PATIENT E-NEWS
June 2018
It's not to late to join in!

This Arrhythmia Alliance World Heart Rhythm Week, our focus is Take Fainting to Heart - there is no such thing as a simple faint.

Help us to spread awareness of arrhythmias this World Heart Rhythm Week by sharing and displaying information, holding an awareness activity and by making a donation.


Did you know

Syncope and falls are the most common reason for older patients to attend A&E. It is estimated that syncope accounts for 10- 20% of falls which cause injury.
Celebrate STARS 25 th
Anniversary

2018 marks 25 years since STARS was founded. What started as a small support and information group is now an international patient organisation that has helped thousands of people receive the correct diagnosis, treatment and support.

Read how STARS began and all that has been achieved over the past 25 years

"We owe so much to you, our supporters, who give up your valuable time to fundraise and support others and I would like to take this opportunity to thank you – we couldn’t do this without you!"
Trudie Lobban MBE - Founder & CEO
STARS Blackouts Checklist
Our Blackouts checklist has recently been reviewed and has a whole new look. This checklist provides information and advice on the major reasons for experiencing a blackout, helps you prepare for a doctor’s appointment, and provides information on what to expect if you have to attend a hospital appointment. 

If you would like to talk to one of the STARS patient services team, call 01789 867 503 today.
Patients Day
7 October 2018
The ICC, Birmingham, UK

Do you feel that living with an arrhythmia, AF or syncope is difficult?

Do you know everything you need to know about your condition?

Take back your life, and feel empowered!

Register today to join us at Patients Day 2018 to learn all you need to know.

View the agenda and register by clicking on your chosen charity below.


AF Association
Global AF Aware Week
19 - 25 November 2018

Over one million people have been diagnosed with AF in the UK alone, although experts estimate that at least a third more remain undiagnosed. With an ageing population, this number is expected to double by 2050. 

For this reason, we are promoting our Detect, Protect, Correct & Perfect campaign and asking all of our supporters to spread the word, whether this is by simply sharing and displaying information, holding an AF Awareness activity, or fundraising and donating to the AF Association.

Click here to see how you can get involved.
Patient Story of the Month
26 year old Saskia has PoTS and Vasovagal Syncope, but that didn’t stop her from running the 2018 Virgin Money London Marathon to raise funds for STARS! She completed the 26.2 miles in just 5 hours 36 minutes.

So far, her Virgin Money Giving page has raised over £5,300! What a fantastic achievement!

Read Saskia's post marathon story here .

Support Saskia here.

Resource of the Month
NEW! Our new information fact sheet 'Recovering from Ablation for Atrial Fibrillation' is written by patients for patients in the hope it will allay many of the fears and anxieties which often occur following ablation for atrial fibrillation. It is the result of peer discussion and hopefully includes many of the “things nobody told me” which cause worry in the weeks and months following an ablation. 

Download your copy today by clicking here .
More New Resources Coming Soon

Preparing for an Ablation for Atrial Fibrillation factsheet.
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Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) factsheet
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Left Cardiac Sympathetic Denervation factsheet
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Junctional Ectopic Tachycardia factsheet
Spring Newsletters 2018

Did you enjoy our latest newsletter? If you have not yet read it, you can do so by clicking on your chosen charity below.

We are now planning our next newsletter. What would you like to read about? Do you have a particularly interesting experience that you would like to share? Let us know by emailing: r.harris@heartrhythmalliance.org

Become a Regular Donor

Help us to continue our vital and lifesaving work by becoming a regular donor.

Find out how your donations can help and donate today by clicking on your chosen charity.

Dates for your Diary

Patients Day
7 October 2018
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19 - 25 November 2018
In the News
We regularly post news stories on our websites and social media feeds.
Click below to read the latest articles.

Trudie Lobban MBE, Founder and CEO, took part in a USA Arrhythmia Alliance media tour last month.

You can watch her discuss the importance of being pulse aware as she provides information surrounding an irregular pulse check and the most common heart rhythm disorder - atrial fibrillation.

Find out how to take your pulse and why it is so important by clicking here today.
Jane shines light for blackout charity

Jane has dysautonomia, a rare condition that affects the heart and nervous system, meaning she often faints. Since being helped by STARS, she is now raising money for the charity. "STARS were there when I needed help.... I'm really pleased I could give something back."


Read the full article here .
Check Your Insurance

Now that the holiday season is here and we are all thinking about travel insurance and sun cream, please do not forget to check all your insurances to make sure you are properly covered in the event of an accident, medical emergency or long term health problem.

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