Robert Rauner, President of the United Leukodystrophy Foundation contacted CADASIL Together We Have Hope to invite CADASIL patients and their families to attend the 2015 ULF Family Conference. There will be a presentation of CADASIL at the conference. This is a great opportunity to meet others with CADASIL and talk with the medical professionals. For more than 10 years we have worked
collaboratively with the ULF in the fight against CADASIL
The 2015 ULF family conference will be held on Wednesday, July 15th through July 18th in Omaha, Nebraska. .
The CADASIL presentation will be on Wednesday, July 15th, 2015.
Fabrice Dabertrand PH.D. of University of Vermont College of Medicine will present the research outcome of the $ 25,000.00 grant which was presented to him on June 10th, 2014 by the ULF. Swati Sathe, Associate Professor, Rutgers New Jersey Medical School will also present. Dr. Sathe is on our medical/scientific advisory board.