November 2016  

Welcome to the November edition of CanChild Today ! Read on to learn more about a new webinar on chronic pain in children and young people with cerebral palsy and for an exciting update about the "F-words" in childhood disability. We are also proud to announce a new video celebrating CP-NET, share presentations from CP-NET Science & Family Day and highlight recent publications by members of the CanChild Community. 

Please feel free to share CanChild resources and this newsletter with family, friends and colleagues. They can subscribe to the CanChild Today Newsletter for free by registering   here . Our past issues are archived on the CanChild website and can be accessed here!  
New Resource!

Pain Prevention and Treatment in Children and Young People with Cerebral Palsy
Presented by Darcy Fehlings and Shauna Kingsnorth on 
November 25, 2016.

Pain in children and young people with cerebral palsy is under-recognized and can have a serious impact on quality of life. This webinar discusses the importance of 'pain' and highlights research around the impact of pain on participation and quality of life.  Common causes of pain and missed causes of pain are reviewed, and a framework for the assessment and treatment of chronic pain in CP is provided. Importantly, the role as a caregiver to 'open up the discussion' of pain management with a child's physician is discussed.

This webinar is appropriate for anyone who wants to learn more about pain in children and young people with cerebral palsy.

New Video!  

Announcing the Release of "Discover CP-NET"!

"Discover CP-NET" was produced by CanChild and released on October 5, 2016 in celebration of World CP Day. 

Watch our new video to learn more about CP-NET and the amazing partners that make it all happen.  "Discover CP-NET" was created in collaboration with children, youth and adults with cerebral palsy and their families. 

News and Announcements!  

CP-NET Science & Family Day Presentations Now Online!

On October 5th, CP-NET celebrated World Cerebral Palsy Day with CP-NET Science and Family Day, hosted at Holland Bloorview Kids Rehabilitation Hospital. Thanks to the families, caregivers, clients, healthcare professionals and researchers who helped make this event a success!

All presentations are now available to view at your convenience online, including:

CP-NET Overview 
Darcy Fehlings, CP-NET Program Lead
What is it Like to Live with CP?
Paige Zaldin, CP-NET Stakeholder
Parenting Children with Neurodisabilities: Context & the Lived Experience 
Lucy Lach, Associate Professor at McGill University 
Reflections: Where Can We Go Next?
Peter Rosenbaum, CanChild Co-founder
The F-Words: A Framework for Supporting Family Wellbeing
Panel Session with Danijela Grahovac, Julia Hanes, Jonathan Lu and Maria Susini. Moderated by Andrea Cross.

Go Baby Go: Technology and Training that Lets a Kid be a Kid!
Cole Galloway, Director of the Pediatric Mobility Lab & Design Studio at the University of Delaware 
A Stakeholder Voice to Drive CP Research - Our CP Community has Spoken!
Darcy Fehlings, CP-NET Program Lead
Brenda Agnew, CP-NET Stakeholder  

  View now.

"The 'F-words' in Childhood Disability: I swear this is how we should think!" - Now Open Access

Published in 2012 and inspired by over two decades of CanChild research and continual discussion amongst members of the CanChild family, "The 'F-words' in Childhood Disability: I swear this is how we should think!" features six 'F-words' that the authors argue should be the focus in childhood disability: Function, Family, Fitness, Fun, Friends, and Future.

We are proud to announce that we have secured open access for this paper - meaning that from now on, this fun, friendly, family-oriented message is available for yet another favourite "f-word": free! 

New DMCN Editor Podcast with Peter Rosenbaum

Peter Rosenbaum discusses his editorial piece, entitled 'Changing the discourse: we must all be knowledge brokers' in a podcast presented by Developmental Medicine & Child Neurology. 

Featured Publication

Perspectives on "Disease" and "Disability" in Child Health: The Case of Childhood Neurodisability 
Traditionally, neurodisabilities have been described interchangeably with the terms "neurodevelopmental disabilities" and "neurodevelopmental disorders". However, conceptual and empirical advances have highlighted the importance of differentiating between the terms "disability" and "disorder." The main objective of this paper is to argue for the recognition of both disease and disability perspectives and the use of these concepts in a more balanced manner in areas such as clinical services, research, policy-making, and professional and public education in terms of children with neurodisabilities.  This is done by exploring the diverging concepts of disability and disease as described in the World Health Organization's (WHO) International Classification of Functioning, Disability, and Health (ICF), the "goodness of fit," and current use and place of the terms in childhood neurodisability. Suggestions and practical steps are outlined for how to ensure that both perspectives are given equal consideration at the outset, but also when to recognize that one perspective may be more relevant in a given situation than the other.  
This state-of-the-art review by two experienced Canadian developmental pediatricians draws on a wide range of clinical, scientific and conceptual material to create a valuable resource for anyone who wishes to move ahead with a progressive agenda for how we think, plan, research and teach "disability" within health. 

AuthorsAnton Rodney Miller ,  and  Peter Rosenbaum.  Front Public Health . 2016; 4: 226.  Published online 2016 Oct 26.  doi: 10.3389/fpubh.2016.00226 [Open access].


Stay & Play Training Workshop
St Joseph's Health Centre Guelph and KidsAbility are proud to present a training workshop for the Stay & Play Integrated Social Skills Grou p . This workshop is aimed at CDA's / supportive personnel, OTs and SLPs. 

Date: Friday, December 9 , 2016 | 9am - 4pm
Time : 9am - 4pm EST
Location: St Joseph's Health Centre, Level 2 (Auditorium) 
100 Westmount Road, Guelph ON (Canada)

Presenters: Sarah Brown, OT Reg. (Ont.) & Heide Brown, M.Cl.Sc. Reg CASLPO
Cost: $30 (includes refreshments and presenting materials. Parking is $6 on exit)
"Stay & Play" is a seven-week social skills program for children aged 3-5 with significant social communication needs, at the emerging, moderate and advanced skill levels. It also trains peers, parents and child care / school teachers. Stay & Play is run by an OT and an SLP for 2 hours/week with different social skills targeted each week. 

The workshop will provide strategies for peer training, coaching child care / school teachers, facilitating social skills development in children with significant challenges, utilizing sensory and self-regulation strategies for individuals and the group.  Workshop attendees will receive an electronic copy of the comprehensive manual that includes lesson plans for every session, materials lists, song choices, activity suggestions and visual cues to post and use in your group. 

Recent Publications by CanChild Members

The rising incidence of concussions in children and adolescents is of great concern. In comparison to adults, youth require longer recovery times that significantly impact their mental, physical, and academic performance as well as social encounters. A retrospective cohort study was performed from 2003 to 2013 to identify trends in the annual number of physician office and emergency department (ED) visits for concussion for youth aged 5 through 18 years in Ontario. Over the course of the study period, there were over 176 685 pediatric visits for a concussion, demonstrating a 4.4 fold increase per 100,000 visits. In particular, a steep increase was noted onwards from 2010. Overall, it was found that females and youth from 13 to 18.99 years had the greatest increase in standardized visits. A strong seasonal variability was also noted, with most incidences occurring in the fall and winter seasons. This finding may be partially explained by the fact that most ED visits in Ontario for concussion are sports-related, with the most c ommon cause being ice hockey. Findings from this paper suggest that prevention strategies targeted for the most at-risk groups and for seasonal-related activities may be effective in reducing the risk of concussion. 

Authors: Zemek RL, Grool AM, Rodriguez Duque D, DeMatteo C, Rothman L, Benchimol EI, Guttmann A, Macpherson AK. J Pediatr.  2016 Nov 11. pii: S0022-3476(16)31201-X. doi: 10.1016/j.jpeds.2016.10.067. [Epub ahead of print]

Inclusive leisure spaces describe settings where individuals come together to experience autonomy, connections with others and social acceptance regardless of their abilities and disabilities. In this study, the investigators determined strategies used to create an inclusive leisure space in Spiral Garden. The Spiral Garden program is part of the Holland Bloorview Kids Rehabilitation Hospital, which offers an art-mediated outdoor summer day program that caters to both children with or without disabilities. Through interviewing Spiral Garden service providers, the investigators identified eight strategies the service providers found to be essential in creating an inclusive leisure space. These strategies fall into three broad categories, which are identified as a) engaging children in collective experience, b) encouraging peer interactions and friendships, and c) facilitating collaborative child-directed experiences. By implementing such strategies, the children were enabled to experience spontaneous free play, individualized structured support, and meaningful social participation. Additionally, it was found that service providers should be encouraged to enhance supportive child and service provider relationships as well as child and environment relationships in group programs. It is hoped that service providers working in different inclusive settings can use the strategies identified in this study to aid program design and implementation. 

Authors: Smart E, Edwards B,  Kingsnorth S Sheffe S, Curran CJ, Pinto M, Crossman S,  King G Disabil Rehabil.  2016 Nov 16:1-9. [Epub ahead of print]
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