Highlights eNewsletter
July 2015

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Upcoming Events




Summer 2015 - 

Father/Son Hike 

Fundraiser in Colorado.

Hunter Stafford and his Dad are hiking 486 Miles 

from Denver to Durango!



October 10, 2015 -

Golf for Awareness

Fundraiser Event 

Tampa, Florida 

Hosted by:

Danielle Campbell



October 23-24, 2015 - 

Biology and Control of Nausea and Vomiting Conference

Pittsburgh, Pennsylvania



March 5, 2016 - 

CVS International 

Awareness Day



June 24-26, 2016 - 
CVSA International Adult & Family Conference 
Milwaukee, Wisconsin  


CVSA Facebook Page has 105  new 
Likes since 
last month -
We are now at 7,815

Please visit our page,
help us to raise awareness
and 'Like' us today! 

CVSA Membership Info

Check out our membership page to view our benefits!


Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  Ruth, our Program Director will be happy to help you with renewal along with any questions you may have about our organization.  


Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!




Shop Amazon Smile
All Year Long!

Visit:   www.smile.amazon.com to sign up and list CVSA as your charity of choice.  
.5% of all proceeds will be donated back to our organization.  
Share this information with your friends and family as it's a great way to give back to the CVSA!  


Member Resources


Visit our website to stay connected!  


* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Support Group Phone Calls

* Media Links

* 2014 CVSA Conference      Power Point Presentations

* Stories of Hope 


Code 'V'
Members Only

Next issue 
August 2015 



We greatly appreciate you thinking of the CVSA as a place to honor your loved ones.  

Thank You!

Welcome to the July 2015 issue of Highlights!

We hope you are all enjoying your summer!  Here in Chicago we had rain almost daily for the entire month of June.  We do remain optimistic that sunny days are ahead for the month of July.  

This issue of our eNewsletter features a few updates, along with Medical News to share in regards to the publication of the Adult Guidelines, as well as confirmation that the CVSA will be helping to sponsor the Nausea and Vomiting Conference in Pittsburg, Pennsylvania this coming Fall.

Hope your 4th of July holiday weekend is festive, and that you can celebrate with family and friends!  

CVSA - 'Run for the Bucket' Event
May 30, 2015 - 

The CVSA raised over $25,000.00!

Thank you!

Go Fund Me Project to Raise Funds for the Adult Guidelines for Diagnosing and Treating CVS - July 2015 

Last month we announced the exciting news that the CVSA and the American Neurogastroenterology and Motility Society (ANMS) will partner to develop Adult Guidelines.  The ANMS Council has approved the project, and the ANMS will partner with us in the development of formal guidelines for the diagnosis and treatment of CVS in adults.  

When CVSA was founded in 1993, it was thought that CVS was a condition of childhood and adolescence.  We now know that adults also suffer from CVS.  CVS may begin in childhood, and can extend into adulthood.  There is also adult onset CVS.  As so many adults can attest, the condition causes untold suffering and disability, and often leads to family, school and career upheaval.  

With Children's Guidelines already in place thanks to CVSA fundraising, and our strong team of medical advisors, we are embarking on a partnership project that will help adult sufferers around the world.  When completed, these guidelines will help doctors and ER personnel know how to better care for CVS patients.

Creating medical guidelines is expensive....and that is where you come in.  CVSA is the financial sponsor for these guidelines, but we are asking for your help to join us in funding this project.  All donations are greatly appreciated!  We will keep you posted with more information on the progress of this project as we move forward.  

Please visit our page at: 

Thank you from the Board of Directors 
at the Cyclic Vomiting Syndrome Association! 

Father/Son Summer Hike Fundraiser on the Colorado Trail 
Raising Awareness and Funds for CVS Research!

June & July 2015 
30-45 Day Journey

Hunter Stafford, age 19, and his Dad, Ed Stafford, age 53, are hiking the entire Colorado Trail right now to raise $ for the CVSA!  We featured this story in our last issue of Highlights and wanted to give you an update.  

The hike began the middle of June at Chatfield Reservoir in Denver, and will end in the town of Durango by mid to end of July.  This trail stretches 486 miles.  Hunter and Ed's last update shows them currently in beautiful Buena Vista!  

To Date:  $1300.00 has been raised!  

If you would like make a donation to help Hunter and his Dad raise money for the CVSA, please visit his fundraising page below.  Their goal is to raise $5,000.00! 


You may also visit the link for current 'Updates' on how Hunter and his Dad are doing along the way.  Hunter is posting where they are along with pictures of their journey.  

Hunter has also set up an Instagram account to promote this cause as well:  @hikenotpuke.  

We wish you the best of luck! 

* A note to our Membership * 
Look for a full newsletter article about this adventure in the next issue of our Code 'V' coming out next month.  

Golf for Awareness Event to be held in Tampa Bay, Florida - 
October 10, 2015


After taking a year off to start my Freshman year of college, we are back at it!  Join us for the 2nd CVSA charity golf tournament on Saturday, October 10, 2015.  The scramble shotgun will begin at 9:00am.  Bring friends and family!  


If you are feeling extra generous, please consider supporting through a tee or title sponsorship, or a prize donation!  Be on the lookout for further details and official entry forms in the next few months.  I appreciate the continued support and can't wait to see everyone in October!  

Event to be hosted by:  

 Danielle Campbell 


More Exciting Medical News!
Biology and Control of Nausea
and Vomiting Conference -
Pittsburgh, Pennsylvania
October 23-24, 2015 

The CVSA is happy to announce that the Second "Biology and Control of Nausea and Vomiting Conference 2015" will be held on October 23rd and 24th (Friday and Saturday), at the University of Pittsburgh!

This conference is designed for clinicians and basic scientists who are interested in the biology of control of nausea and vomiting.  

Full details of the event can be found at:  www.emesis2015.org.