April 2016
    Vol 5 Issue 1
From the Editor  
Happy National Cancer Registrars Week! First of all, thank you all for your efforts in identifying and collecting accurate and timely data. We recognize the critical role you play in capturing the data that is used to conduct cancer research, to answer community concerns and questions, and to help medical professionals improve cancer prevention and treatment programs. We hope you are able to take some time to celebrate your successes with your colleagues, friends and family this week.

Speaking of success, Dr. Rosemary Cress, who was recently appointed CRGC's SEER PI (see article by Public Health Institute's Vice President, Matthew Marsom) has additional reasons to celebrate. An article in which she was lead author was selected for a prestigious award by the Obstetrics and Gynecology Journal.

Danielle Rodriguez, our epidemiologist for Regions 2, 3, and 6, updates us on a presentation she and her colleagues are drafting to help those of us who can't remember what the different statistical terms used in manuscripts and scientific journals mean.
Winny Roshala, Director of Data Quality Control, shares information from a recent SEER Manager's and Principal Investigator's Meeting held last month in Albuquerque, New Mexico. Find out how CRGC did in meeting the SEER Data Quality Profiles on our most recent data submission in her article, "SEER Data Quality Profile Award for CRGC".
We hope you enjoy these articles and the special week of celebration in YOUR honor. And as always, thank you for all of your hard work - you truly are the heart of the registry! 

CRGC's SEER Principal Investigator Announced
Mathew Marsom, VP, Public Health Institute

It is my pleasure to share the news that Dr. Rosemary Cress has been selected to serve as the Principal Investigator of PHI's SEER contract for the Cancer Registry of Greater California (CRGC).  
As you may already know, Rosemary had served as Acting PI of the SEER contract following the retirement of Dr. Dee West in 2015. Rosemary has conducted cancer epidemiology research with the cancer registry at PHI for nearly 21 years and is well qualified for this role.  Rosemary will be 80% time in her role as SEER PI and will continue in a 20% position as associate professor of epidemiology in the UC Davis Dept. of Public Health Sciences where she works with students, faculty and clinicians interested in using cancer registry data for research. Please join me in congratulating Rosemary.
I am really excited that with Rosemary's selection, along with Marta Induni's continued role as Principal Investigator for the California Department of Public Health award for CRGC and Senior Director of CRGC Operations, we have a strong leadership team in place as we continue our vital work in support of cancer research and epidemiology.  

As we are all aware, the Cancer Registry of Greater California collects very valuable data that will be utilized for cancer research to improve health outcomes and reduce cancer morbidity and mortality. Part of my job is to analyze these data based on various research questions and develop manuscripts that become important contributions to literature. Ultimately, I want everyone to be able to read these manuscripts and feel the satisfaction that their work has helped contribute to these valuable findings.  However, I have learned overtime that the work the research department produces is not necessarily shared to all staff and registrars throughout the state. Also, individuals may feel they do not understand the statistical terms well enough to fully grasp the importance of the paper. To address these concerns, research staff from the three Public Health Institute programs at my office, Survey Research Group, Center for Wellness and Nutrition, and the Cancer Registry of Greater California, are in the process of developing a presentation to introduce everyone to common research terms and methods.  As we are still in the development phase, if you have any specific questions that you would like addressed during this presentation, or at any time, please never hesitate to contact me. The plan is to do a live presentation that interested individuals can attend/virtually connect, but also have it recorded and put on the website for all to enjoy. Stay tuned for the date and time of this presentation. My contact information is or 916-779-2673 if you have any questions. Thank you!
SEER Data Quality Profile Award for CRGC
Winny Roshala, BA, CTR
Director, Data Quality Control, CRGC

The SEER Program is viewed as the standard for data quality among cancer registries around the world.

The SEER Data Quality Profile (DQP) is a tool which is generated annually for each SEER registry.  This profile assesses the extent to which each SEER registry provides data meeting certain contractual standards.  For example, the DQP includes the percent of cases for which a specific data item is coded as unknown and compares that result to the desired goal. 

Winning Article by CRGC and UC Davis Staff

The article, "Characteristics of Long Term Survivors of Epithelial Ovarian Cancer" by lead author, Rosemary Cress, was selected as one of the winners of the 2015 Roy M. Pitkin Award by the Obstetrics and Gynecology Journal (the Green Journal). This award was established in 1998 to honor departments of obstetrics and gynecology that promote and demonstrate excellence in research. The other authors are Y.S. Chen, C.R. Morris, M. Petersen and G.S. Leiserowitz.

Dr. Cress described this research project in the October 2015 issue of CHATS.  Click here to see October 2015 article
Region 5 Education Program - May 18, 2016
Rebecca Cassady, RHIA, CTR
Director, DSCSP

DSCSP, Region 5 will host their annual Education Program on May 18, 2016 in the Wong Kerlee Conference Center at Loma Linda University Medical Center.  The meeting will begin at 8:30 a.m. and conclude at 1:00 p.m. with a hosted luncheon.  Our speakers will include Donna Hansen, CTR, Auditor and Training Coordinator, California Cancer Registry and Dan Curran, MS, CTR, Special Projects Manager, C/NET Solutions.  Donna will speak on 2016 Data Changes, TNM Staging and SEER Summary Staging. Dan will provide an overview of the 2016 data changes, code and labels changes, new fields, updated Help files, edits and Collaborative Stage transition in the 2016 Version of CNExT. We want to extend our appreciation to all of our registrars in Region 5 for their continuous efforts to submit timely and accurate data for their facilities! Happy NCRW!
Feather River Hospital, Paradise, Receives CoC Award!

Feather River Hospital in Paradise was the recipient of the Commission on Cancer (CoC) 2015, Outstanding Achievement Award (OAA). Other cancer program recipients from California include:

Contra Costa Regional Medical Center, Martinez (region 1/8)
Washington Hospital Healthcare System, Fremont (region 1/8)
Northridge Hospital Medical Center, Northridge (region 9)

The purpose of the award is to raise the bar on quality cancer care, with the ultimate goal of increasing awareness about high-quality, patient-centered care. 
These programs received the OAA as a result of surveys performed in 2015, and according to the COC represent approximately 12 percent of cancer programs surveyed during this period. New programs undergoing initial survey and National Cancer Institute-designated programs are not eligible to earn the OAA. 
Shout Outs to CRGC Cancer Registrars!

"Thank you to all the CRGC registrars for your continued dedication and hard work! Not only are you "The Heart of Improving Cancer Care" you are the heart of everything that makes the CRGC successful."
Katheryne Vance, CTR Compliance Officer, CRGC

"We congratulate, honor and sincerely thank all CRGC registrars for their professionalism, dedication and diligence in continuing to produce data of the highest quality!"
The CRGC Data Quality Unit   

"I would like to express my profound thanks to all the registrars whose high quality data collection make CRGC one of the best registries in the world. Without your efforts we could not carry out the research to better understand cancer causes, treatment and survival." 
Rosemary Cress, DrPH, CRGC SEER PI

"National Cancer Registrars Week gives us all an opportunity to thank the talented and committed staff that work so diligently all year to collect and document critical cancer data. Each registrar plays an important role in capturing key data needed to provide incidence and prevalence of the disease in the population. Moreover, no population-based cancer research would be possible without the careful technical work registrars provide. There is no doubt that meaningful improvements have been made in cancer prevention, control, and treatment because of the work you all perform.  A very heartfelt "thank you" to an incredible team of individuals who are improving the health of future generations."
Marta Induni, PhD, Senior Director of Operations, CRGC

"Happy National Cancer Registrars Week!!  Each year we take this time to honor the profession we call our "career."  It is not an easy career, nor does it result in many accolades or praise; however, this particular week it does.  Cancer Registrars are one of the most passionate group I have encountered and we all have a story of how we reached this point in our career. There are many routes into this field and each usually has an ending that is rewarding.  This week, as you celebrate this week set aside to celebrate the work we do, share your story. I am sure it is one of passion, tenacity, and  exhaustion (from trying to get your cancer committee to listen to you).  
This year's theme is "Cancer Registrars: The Heart of Improving Cancer Care."  You work diligently every day of the year to make a difference in the treatment and life of the cancer patient.  Therefore, I want to thank each and every one of you for the work you do.  It may not be glamorous, but it is certainly important and critical work that many people around the world depend on, whether they know it or not.  Take this time to celebrate, and know that you are very much appreciated!  Thank you for all that you do and Happy National Cancer Registrars Week!!"
Kyle L. Ziegler, CTR,  Director of Data Management and Informatics, CRGC
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