November 2010
In This Issue
Dealing with Stress
Workplace Giving
Lupus Loop Update
Quick Links...
Living Well with Lupus

Dealing with Stress - Balancing Family, Friends, Activities and Lupus

In people with lupus, extreme stress can often contribute to flares and other symptoms. Join us this month as Cindy Coney answers questions about balancing lupus with everyday life and stress. Cindy is a national recognized speaker and educator and was recently elected Chair of the LFA National Board of Directors.

Click here to read Cindy's answers to the 15 selected questions about stress and keeping your life in balance.

Got Stress?
Here is an easy 5 step method for reducing overall tension in your body. This entire exercise takes less than two minutes. Use it anytime something (or someone) stresses you out. Even better, practice it five or more times throughout the day for overall tension reduction. Click here to view the steps of the "Quick Release" exercise developed by Robert H. Phillips, Ph.D.


Robert H. Phillips, Ph.D., is founder and director of the Center for Coping in Hicksville, N.Y., and a member of the Lupus Now Advisory Board. He is author of the book "Coping With Lupus" and co-author of the new edition of "Lupus Q&A: Everything You Need to Know."


The Lupus Foundation of America, Philadelphia Tri-State Chapter is pleased to be a resource for information and education about lupus. In addition to this monthly educational column, you can also request print materials in English and Spanish by contacting the Chapter office at 215-517-5070 or info@lupustristate.org.
Workplace Giving

Thank you for remembering the Lupus Foundation of America, Philadelphia Tri-State Chapter during your annual workplace giving campaign!

Workplace Giving Donor Option Numbers:
United Way of Southeastern PA: 1071
United Way of Delaware: 1179
PA State Employee Combined Appeal (SECA) giving through CHC: 2000-0013
Philadelphia School District Employees giving through United Way: 11011071
City of Philadelphia Employees' Campaign: 14-0018
Delaware State Employees Charitable Campaign (SECC): 50144

If you do not see us listed in your campaign booklet, contact the Chapter office at 215-517-5070. Don't forget... many employers match contributions made by their employees to qualifying charitable organizations. Contact your personnel or community relations department for a copy of the matching gifts forms. Complete this form and include it with your gift. The LFA, Philadelphia Tri-State Chapter will fill in the required verification information and mail the form to the appropriate company contact. If you have questions, please contact the Chapter office at 215-517-5070 or via email to info@lupustristate.org.
Greetings!

Yesterday, the U.S. Food and Drug Administration (FDA) Arthritis Advisory Committee voted overwhelmingly (13 to 2) to recommend BENLYSTAŽ for approval as a treatment for the autoimmune disease lupus. If FDA approved, BENLYSTA would become the first new treatment for lupus in 52 years. While this vote is a positive step, the FDA still must make a final decision to approve BENLYSTA in the coming weeks.

I was able to attend the hearing, which included
a great deal of scientific data followed by very compelling and emotional testimony from some 31 members of the lupus community. Sandra C. Raymond, President and Chief Executive Officer of the national Lupus Foundation of America (LFA) was one of many LFA representatives providing comments. Sandra issued the following statement after the Committee's vote:

"We are pleased to share the exciting news that BENLYSTA has cleared a significant hurdle on its path to becoming the first FDA-approved medication for lupus in 52 years - since Dwight D. Eisenhower was president. BENLYSTA is now on track to become the first approved treatment ever developed specifically for lupus.

Today's historic vote by the FDA Advisory Committee is not only a victory for developers Human Genome Sciences and GlaxoSmithKline, but also for the entire lupus research community and industry. We have all worked for decades to overcome many challenges in developing new therapies for this unique and difficult-to-treat disease. For people with lupus, today's vote represents a beacon of hope that new and improved treatments can be specifically developed for lupus.

The voices of people with lupus were heard loudly and clearly today. Their testimony demonstrated the urgent need to develop new, safe, effective, and tolerable therapies for lupus. Each person with lupus is unique, and if BENLYSTA is approved, it would be a significant and necessary first step towards creating the full arsenal of treatments that lupus requires. The LFA thanks the committee for its time and review to ensure the safety and efficacy of this potential medication for people with lupus. We also want to thank the numerous individuals with lupus and their families, who provided testimony and attended the hearing to show their support." Click to hear more from the LFA.

We are greatly encouraged by the Committee's vote, and eagerly await the FDA's final decision. We will continue to follow this process closely, and keep you apprised of developments.

We wish you a Happy Thanksgiving!

Warmest regards,

-Annette
Annette Myarick
CEO
Lupus Foundation of America, Philadelphia Tri-State Chapter

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19th Annual Lupus Loop
5K Run and 2 Mile Walk for Lupus Now
Raising Awareness and Funds to Support the 40,000 Individuals Living With Lupus in the Philadelphia Tri-State Region

19th Annual Lupus Loop

We would like to thank all of the participants, teams, volunteers and sponsors that helped to make the 19th Annual Lupus Loop 5K Run and 2 Mile Walk for Lupus Now an outstanding success! Please continue to monitor our progress toward our $240,000 goal. We thank you for your support and for doing your part to raise awareness and funds to benefit the 40,000 individuals living with lupus in the Philadelphia Tri-State Region.

We had 216 teams, and over 3000 participants join us for the 2010 Lupus Loop! Almost 500 Course Marker Signs were placed around the race course to honor loved ones and to share encouraging messages! Be sure to view the many galleries of photos on lupusloop.org! If you have additional photos from the 2010 Lupus Loop that you would like to share with the Lupus Foundation of America, Philadelphia Tri-State Chapter, please email a link to the photos to the Chapter office.



By making your donation to the 19th Annual Lupus Loop today you are bringing us closer to achieving our goal of raising $240,000! Do your part to raise awareness and funds to support lupus research, as well as programs and services in your community. Get started on lupusloop.org today!
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