Highlights eNewsletter
October 2015

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Mark Your Calendar!

 

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October 10, 2015 -

Golf for Awareness

Fundraiser Event 

Tampa, Florida 

Hosted by:

Danielle Campbell

 

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October 23-24, 2015 - 

Biology and Control of Nausea and Vomiting Conference

Pittsburgh, Pennsylvania

 

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November/December 2015 -

CVSA - Hope Starts Here

with Holiday Cheer 

The Gift of Giving During

the Holidays 

 

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November 8, 2015 - 

Silent Auction & Dinner

8th Annual CVSA

Minnesota Fundraiser 

Hosted by:

Maria Buhl

 

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March 5, 2016 - 

CVS International 

Awareness Day

 

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June 4, 2016 -

CVSA 10th Annual

'Run for the Bucket' 5K Event

Waukesha, Wisconsin 

 

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June 24-26, 2016 - 
CVSA International Adult & Family Conference 
Sheraton Brookfield
Milwaukee, Wisconsin  

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________________

CVSA Facebook Page has 
8,103 LIKES



Help us to 
Raise Awareness 
around the world 
and 
'LIKE' us today!

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________________
The Board of Directors have 
been busy preparing for the 12th International Adult and Family Conference that will take place next summer.  

Look for more information and 'Early Bird' registration to come in our November issue 
of Highlights. 
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Shop Amazon Smile!

As we move into the Holiday Season
PLEASE 
sign-up today to list
CVSA as your charity of choice!

Visit:   www.smile.amazon.com 
Here you may list CVSA as your charity of choice.  In return
.5% of all proceeds will be donated back to our organization.  It just takes a minute of your time.  

Share this website with your family and friends as it's a wonderful 
way to support the CVSA this holiday season and all year long!  


$117.00 was sent to the 
CVSA this past quarter.  

THANK YOU!
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Reminders 
and
Member Resources

 

Visit our website to stay connected!  

 

* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Support Group Phone Calls

* Media Links

* 2014 CVSA Conference      Power Point Presentations

* Stories of Hope


 

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Check Out the 
CVSA Membership Page to View our Benefits!

 

Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  

 

Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!

 

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Membership
Renewal Letters

If you have received a renewal letter in the mail and would like to renew your membership at this time, please contact our Program Director - 
Ruth Novak

You may also visit our website.  This information can be found under the 
'Get Involved' section, and just takes a moment to fill out.  

Memorials

  

Thank you for honoring 
your loved ones and 
supporting the 
Cyclic Vomiting Syndrome 
Association.   

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Welcome to the October 2015 issue of Highlights!

TRICK 
OR
TREAT!


October marks the One Year Anniversary of 'HIGHLIGHTS'!   We hope you have enjoyed reading our monthly eNewsletter this past year, and look forward to providing you with more informative issues in the year to come.  

Enjoy this beautiful Fall season and Happy Halloween! 

**** HOPE STARTS HERE ****
Dr. Li's Visit 
to Japan
in September - 

Dr. Li took a recent trip to 
Japan and spoke at the 33rd annual meeting of the Japan Society of Pyschosomatic Pediatrics. They specialize in migraine, CVS, IBS, developmental difficulties and school phobia.  

Pictured above:  Shun Emoto and Dr. Li 

Shun Emoto was notified he will be given a national 
award for his work in support groups, and Dr. Li gave the Certificate of Appreciation (for his pioneering work on CVS and the neuroendocrine aspects - elevated ACTH, cortisol, catecholamines, AVP) along with letters from Kathleen Adams and himself to his colleagues at Kanazawa University on the west coast of Japan.  
Nina Hellebakken Hagen
from Norway shares her journey of living with CVS and never giving up in this  Youtube Video 

You can view Nina's Youtube Video at:  https://www.youtube.com/watch?v=xnC1M1mIPIE

Thank you Nina for taking the time to share with all of us your struggles with migraines and CVS throughout your life, and your powerful words:  Always Keep Fighting. 
The TPC Tampa Bay 
Golf for Awareness Charity Event is right around the corner!

Date:  Saturday, October 10, 2015

 

80 Golfers are expected to attend this wonderful event!  

 

Please join in and attend the 2nd CVSA charity golf tournament on Saturday, October 10, 2015. 

The scramble shotgun will begin at 9:00am.  Invite family and friends who would like to support Danielle as she has battled CVS since she was a toddler.  

 

If you would like to participate, or would like to give a monetary or prize donation, please contact one of these individuals below for more information:  

 

Dani Campbell:  dnc218@lehigh.edu

Scott Campbell:  scampbell1014@gmail.com

Andrea Campbell:  andrea@customescapes.com


 

 

 

Best of luck to you Danielle!   

 

Biology and Control of Nausea
and Vomiting Conference -
Pittsburgh, Pennsylvania
October 23-24, 2015 

Friday, October 23, 2015
  • Prodromal Responses - Detecting the presence of nausea in humans and pre-clinical models
  • Acute-to-Chronic Nausea and Vomiting
  • Cyclic Vomiting Syndrome Research Symposium
  • Poster Session
  • Reception and Group Dinner

Saturday, October 24, 2015

  • Early-Stage Investigator Symposium
  • Clinical Panel Discussion
  • Back to the Future - Conference Integration Session
  • Cyclic Vomiting Syndrome Adult Guidelines Session

Course Directors

Charles Horn, PhD, University of Pittsburgh School of Medicine Bill Yates, PhD, University of Pittsburgh School of Medicine

Planning Committee
Richard Gralla, MD, Albert Einstein College of Medicine
Kenneth Koch, MD, Wake Forest School of Medicine
B.U.K. Li, MD, Medical College of Wisconsin
Charles Oman, PhD, Massachusetts Institute of Technology
Henry Parkman, MD, Temple University School of Medicine 
Thangam Venkatesan, MD, Medical College of Wisconsin
Susan Wesmiller, PhD, University of Pittsburgh School of Nursing

Location
The University Club 123 University Place Pittsburgh, PA 15260

Conference Websites
Biology and Control of Nausea and Vomiting Program:   http://emesis2015.com/


 

Sponsored By:
  • National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
  • Cyclic Vomiting Syndrome Adult Guidelines Session Sponsored by the Cyclic Vomiting Syndrome
    Association in partnership with the American Neurogastroenterology and Motility Society
  • University of Pittsburgh School of Medicine Center for Continuing Education in the Health Sciences 

Minnesota Silent Auction
and Dinner - Fundraiser 
November 8, 2015 
If you would like to attend please
contact the CVSA office or
Maria Buhl

Go Fund Me Project to Raise $ 
for the Adult Guidelines for Diagnosing and Treating CVS - 

It is so exciting that the CVSA and the American Neurogastroenterology and Motility Society (ANMS) will partner to develop Adult Guidelines!  

With Children's Guidelines already in place thanks to CVSA fundraising, and our strong team of medical advisors, we are embarking on a partnership project that will help adult sufferers around the world.  When completed, these guidelines will help doctors and ER personnel know how to better care for CVS patients.

Creating medical guidelines is expensive.  CVSA is the financial sponsor for these guidelines, but we are asking for your help to join us in funding this project.  All donations are greatly appreciated!  We will keep you posted with more information on the progress of this project as we move forward.  

Please visit our page at: 
http://www.gofundme.com/CVSAdultGuidelines

Website Donations:  $3,183.00
Donations sent to the CVSA:  $12,004.00

Total Amount Raised to Date:  
$ 15,187.00

We are so grateful to have raised over
$15,000.00 since our announcement.  

Thank you from the Board of Directors 
at the Cyclic Vomiting Syndrome Association! 
Code 'V' Newsletter
Members Only Benefit!

Our Summer Issue was mailed out in September.
If you have not received yours yet please
contact our office.  

Next Issue of Code 'V'
due out in 
November/December