November 2017  

 
Welcome to the November edition of CanChild Today! In this issue, we invite you to catch up on our CP-NET World Cerebral Palsy Day (October 6) celebration through presentation, videos and photos, and share news, opportunities and publications from our colleagues. We also highlight recent examples of how the F-words have taken flight around the world!

Please feel free to share CanChild resources and this newsletter with family, friends and colleagues. They can subscribe to the CanChild Today! Newsletter for free by registering   here . Our past issues are archived on the CanChild website and can be accessed here!  
Psst... Last Chance to Vote!

Vote for " These six F-words won't fill up your swear jar: What do the F-words mean to youth with impairments " in the  CIHR Institute of Human Development, Child and Youth Health (IHDCYH) "Video Talks" Competition! 

Votes are tallied by the number of LIKES (thumbs up!) on each video.  Voting closes November 30- so please don't delay and vote today! 
CP-NET Science & Family Day 2017
Thank you for a wonderful World CP Day!


On October 6, 2017, the community came together to celebrate World CP Day with the 4th Annual CP-NET Science & Family Day. Thanks to the families, caregivers, clients, healthcare professionals and researchers who helped make this event a smashing success!

All presentations are  now available online, including:

Better Nights, Better Days for children with cerebral palsy
Shelly Weiss (SickKids / Better Nights Better Days project)

Painting cultural attitudes towards physical disability
Kira Gossack-Keenan (McMaster University Medical Student)

How do you want to get involved in research?
Jordan Antflick (OBI), Jan Willem Gorter (McMaster University / CP-NET) & Jenine Paul (OBI)

Curriculum of Caring  
Kerry Boyd (McMaster University)


News and Opportunities!

Six words that remind us what's important 
New blog post by Cerebral Palsy Alliance

The  'F-words' in Childhood Disability  and the new CP-NET Video, " These six F-words won't fill up your swear jar: What do the F-words mean to youth with impairments? " are featured in a recent blog post by the Cerebral Palsy Alliance (Australia).  Read now!

READYorNot Health Care Transition Project Seeking Participants on the Development of an e-Health Platform

The READYorNot project at CanChild is hosting a series of focus groups and interviews, beginning now (December, 2017) and continuing into the New Year. We are looking for young people between 16-18 years with a brain-based developmental disability (and their parents!) to test a beta version of an e-health application and to share with us about their user experiences. If interested, please contact the project's research coordinator, Sonya Strohm, at  strohmsj@mcmaster.ca
Reminders!



The F-words in Childhood Disability Knowledge Hub officially launched in July 2017. The purpose of the Knowledge Hub  is to have one place where people can go to learn about the F-words (Function, Family, Fitness, Fun, Friends, and Future), and share ideas and strategies for moving the F-words into practice. While some of the tools and items on the Knowledge Hub were created by our research team, many of the materials are being generously shared by stakeholders from around the world.
 
In order to ensure that the Knowledge Hub is meeting the needs of stakeholders, we are conducting a pilot evaluation.  After exploring the Knowledge Hub, we hope you will share your feedback with us by completing a brief online anonymous survey.

Access the survey

We would like to thank you in advance for your time. Your opinion greatly matters to us, as we strive to create tools and resources that will be useful and meaningful for families and service providers.



Life Course Health Development of Individuals with Cerebral Palsy: 
An LCRN Webinar featuring Briano Di Rezze, Matthew Freeman, Robert Palisano, and Debra Stewart

Wednesday, December 6, 2017
12:00pm-1:00pm EDT

In this LCRN (Life Course Research Network) webinar, researchers from CanChild will share their findings from a study on lifecourse health development of individuals with cerebral palsy to promote developmental capacities for future roles and healthy adult living beginning in childhood.

Register now
Recent Publications by CanChild Members
Providing information to families to raise awareness and increase capacity is a best practice in the effective management of Developmental Coordination Disorder (DCD). In this study, the authors investigate whether an evidence-based online module can increase the perceived knowledge of, and skills in, managing their child's DCD. Information about the beliefs and self-perceived skills of parents of children with DCD were collected before completing the module, immediately after, and three months later. The study demonstrated that accessing the online module had a positive impact on parents' self-reported knowledge and skills in managing their child's DCD. Additional research is needed to explore how this may impact children's long-term outcomes. Authors:  Camden C Foley V Anaby D Shikako-Thomas K Gauthier-Boudreault C,  Berbari J Missiuna C Disabil Health J.  2016 Jul;9(3):406-15. doi: 10.1016/j.dhjo.2016.04.002. Epub 2016 Apr 13.  

PLAYfun is a measure that assesses movement competence, comprehension and confidence, factors that may influence a child's lifelong participation in physical activity. While PLAYfun (and other related measures that form the PLAY tools) are being used by practitioners in Canada and the USA, its measurement properties have not been reported in the published literature. The purpose of this study wasto examine the factor structure of PLAYfun, as well as variations in PLAYfun subscale results by age and sex. The authors found that the factor structure and patterns of results by age and sex support PLAYfun as a measure of motor competence. Authors:  Cairney J Veldhuizen S Graham JD Rodriguez C Bedard C Bremer E Kriellaars D . Med Sci Sports Exerc. 2017 Nov 15. doi: 10.1249/MSS.0000000000001494. [Epub ahead of print]
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