Lupus Foundation of America, Philadelphia Tri-State Chapter


Join Us for the

World Lupus Day Rally!

 

Greetings!

Lupus Awareness Month is in full-swing, and we are gearing up for our World Lupus Day Rally next Tuesday, May 24th in LOVE Park in Philadelphia! Please be sure to read below to find out all the exciting things that will be happening during the Rally! If you cannot join us, click here for ideas of how to stay help rally for lupus awareness from your home or workplace!

We have many educational programs coming up this summer! There are opportunities to join us in the community, or connect via telephone. In this email you will find more information about the SLE Self-Help Course being held from May 31st - June 28th in Willow Grove, PA. If you have any questions, please email Cate or call the Chapter office at 866-517-5070. You can find more information about the upcoming Lupus: Learn from the Experts Teleconference Series by clicking here.

If you are looking for other ways to connect with us this summer, please consider joining us for the 3rd Annual Walk for Lupus Now Delaware or the 17th Annual Lupus Links Golf Tournament. We had an incredible turnout last Sunday at our Walk for Lupus Now South Jersey! Despite the rain, over 550 walkers and volunteers came out to Walk for Lupus Now! We are preparing for the 20th Annual Lupus Loop! Keep an eye out for the kickoff email within the next few weeks!

We are very pleased to announce that all donations made through July 31st will be matched, up to $50,000, by a generous donor through the Amy Jill Sacks Memorial Match Campaign! Now is a great time to renew your membership, make an honorary tribute gift, or to make a donation to celebrate Lupus Awareness Month and to help fuel further programs, services, support and research for lupus!

Donate now online!

We appreciate all of your support during Lupus Awareness Month and throughout the year! If you can't join us at the World Lupus Day Rally, stay connected with the excitement and conversations by joining us on Facebook and Twitter! We will be live tweeting from the Rally, be sure to share pictures of yourself, your family, co-workers and friends wearing purple and butterflies to support lupus!

 

Sincerely,

 

Annette Myarick
CEO
Find us on FacebookFollow us on Twitter 
World Lupus Day Rally

Show your LOVE and Make Some Noise for Lupus

What's Happening at the Rally?

  • Decades Dance Band will be performing all your favorite hits live from 12-2pm
  • LFA staff and volunteers will be distributing literature about lupus
  • "Ask the Doc" booth featuring Steffan Schulz, MD, a rheumatologist from the Perelman Center for Advanced Medicine at the University of Pennsylvania
  • Special guests - including Dana Herbert, winner of TLC's America's Next Great Baker - will be stopping by to make an appearance 
  • Awesome giveaways including purple lupus awareness wristbands and photo frame magnets - limited quantity, so make sure you get there by 12pm!
  • You can pick-up your pre-ordered "Band Together for Lupus" t shirts!
  • Get your picture taken in front of the purple fountain in LOVE Park!
  • Help make some noise and rally for lupus awareness!    

Remember: If you cannot join us for the Rally, you can still stay connected! Post pictures of you wearing purple on our

Facebook and Twitter pages! Click here for other ideas of how to stay connected with us from home!

 

Tuesday, May 24th
LOVE Park/ JFK Plaza
15th and JFK Boulevard
Philadelphia, PA
12:00-2:00pm

Dress Code: PURPLE!

SLESH Course

Systemic Lupus Erythematosus Self Help Course 

 

The SLE Self Help Course is a five week program designed to teach people with lupus how to take a more active part in their health care and live better with this chronic disease.

Topics include: basic medical information about lupus, medications and treatments, exercise, doctor-patient communication, fatigue management, and relaxation and stress management techniques.

 

The SLESH Course will be held every Tuesday from May 31st through June 28th. Every week the class will be held from 5:30-7:30pm, and dinner will be provided. The course will be held in the Community Center on the 2nd Floor of the Super Giant Grocery Store in Willow Grove, PA.  

 

You will be contacted upon receipt of your online registration to follow-up and confirm your registration.

 

Register Online Now!  

 
Voices of America

Let's be the first region to go Dark Purple! 

Click to Add Your Voice Today!

 

The LFA has started a campaign to showcase the many voices of lupus across America. Add your voice today at www.lupusvoices.org to help deepen the shade of purple in your state. Let's show the country how dedicated the Philadelphia Tri-State region - Delaware, South Jersey, and Pennsylvania - is to raising awareness for lupus! Add your voice today, and let's be the first region to show up dark purple on the map!

 

Add your story to the Voices of Lupus Map!