Clearity Newsletter
June 2013

Check Out Clearity's 2012 Annual Report on Your iPad


In 2012, The Clearity Foundation fulfilled its goals to help more women with ovarian cancer make better-informed treatment decisions. 


In the fourth year since our inception, we also continued to educate patients and clinicians about personalized medicine, contribute to the science that supports more individualized treatment for ovarian cancer and foster public dialog to advance a more individualized approach to treating all cancers.


Click here to access the 2012 annual report and share with others.


Clearity's Second Annual Someone Lived Event Honors Dr. Beth Karlan and Julie & John Crawford 


Clearity supporters gathered at the home of Clearity board member, Rachel Leheny and her husband, Ed Scheibler on June 14 to celebrate survival, hope and progress in changing the odds for women with ovarian cancer. This year's honorees were: 


  • Laura Shawver, PhD, Founder, The Clearity Foundation
  • Julie Crawford, Surviving Ovarian Cancer
  • John Crawford, Husband, Steadfast Caregiver and Co-Chair Clearity Board
  • Beth Karlan, MD, Chair, Clearity Scientific Advisory Board; President Obama Appointee, National Cancer Advisory Board Women's Cancer Program; Director at the Samuel Oschin Comprehensive Cancer Institute, Cedars-Sinai

Photos of the event are available online in press coverage from The Rancho Santa Fe

Review and La Jolla Village News and at Luci Dumas Fine Photography, who provided

pro bono photography for the event. Click here to read the Rancho Santa Fe Review article. The La Jolla Village News article is available by clicking here. Visit and click on Luci's blog to enjoy photos from the 2013 Someone Lived event. 


SLClearity board member, Linda Holland, chaired the host committee (pictured below) whose members include Wendy Buchi, Julie Corpora, Jennifer Jarrett, Rachel Leheny, Ellen Marks, Melina Pellini, Pat Pio, Ed Scheibler, Hillary Theakston and Robin Toft.


Read and Share Our Most Recent Survivor Newsletter on Clinical Trials


Clearity's mission is to improve survival for women battling ovarian cancer by helping patients and their physicians make more informed treatment decisions based on their tumor's molecular profile. Our standard profile can be used to inform decisions about chemotherapy drugs as well as drugs that are in clinical trials.

By expanding this profile to include the sequencing of 236 genes, additional clinical trial drug matches can be identified. Through our conversations with patients, we discovered that there are questions, concerns, and even some misunderstanding about clinical trials. We have created a series of newsletter articles that we hope will take some of the mystery out of the clinical trials process so that patients can take full advantage of the opportunities that they provide. Our first newsletter introduced the clinical trial process and can be viewed here.

PNIn this newsletter, Drs Bentley and Gallagher discuss some of the major concerns about clinical trial participation and highlight results from a recent phase 1 trial of a novel antibody-cytotoxic drug conjugate that targets CA125 on tumor cells as a way to describe what can be expected in that early stage testing of a new drug. Read more


Featuring Former Roni Zeiger, Former Google Chief Health Strategist 


Join The Clearity Foundation for an interactive discussion with Roni Zeiger, MD, Founder and CEO of Smart Patients and Laura Shawver, PhD, Founder of The Clearity Foundation and CEO of Cleave Biosciences to discuss how empowered patients are changing the healthcare landscape.


Social networking platforms are expanding the opportunity for patients to gather and share information about their illnesses. Empowered patients are not only changing the course of their own treatment, but fundamentally shifting the way new drugs are developed. Join the conversation about how information sharing and empowered patient communities will impact the healthcare system.


Wednesday, July 17, 2013

5:00 - 8:00pm

Goldberg Auditorium at Moores Cancer Center

3855 Health Sciences Drive

La Jolla, CA 92093


$75 registration 

RSVP: Please email

PMORTwitter: #pmsymposium

Clearity Launches Redesigned Website 


Clearity recently redesigned its website with pro bono support from Taylor & Pond and volunteer, Elaine Weidenhammer. The new site features enhanced content for patients and clinicians that is easier to navigate, utilize and share. Take a look and share with others who can benefit. 


Marketing & Online Content Consultant, Elaine Weidenhammer generously contributed her expertise in developing clear and concise communications for online patient communities. 


Taylor & Pond has provided pro bono web support to Clearity since inception, contributing their expertise in web development and design. They are a leading full-service digital agency, specializing in every aspect of cutting-edge web design and development, mobile development, integrated marketing strategy, content marketing, social business/new PR and corporate branding. More at



Save the Date for 

Wheel to Survive San Diego: October 27, 2013

Wheel to Survive San Francisco: November 3, 2013  


Registration is open!


Please join us for Wheel to Survive, a 6-hour indoor cycling event to raise money for The Clearity Foundation. 


Our inaugural events will be hosted by The Sporting Club in San Diego on October 27th, 2013 from 9AM to 3PM and the Pacific Sports Resort Redwood Shores in San Francisco on November 3rd from 12PM to 5PM. We hope more than 200 riders, both beginners and seasoned cyclists, will join us at the event.


Register for Wheel to Survive San Diego

Register for Wheel to Survive San Francisco  


To participate, registration fees are $40 with a minimum fundraising amount of $500 per individual rider. Or, you can form a relay team where each rider has a minimum fundraising requirement of $250. All training rides are free.


To learn more about the event and sponsorship opportunities visit our event page or contact us at