This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
FOP Research at the University of Michigan
Find out more about the FOP research and studies being conducted at the University of Michigan as shared by Board Member Gary McGuire and Dr. Ben Levi.
The IFOPA Welcomes Shelly Oliver
We are pleased to announce the hiring of Shelly Oliver in a new role for the IFOPA
- Donor Relations and Administrative Coordinator.
The Registry is now available in six languages, including French. It's important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.
Share Your Favorite Summer Play and Recreation Products on the IFOPA's Pinterest Page
How are you keeping summer fun safe this year? Please share your best summer play and recreation items for the playground, pool, travel...and wherever your summer takes you!