana.org or call to 317.225.4400!



 Answer:
When you have lupus you are at increased risk for all kinds of infections. There are two main reasons for this higher risk. First, lupus itself can make infections occur more often - the way lupus affects the immune system can sometimes limit the body's ability to fight off foreign invaders, such as bacteria and viruses. Second, people with lupus often take immunosuppressive medicines to control their overactive immune system. These drugs limit the ability of the body's immune system to respond, and can leave a person more open to infection.  
 

Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260