Highlights eNewsletter
December 2015

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Mark Your Calendar!

 

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December 2015 -

CVSA - Hope Starts Here

with Holiday Cheer 

The Gift of Giving During

the Holidays 

 

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December 18, 2015 - 

USA Today Newspaper

featuring Digestive Wellness

and CVS

 

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March 5, 2016 - 

CVS International 

Awareness Day

 

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June 4, 2016 -

CVSA 10th Annual

'Run for the Bucket' 5K Event

Waukesha, Wisconsin 

 

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June 24-26, 2016 - 
CVSA 12th International 
Adult & Family Conference 
Sheraton Brookfield
Milwaukee, Wisconsin  

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CVSA Facebook Page has 
8,295 LIKES



Help us to 
Raise Awareness 
around the world 
and 
'LIKE' us today!  
Visit our page to connect with other CVS Sufferers/Warriors
and Caregivers!

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__________________
Shop Amazon Smile
Today and Support
the CVSA! 

As we move into the *Holiday Season*
PLEASE 
sign-up today to list
CVSA as your charity of choice!

Visit:   www.smile.amazon.com 
Here you may list CVSA as your charity of choice.  In return
.5% of all proceeds will be donated back to our organization.  It just takes a minute of your time.  

$ donated back this past quarter:   $156.21

$ donated back this year to date:
$640.91

Share this website with your family 
and friends as it's a wonderful 
way to support the CVSA this holiday season and all year long!  

   

THANK YOU!
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Reminders 
and
Member Resources

 

Visit our website to stay connected!  

 

* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Media Links

* 2014 CVSA Conference          Power Point Presentations

* Support Group Conference

   Calls 

* Stories of Hope


 

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Check Out the 
CVSA Membership Page to View our Benefits!

 

Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  

 

Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!

 

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Membership
Renewal Letters

If you have received a renewal letter in the mail and would like to renew your membership at this time, please contact our 
Program Director - 
Ruth Novak

You may also visit our website.  This information can be found under the 
'Get Involved' section, and just takes a moment to fill out.  

Memorials

  

Thank you for honoring 
your loved ones and 
supporting the 
Cyclic Vomiting Syndrome 
Association.   

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Code 'V'
CVSA 
Newsletter

Next issue of the Code 'V' - 
December 2015 
Arriving in your mailbox 
by the end of the month. 

Members Only Benefit! 

Would you like to receive our newsletter?  Sign up today to receive our next issue.  We would love for you to become a member of the CVSA!  

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Welcome 
to the December  2015 issue of Highlights!

It's hard to believe 2015 is coming to an end!  Thank you to all of our volunteers who have helped to support us throughout the year by raising awareness of CVS, took time out to host fundraising events, for all donations and contributions, and to all who attended our 5K Run/Walk this past May.  A big Thank You to our team of medical advisors who put in countless hours to help CVS sufferers around the world!  

We would like to wish you a happy, healthy and joyous season from all of us at the Cyclic Vomiting Syndrome Association!  

Happy Holidays from our Program Director, Ruth 
Novak and our  Board of Directors - Kathleen Adams, Jennifer Dhuse, Ron and Ruth Novak, Mary Rachael Lovett-Barr, Robin Raskin, Anthony & Tara Destribats, Connie Hill, and  Tom & Shelley Kupetis. 

* HOPE STARTS HERE *
HAPPY NEW YEAR! 
A 'Shout Out' to 
Jerry and Helene Iverson 
for Raising Awareness of CVS
at their 40th Wedding 
Anniversary 'Trifecta' Party!  

Grandparents, Jerry and Helene Iverson of Appleton, Wisconsin honored their 11 year-old grandson Nick Schiller, who is a CVS Sufferer, at their 40th Wedding Anniversary Party last month.  The party was held at a local restaurant on November 1st.  The 'Trifecta' Party was held in honor of:  Iverson's 40th Wedding Anniversary, Jerry's 65th Birthday, and the end of Daylight Savings Time.  In lieu of presents they handed out buckets and asked for donations to be made in Nick's honor, and were able to collect $710.00 for the CVSA!  

Irene stated, "At our age, we don't need "things".  We asked for funny cards and a donation to the CVSA as most of our invitees know about Nick's condition.  We wanted to demonstrate to Nick that we care about him and the others who suffer with CVS. We wanted to model giving back to others."

Thank you Jerry and Helene for your kindness and generosity!  Happy Anniversary!  
Board of Directors 
Monthly Teleconference Meeting
Highlighted on our FB Page 

Visit our Facebook Page:  Cyclic Vomiting Syndrome Association to read the Highlights from our monthly calls.  This is a great way to keep informed and connected with the CVSA! 

Medical News! 
CVSA Joins Genetic Alliance
to Endorse Rob Califf for the New FDA Commissioner 

Please join CVSA in supporting Dr. Rob Califf's nomination for FDA Commissioner.  He is a champion for patient/participants in all aspects of research and regulatory practices.  In particular, he has a history of working with research labs, drug companies, and the FDA to move new therapies from research labs to clinics. We encourage members to see Genetic Alliance's sign-on letter for more information about Dr. Califf.  


Alternatively, members can contact their elected representatives in support of Dr. Califf's nomination.

Wondering How You Can Help to Raise Awareness of CVS
In Your Community?

Fundraising Ideas:  

* Dinner or Wine Tasting Event *
* Silent Auction *
* Golf Event * 
* Coins for Hope * 
* Bake Sale * 
* Birthday Parties *
* Anniversary Parties * 
* Candy Sales * 
* Car Wash * 
* Craft Fair * 
* Raffle - 50/50 *  
* Matching Gifts and Grants * 

A great way to increase awareness in your community is to organize an event.  Volunteering your time can help to educate others about CVS.  Funds are needed to keep our mission of research, education and outreach alive.  If you are interested in holding an event our program director, Ruth Novak, will be happy to support you! 
Please contact Ruth at:
(414) 342-7880
Email Address:  cvsa@cvsaonline.org
Go Fund Me Project to Raise $ 
for the Adult Guidelines for Diagnosing and Treating CVS - 

It is so exciting that the CVSA and the American Neurogastroenterology and Motility Society (ANMS) will partner to develop Adult Guidelines!  

With Children's Guidelines already in place thanks to CVSA fundraising, and our strong team of medical advisors, we are embarking on a partnership project that will help adult sufferers around the world.  When completed, these guidelines will help doctors and ER personnel know how to better care for CVS patients.

Creating medical guidelines is expensive.  CVSA is the financial sponsor for these guidelines, but we are asking for your help to join us in funding this project.  All donations are greatly appreciated!  We will keep you posted with more information on the progress of this project as we move forward.  

Please visit our page at: 
http://www.gofundme.com/CVSAdultGuidelines

Total Amount Raised to Date:  
$16,306.00! 

Thank you from the Board of Directors 
at the Cyclic Vomiting Syndrome Association! 
Hope Starts Here 
with Holiday Cheer! 

The CVSA is running our holiday program once again for the second year, and will be accepting donations now through the end of December.   We were able to raise
$8,470.00  last year and thank you for your generosity!


Please consider making a charitable donation to the CVSA this holiday season.   You may want to honor a family member or friend who has CVS, or you may want to  donate in lieu of giving a gift to family, friends and co-workers. All donations from our  holiday program will be used to support the CVSA research fund and operations.

This year we will be designating 50% of our fund to the Adult Treatment Guidelines  project. Previous research funds have been used to underwrite the creation of the 
NASPHGAN Guidelines, to fund research symposiums, to grant scholarships  to young clinicians and scientists, and to fund pilot grants.  

If you wish to make a donation on-line please 
click HERE .

If you would prefer to mail a check you may do so to the address below. Please make checks payable to the CVSA, and note: 'Holiday Cheer' in the memo line.

CVSA
P.O. Box 925
Elkhorn, WI 53121

All donations are tax-deductible!

Holiday Cheer Campaign:  $1,181.00 to Date

Thank you! 
CVSA to be featured in 
 USA Today!
December 18, 2015

Make sure to pick up a copy of the USA Today Newspaper on Friday, December 18th.  Eric Barlow, Senior Publisher at Mediaplanet Publishing, is working on constructing the next edition of Digestive Wellness that will be going out within USA Today.  The goal of this campaign is to educate readers in their importance to healthy digestion, along with new ideas including recent breakthroughs as a part of the wellness theme. The CVSA will be one of the contributors featured in the article.  

Thank you Eric for helping us to raise awareness of CVS!
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CVSA - 2016   12th 
International
Family & Adult Conference
'Early Bird' Registration Fees
 
 June 24-26, 2016

Location:  Sheraton Brookfield 
Milwaukee, Wisconsin
Hotel Rooms:  CVSA Block of Rooms - $95.00 per Night

Friday, June 24th / 11:00am-Registration
1:00pm Welcome & Introductions
* Please note * - Our Speed Date with the Doctors
session will be held between 2:00pm-5:00pm
5:00pm-8:00pm / Meet & Greet Reception

Saturday, June 25th / 8:00am - 5:30pm 
Registration, Speakers, Stories of Hope,
Reflection, Disability and ER Visits
6:30pm / Dinner and ComedySportz Show 

Sunday, June 26th / 9:00am - 12:00pm 
Concluding Sessions 
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Members:
$125 Individual/$200 Couple/$225 Family

Non-Members:
$200 Individual/$275 Couple/$300 Family

* Early Bird Registration is open now until 
February 29, 2016

Please visit the CVSA Website for more information
on all fees and hotel accommodations.  
If you have any questions you may contact:
Ron Novak at (414) 342-7880

A New Conference Call
Support Group Coming Your Way in January 2016!

Finally, a way to meet people without having to leave your home!   This opportunity is offered by Cricket in North Carolina. She hopes this will give callers a consistent place to join in for hope and support.  Please remember that you can call in from anywhere in the U.S. or Canada .  Please note the time zone!!
 
Starting in January of 2016, Cricket will be holding a support Group call on the 2nd Monday of each month.  This call will be at 7PM Eastern time, 6PM Central, 
5PM Mountain and 4PM Pacific time. 

The meetings usually last an hour.  Feel free to join in on the call anytime to listen and hang up when needed. 

You will dial the call in number which is:
1-800-977-8002 promptly at the time the call is scheduled .  When prompted you will enter the participant code number:   5429554#.

You will be asked to state your name, and a moment later you will be joined into the call. 

If you have any questions you can email Ruth, at the CVSA Office at: cvsa@cvsaonline.org.  You may also call her at 414-342-7880.

I hope you will take advantage of these calls as it's a wonderful way to meet new people!