Inspire helps NF families learn, share about condition

The Neurofibromatosis Network partners with Inspire to host an online support community with nearly 24,000 neurofibromatosis members.  Read more
Genetic test + coordinated care + research = HOPE

Life with an inherited disease sometimes brings unexpected twists and turns. Five-year-old Gus Erickson has navigated the gyrations with the help of Mayo Clinic's Neurofibromatosis Clinic.

Tim Tebow meets fan with NF during game

During a St. Lucie Mets game against the Charlotte Stone Crabs late last month, Tim Tebow made a young fan's day.

Parents raise 10k for son's genetic disorder

When Belmont residents Amy and Scot DeDeo learned their son, Nat, had neurofibromatosis, they didn't waste any time. 

Symposium helps patients connect with experts

During the 5th annual RASopathies Symposium, patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.

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The mission of the NF Network "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?