July 2016  

Welcome to the July edition of CanChild Today! We hope everybody is enjoying the summer so far. This edition of CanChild today highlights the success of CanChild Scientists in the CIHR Funding cycle, an opportunity to get involved in research and recent publications by CanChild members. 

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In the News & Around the Web...
The 2016 Canadian Institutes of Health Research (CIHR) Project Grant and Foundation Grant results were shared this month. A total of 491 research projects received funding, as well as an additional 127 one-year bridge grants,  totaling  $375,579,347. A total of 120 Foundation Grants were awarded,  totaling  $291,895,275. Among those successful in the competition were the following CanChild members:
  • CanChild Scientist Mark Ferro (with co-investigators Michael Boyle, Kathy Georgiades, Jan Willem Gorter, Ellen Lipman, Lilly Shanahan, Brian Timmons & Ryan van Lieshout) was awarded $1,238,491 over 5 years for a project entitled, "Multimorbidity in Children and Youth Across the LIFEcourse (MY LIFE)"
  • CanChild Scientist Anne Klassen (with co-PI Karen Wong and co-investigator Andrea Pusic) was awarded $378,427 over 2 years for a project entitled, "An International Study to Develop a Patient-Reported Outcome Instrument for Conditions Associated with a Facial Difference: FACE-Q Kids"
  • CanChild Research Associate Sanjay Mahant (with co-investigators Myla Moretti, Patricia Parkin, Catherine Pound, Suzanne Schuh, Gita Wahi & Andrew Willan) was awarded $607,778 over 3 years for a project entitled, "Intermittent vs. Continuous Oxygen Saturation Monitoring in Infants Hospitalized for Bronchiolitis: A Randomized Controlled Trial"
Congratulations  to all groups who were successful!
Get Involved in Research!
Are you a teenager or adult (age 16-30) with Cerebral Palsy in Ontario?

Check out the MyStory Project!

Most brain research for people with Cerebral Palsy (CP) focuses on early  brain development. More research is needed to understand how the brain changes through the teenage years and into adulthood.   The MyStory Project examines physical health  (fatigue and pain), mental health (anxiety and depression), chronic stress and overall well-being in adolescents and young adults with CP between the ages of 16-30.

Learn more  about this research. 
Recent Publications by CanChild Members
This study looked at how quality of life (QOL) for youth with chronic health conditions changed over three years, by analyzing youth and parent reports. A total of 439 youth with chronic conditions aged 11 to 17 years, along with one each of their parents, were recruited from eight children's treatment centers. Latent Class Growth Analysis was used to investigate QOL trajectories over a three-year period. Multinomial logistic regression was employed to identify factors associated with these trajectories. Two QOL trajectories were identified for the youth analysis: 'high and stable' and 'moderate/low and stable'. Three trajectories were found for the parent analysis: 'high and stable', 'moderate and stable', and 'moderate/low and stable'. Relative to the 'high and stable' groups, youth with more pain/other physical symptoms, emotional symptoms, and home/community barriers were more likely to be in the 'moderate and stable' or 'moderate/low and stable' groups. Also, youth with higher self-determination, spirituality, family/social support, family functioning, school productivity/engagement, and school belongingness/safety were less likely to be in the 'moderate and stable' or 'moderate/low and stable' groups, compared to the 'high and stable' groups. Findings suggest youth with chronic conditions experience stable perceived QOL across time, but some individuals maintain stability at moderate to moderate/low levels which are related to personal and environmental influences. Potential benefits of universal strategies to safeguard resilience for all youth and targeted interventions to optimize certain youths' global perceived QOL are indicated. 

Authors: McDougall, J., DeWit, D., Nichols, M., Miller, L., & Wright, V. Quality of Life Research. Early Online. DOI 10.1007/s11136-016-1353-z.

Occupational therapy is a healthcare intervention for children with coordination difficulties. Evidence suggests that occupational therapy interventions should use a broad range of pathways to improve participation. These include environmental and psychosocial factors. However, in practice therapists and researchers focus more on a child's biomedical impairments and basic movements. Current evidence relies mostly on therapist and researcher descriptions of these items. More exploration of parent's and children's lived experiences of occupational therapy is needed. This research team looked at the main ingredients of occupational therapy interventions for children with coordination difficulties and the process through which these ingredients relate to children's participation. Children and parents participated in interviews where they shared their experiences with occupational therapy and processes of change. Researchers found that five key ingredients were identified, including: performing activities and tasks, achieving, care support, helping and supporting the child, and labeling ingredients related to participation by changing children's mastery experience, increasing capability and a sense of control. Parent's knowledge, skills, positive emotions, sense of empowerment and capability beliefs also related to children's participation.These results are helpful because they identify change pathways for occupational therapists.

Authors: Armitage S, Swallow V, Kolehmainen N. Scandinavian Journal of Occupational Therapy. 2016. DOI: 10.1080/11038128.2016.1201141
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