Highlights eNewsletter
August 2015

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Upcoming Events



October 10, 2015 -

Golf for Awareness

Fundraiser Event 

Tampa, Florida 

Hosted by:

Danielle Campbell



October 23-24, 2015 - 

Biology and Control of Nausea and Vomiting Conference

Pittsburgh, Pennsylvania



November 8, 2015 - 

Silent Auction & Dinner

8th Annual CVSA

Minnesota Fundraiser 

Hosted by:

Maria Buhl



March 5, 2016 - 

CVS International 

Awareness Day



June 4, 2016 -

CVSA 10th Annual

'Run for the Bucket' 5K Event

Waukesha, Wisconsin 




June 24-26, 2016 - 
CVSA International Adult & Family Conference 
Milwaukee, Wisconsin  


CVSA Donates $5,000.00
to the Medical College of Wisconsin!

 Dr. Li, and Dr. Venkatesan,  
received a  $5,000.00 check last month to fund CVS Research through the medical college.  The money was raised from our CVSA 9th Annual 'Run for the Bucket' Event held in May.  We are proud to be affiliated with these medical advisors and appreciate all that they do for the CVSA.  


CVSA Facebook Page has 96  new 
Likes since 
last month -
We are now at 7,911

Please visit our page,
help us to raise awareness
and 'Like' us today! 

CVSA Membership Info

Check out our membership page to view our benefits!


Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  Ruth, our Program Director will be happy to help you with renewal along with any questions you may have about our organization.  


Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!




Shop Amazon Smile
All Year Long!

Visit:   www.smile.amazon.com to sign up and list CVSA as your charity of choice.  
.5% of all proceeds will be donated back to our organization.  
Share this information with your friends and family as it's a great way to give back to the CVSA!  


Member Resources


Visit our website to stay connected!  


* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Support Group Phone Calls

* Media Links

* 2014 CVSA Conference      Power Point Presentations

* Stories of Hope 


Code 'V'
Members Only
(3) Issues Per Year

Please check your mailbox for this next issue 
to arrive at the end of 
this month!  

August 2015 


Thank you for honoring your loved ones and supporting the Cyclic Vomiting Syndrome 

Welcome to the August 2015 issue of Highlights!

Hope you all had a wonderful 4th of July holiday weekend and are taking in every moment of this summer!   It is truly hard to believe that August is here, and fall is just around the corner.   Take a moment to enjoy the sunshine, flowers, outdoors and time spent with family and friends in the coming weeks as we are all truly blessed.  

We have some wonderful updates for you here at the CVSA, and hope you enjoy this latest issue of Highlights.  

Hunter's Journey
on the Colorado Trail! 
29 Day Hike

Congratulations to Hunter Stafford, age 19, and his Dad, Ed Stafford, age 53, for completing their long hike on the Colorado Trail to raise $ for the CVSA this summer!  

The hike began the middle of June at Chatfield Reservoir in Denver, and ended in the town of Durango on Thursday, July 23rd.  This trail stretches 486 miles and took 29 days to complete.  

Hunter's Fundraiser Efforts:  $ 2400.00

Kathleen Adams, CVSA President, met Hunter, Ed and his family in Durango at the end of the trail, took pictures, and spent the evening celebrating at dinner.  

Thank you to the Stafford family for all of your support, time and effort in planning this month long event and congratulations again for completing your journey!  The $2400.00 raised for our organization will be used to help fund our Adult Guidelines Project.  We are so grateful.

Hunter, you are truly an inspiration to all of us!   

* A note to our Membership * 

Full newsletter article and pictures from this journey will be featured in our next issue of the Code 'V' coming out at the end of this month!  

Go Fund Me Project to Raise $ 
for the Adult Guidelines for Diagnosing and Treating CVS - Summer 2015 

It is so exciting that the CVSA and the American Neurogastroenterology and Motility Society (ANMS) will partner to develop Adult Guidelines!  

When CVSA was founded in 1993, it was thought that CVS was a condition of childhood and adolescence.  We now know that adults also suffer from CVS.  CVS may begin in childhood, and can extend into adulthood.  There is also adult onset CVS.  As so many adults can attest, the condition causes untold suffering and disability, and often leads to family, school and career upheaval.  

With Children's Guidelines already in place thanks to CVSA fundraising, and our strong team of medical advisors, we are embarking on a partnership project that will help adult sufferers around the world.  When completed, these guidelines will help doctors and ER personnel know how to better care for CVS patients.

Creating medical guidelines is expensive....and that is where you come in.  CVSA is the financial sponsor for these guidelines, but we are asking for your help to join us in funding this project.  All donations are greatly appreciated!  We will keep you posted with more information on the progress of this project as we move forward.  

Please visit our page at: 

Total Amount Raised to Date:  $ 2028.00

Thank you from the Board of Directors 
at the Cyclic Vomiting Syndrome Association! 

Please visit our website at:
and click on the 'For Patients' link, then scroll down to read about 'Getting Through School'.  
This is always a stressful time for all school-aged children who are affected by CVS.  You can also visit our CVSA Facebook Page and our website Message Board for more information and stories shared by individuals and families.  

Parents - Make sure to contact your school prior to the first day to let the school nurse and teachers know that your child has CVS and/or migraine headaches.  This will make for a smoother transition moving forward throughout the year.  Providing them with any information about CVS and medical papers from the child's specialist will also be of help and will certainly raise awareness of this condition.  

Best of Luck! 

'Golf for Awareness' Event to be held in Tampa Bay, Florida 
at TPC!
October 10, 2015


One of Danielle's greatest passions is golf.  She would like to raise awareness and money for the Cyclic Vomiting Syndrome Association by using her passion of golf to make a difference in the lives of sufferers. Danielle has struggled with CVS since she was a toddler.  


Please join in and attend the 2nd CVSA charity golf tournament on Saturday, October 10, 2015.   The scramble shotgun will begin at 9:00am.  Invite friends and family to attend! 


If you would like to participate, or give a monetary or prize donation, please contact one of these individuals below for more information:  


Dani Campbell:  dnc218@lehigh.edu

Scott Campbell:  scampbell1014@gmail.com

Andrea Campbell:  andrea@customescapes.com





Event to be hosted by:  

Danielle Campbell 


Thank You for all of your support! 

Biology and Control of Nausea
and Vomiting Conference -
Pittsburgh, Pennsylvania
October 23-24, 2015 

CVSA is happy to announce that the Second "Biology and Control of Nausea and Vomiting Conference 2015" will be held on October 23rd and 24th (Friday and Saturday), at the University of Pittsburgh!

This conference is designed for clinicians and basic scientists who are interested in the biology of control of nausea and vomiting.  

Full details of the event can be found at:  www.emesis2015.org.  

Membership Renewal Letters

If you have received a renewal letter in the mail we would love to hear from you!  Please contact our Program Director, Ruth Novak
to renew your membership.  You may also visit our website.   This information can be found under the 'Get Involved' section, and just takes a moment to fill out.  

Thank you so much!