CADASIL TOGETHER WE HAVE HOPE NONPROFIT ORGANIZATION UPDATES
UpdatesAugust 2012
In This News Updates 
ConferenceConference Next 
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The Russell family has announced a CADASIL Conference will be held 
September 12-14, 2012 at the Marriott University Park Hotel in Salt Lake City, Utah. 
 

Scheduled Featured speakers are:

Dr. Anne Joutel,   (originally isolated the gene mutation for CADASIL)
 
Director of Research, INSERM 740, Faculte de Medecine Lariboisiere, Paris, France

Professor Hugues Chabriat,  Chief of Service, Department of Neurology
CHU Lariboisiere, Assistance Publique des Hopitaux de Paris, Paris, France

Dr. Anand Viswanathan: Stroke Service and Memory Disorders Unit Associate Director
Massachsetts General Hospital Stroke Research Center, Harvard Medical School

Dr. Joseph Arboleda-Velasquez: Investigator, Schepens Eye Research Institute/Mass Eye and Ear Infirmary, Instructor, Harvard Medical School

Dr. Jennifer Majersik: Assistant Professor of Neurology, University of Utah Health Care, Director, University of Utah Stroke Center

Dr. Thomas Schenkenberg, PhD: Professor, Department of Neurology. University of Utah, School of Medicine.

If you are interested in in attending, please go to the Russell's website at www.cadasilforum.org

map
CADASIL Map 

A map of confirmed world-wide cases is now available.

globe  Click on the globe to see the map.

If you have not signed the registry, please make sure your number counts.  This map represents confirmed cases of CADASIL from all parts of the globe. See  how many diagnosed persons are in your state or country.  

meeting

European Stroke Conference 

 

The conference was held May 2012 in Lisbon, Portugal.

Dr. Viera Saly, from B.C. Canada presented the results of the study she had:
Dietary Habits in CADASIL Patients: Adherence to Mediterranean Diet Tested Through Online Survey  

 

Click here to view the Abstract of the conference

fundSuccessful Fundraiser for Research 

  
A bike rally and spaghetti dinner for CADSAIL fundraiser for research was held on Saturday, June 12, 2012. Fundraiser sponsors included
Hitching Post Motorsports, 103 Concord Exc. North, So. St. Paul, MN and South Saint Paul VFW Post 295, 111 Concord Exchange South, So. St. Paul, MN 55075.  The total raised at the fundraiser was  $ $11,407.00.  The funds were designated for CADASIL research at Butler General Hospital, Rhode Island. This is the second fundraiser that Bob Leslie and Alice Lindahl have coordinated to benefit CADASiL research.   

Upcoming Poker Run for Research 

   
 
A Poker Run for CADASIL Research will be held in Marysville, Ohio on September 8, 2012. 

wrsNew Awareness Wristbands with white lettering

   Click here to order

Other ways to raise awareness.

       endPlease remember you are not alone and we are here for you
 

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