"Working to support people affected by Charcot-Marie-Tooth disease,
 by providing information and funding research"

Autumn Update
 

Many thanks to everyone who made our Awareness Month so successful - all the people who viewed and shared our Awareness Video, engaged with us on Facebook, shared your story with the media and generally made your friends, relatives and colleagues aware of what we do and why!

Life is still busy here down in CMT-land - we went to Best Practice a couple of weeks ago, an exhibition at the NEC for GPs and district nurses, primarily, giving out our information, and we're off to Liverpool to the Chartered Society of Physiotherapists' Annual Conference next week!

Keep wrapped up warm - there's a decided nip in the air today!

Karen

Nerve Awareness Video
Nerve Awareness Video

AW ARENESS VIDEOW

Please keep on sharing this video with anyone you know - the direct link to YouTube is https://www.youtube.com/watch?v=m2gsY-_JAaE if that makes it easier to share.  The Facebook post that I put up on 26th September has been seen by almost 190,000, the video has been seen (on Facebook) by over 91,000 people and the post was shared over 1,200 times.  WOW!

If you would like to see the video of the Parliamentary launch, and all of us having a good waffle, click here - https://www.youtube.com/watch?v=riJMFgnKBnM

We have also nominated the film to the Charity Film Awards - you can vote to help us win in our category, by going to
http://www.charityfilmawards.com/videos/cmt-uk-nerves-awareness-film !  Voting is open until 30th November 2016

Have a Go at Wheelchair Rugby

We will be holding a come and try day on the 5th of November located at the National Sports Centre in Lilleshall. To be eligible for Wheelchair Rugby you need to have an impairment in at least three limbs as well as a core impairment. If you feel you fit these criteria then get in touch with Phil Zealey via email @ phil.zealey@gbwr.org.uk 

Location:
Lilleshall National Sports and Conferencing Centre
Wenlock Hall, Near Newport, Shropshire
TF10 9AT (for Sat-Navs use TF10 9LQ

What You'll Need:
You'll need to wear athletic clothing, we recommend tracksuit bottoms, trainers, a t-shirt, a pair of gardening gloves (SHOWA 350R THORN-MASTER NITRILE GLOVES GREEN MEDIUM, you can find these on the Screwfix website) and a jumper/hoody.

Food and Beverages:
Unfortunately we can't provide food and beverages but we recommend to bring a water bottle as you can fill it up there. There's also a cafe on site where you can get refreshments!

Summary:
The day will give people an opportunity to try the sport and then be allocated a club that is local to them so that they can continue training. There will also be an initial classification so they'll have a clear idea as to whether they are able to play the sport at an international level! Whether you just want to get into sport or have aspirations to play at the Paralympics, come on down and give it a try!

www.gbwr.org.uk

Any questions just ask Phil on the email address above. 


Christmas is a-coming!

Don't forget you can get our lovely Christmas cards in our webshop at www.cmt.org.uk/shop

All cards come in a pack of 10 (all the same design) and cost £3.25.




  

 







And of course, there's lots more goodies there too, so stock up on some stocking fillers!!
 
Your Feedback

Your feedback on how we're doing as an organisation is really valuable to us. Testimonials and positive feedback is useful to give to funders, so that they know we're achieving what we set out to achieve!

Is there anything we could be doing better?  Is there something that we don't do, that you think we could or should do?  Do you feel our membership scheme gives you value for money?  Do you think we should spend more on research, or on support services?  These are all important questions and your answers would be useful for our upcoming strategy meeting! 

We're looking forward to hearing from you!  Email your comments to Yvonne at enquiries@cmt.org.uk 
 
Health and Wellness Days

We are starting to look into the costs and feasibility of more Health and Wellness days for next year, but doing them in a slightly more "budget" fashion, using community centres or leisure centres, rather than hotels.  If you know of a really good, accessible, large community centre where you are, please do email me with the details - obviously, I can't promise we'll use it, but if we have a nice bank of possible venues, it'll make our planning a bit easier.  Even on a shoestring, each will probably cost around £2,500 to put on, so it's quite an undertaking!


CMT United Kingdom | 0800 652 6316 | karen@cmt.org.uk | www.cmt.org.uk
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