Highlights eNewsletter
May 2015

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121
Upcoming Events




May 30, 2015 - 

9th Annual 

'Run for the Bucket' 

5K Run/Walk Event

Waukesha, Wisconsin




June 10, 2015 - 

Father/Son Hike 

Fundraiser in Colorado.

Hunter Stafford and his Dad will hike 486 Miles 

from Denver to Durango!




October 10, 2015 -

Golf for Awareness Event

Tampa, Florida 

Hosted by:

Danielle Campbell




June 24-26 2016 - 
Next Summer 
CVSA International Adult & Family Conference 
Milwaukee, Wisconsin  

Shout Outs!

*  The Besnoff Family *

Tyler, age 9, and his family hosted the Stomp Out CVS Walk in Lancaster, Pennsylvania on April 12th.  The event was a huge success and honored Tyler's younger brother, Aaron, who is 6 years old, and has been a CVS sufferer since birth.  Donations are still coming in and have totaled over $2,500.00!
We appreciate the time and effort you put into holding this fundraiser and commend you on a job well done! Thank you Tyler for being an inspiration to all of us!  

* The Lenhardt Family *

Tyler, age 9, has been busy raising $ for his 6 year old brother, Mikey, who suffers from CVS.  We featured his story in the April issue of Highlights and wanted to give you a Shout Out! 
Thank you Tyler for all of your hard work. To date you have raised
$1213.00!  Fantastic job! 

* Alyssa and Mom, 
Jennifer Christensen

Thank you Alyssa for presenting CVS at your school to support International Awareness Day!  It's wonderful you were able to contact your local radio and cable stations to run public announcements to raise awareness! The full story and picture of Alyssa can be found in the Spring 2015 issue of our Code 'V' Newsletter.   Thank you Alyssa for educating your teachers and peers at school, and for bringing awareness to all of those around you who have never heard of this rare disorder!  


CVSA Facebook Page has 121  new 
Likes since 
last month -
We are now at 7,581

Please visit our page,
help us to raise awareness
and 'Like' us today! 

Challenge Contest

Thank you to everyone who sent in or posted on the CVSA Facebook page an idea for a challenge we could possibly do in the future to raise awareness and $ for our organization.  Our Board considered each idea and unfortunately we just didn't come up with one that sparked enough interest to run with at this time.  

Please feel free to share your creative ideas with us via email, as we move into this summer and we will continue to read the entries that come in.  We may be able to start an appropriate campaign in the future and will be happy to consider all ideas!  

We do ask that you provide a challenge that is simple, can appeal to both children and adults, will be entertaining, and has the potential to go viral utilizing social media.  

Please send ideas to Ruth, our Program Director at:

CVSA Membership Info

Check out our membership page to view our benefits!


Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  


Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!


Shop Amazon Smile
All Year Long!

Visit:   www.smile.amazon.com to sign up and list CVSA as your charity of choice.  
.5% of all proceeds will be donated back to our organization.  
Share this information with your friends and family as it's a great way to give back to the CVSA!  


Our thoughts and prayers go out to the family of Barbara Framer, who passed away in March.   Barbara was a long time member of the CVSA. To date $450.00 in Memorial gifts have been raised in her honor.  

Our thoughts and prayers go out to the Dillon McGinn family. Dillon was a CVS sufferer whose family designated the CVSA as their charity of choice.  We thank you for the donations that have been coming in to honor his memory.  


Our thoughts and prayers go out to the Thomas Glancey family as well.  Mr. Glancey was the grandfather of a CVS Sufferer.  
Thank you to the family for thinking of our organization.  

We appreciate all of these families making contributions to the CVSA and thinking of us as a place to donate to honor their loved ones.  

Welcome to the May 2015 issue of Highlights!

April showers bring May flowers....
The grass is green, sunshine is upon us, and the trees and flowers are starting to bloom!

Happy Mother's Day and  Happy Memorial Day from all of us at the Cyclic Vomiting Syndrome Association.  

Enjoy our latest issue of Highlights!

CVSA Board of Directors
Annual In-Person Meeting -

Our Board of Directors, along with our Program Director, met in Milwaukee, Wisconsin the weekend of April 17th to discuss goals for the upcoming year.  We covered a variety of topics including:  Our website, our Code 'V' Newsletter, our monthly eNewsletter-Highlights, Social Media, the idea of having a Challenge Contest, and spent hours preparing and brainstorming for the 2016 CVSA International Adult & Family Conference to be held next summer.

Please 'Save the Date' to attend our conference the weekend of June 24-26 - 2016!
Board of Directors:  Kathleen Adams, Jennifer Dhuse, Connie Hill, Ron Novak, Debbie Conklyn, 
Anthony & Tara Destribats, Tom & Shelley Kupetis, 
Mary Rachael Lovett-Barr and Robin Raskin. 

Program Director:  Ruth Novak

Join us for 'Run for the Bucket'! Register for our 5K Run/Walk Annual Fundraiser Today!
Date:  May 30, 2015 
Frame Park, Rotary Building
Waukesha, Wisconsin 

Our 9th annual Run/Walk fundraiser is coming up at the end of this month!   The event begins at 9:00am.  Groups of 10 or more can still register for $25.00 per person. Please contact Ron Novak if you are interested in participating as a group. 

We will have a Silent Auction and Raffle Prizes for this event which include the following:   

2 sets of (4) tickets for Mt. Olympus - Wisconsin Dells
2 sets of (4) tickets for Top Secret at Mt. Olympus
(4) Tickets for the Milwaukee Admirals
1 Autographed Green Bay Packers Football
90 Day Membership to the Wisconsin Athletic Club
1 Charles Woodsen Green Bay Packers Jersey
1 Weekend Night Stay at the Sheraton Milwaukee Brookfield 
(4) 1 day complete passes to Discovery World - Milwaukee
1 Night stay at the Delafield Hotel 
Texas Roadhouse Restaurant, Waukesha - 2 Free Entrees 
Harley Davidson Leather Jacket - Ladies XS
(4) Tickets to Harley Davidson Museum  

If you would like to become a  Sponsor  for this event or know someone who would please contact us as soon as possible for more information.  

Can't join us for the Walk, but would like to make a donation?  You can visit the CVS Walk Home Page Banner on our website to donate online with a credit card, or you can mail us a check.
Please make checks payable to:  CVSA.  

Please keep in mind that many companies 'Match' Donations! When making your own donation please reach out to your company and ask if they will match it to support the CVSA. This is a wonderful way to raise $ as well as awareness for Cyclic Vomiting Syndrome!  

Any questions?  Feel free to contact Debbie Conklyn,
Our Fundraising Chair for the CVSA.  
Debbie's email address is:  cvswalkwi@yahoo.com.  

Thank you! 

Rock 'N' Roll Radio Station 
95.9 FM The River in Chicago is helping us promote -
Our 'Run for the Bucket' Event! 

Help us to raise awareness around the Chicago area by letting your friends and family know The River Radio Station at 95.9 FM will help us promote our upcoming 5K Event in Waukesha, Wisconsin on May 30th by 

publicizing our event on the Radio.  


This 20-second PSA will go 'On the Air' May 25, and will run for 5 days.  Our event will also be listed on The 

River's Website Community Calendar.


Please visit our website Banner to hear the 

Public Service Announcement (PSA).



Thank you to 95.9 The River for lending a voice to the:

Cyclic Vomiting Syndrome Association!   


Father/Son Hike planned on the Colorado Trail to raise awareness and $5,000.00 for CVS Research! 
June 10, 2015 - 30 day tour

Hunter Stafford, age 19, and his Dad, Ed Stafford, are going to hike the entire Colorado Trail this summer to raise $ for the CVSA!  Hunter's CVS started at the age of 6 months, lasted until he was 12 years old and miraculously stopped occurring in the 7th grade.  His episodes lasted for 1 week and occurred every 6 weeks of his life.  During this time he endured severe migraine headaches and vomiting to the point of needing IV fluids every episode.  Hunter thought his episodes were gone forever until just recently when CVS struck again.  

The hike will begin at Chatfield Reservoir in Denver, and will end in the town of Durango.  This trail stretches 486 miles.  We wish you the best of luck and Thank You! 

Please visit Hunter's fundraising page at:
http://fundly.com/we-re-tired-of-puking to read more.

Hunter has also set up an Instagram account to promote this cause as well:  @hikenotpuke.  
Golf for Awareness Event to be held in Tampa Bay, Florida - 
October 10, 2015


Attention Golfers! 


Please 'Save the Date' to join in on this charity event to be held in Tampa Bay, Florida.  This is the 2nd CVSA charity golf outing hosted by Danielle Campbell.  The event will take place on Saturday, October 10th and will be a Shotgun Scramble beginning at 9am.  Ask your friends and family if they would like to attend this upcoming event!  




Member Resources



Visit our website to stay connected!  


CVSA Facebook Page
CVSA College Facebook Page
CVSA Message Board
CVSA Support Group Phone Calls
Media Links
2014 CVSA Conference Power Point  Presentations
Stories of Hope! 

Important Notes: 
  • If you are interested in hosting a fundraiser or would like some ideas on how you can raise awareness in your community please contact us, or visit our website and click on: Get Involved, Fund-Raising Tips.  We would love to help!  
  • Our Code 'V' Newsletter is at the printer and will be arriving in your mailbox soon!  We apologize for the delay. 
  • Hospital Hints - Coming Soon!