Countdown to Lupus Awareness Month...  
How are you raising awareness for lupus? 
In This Issue
Beginner's Guide to Lupus
Research

Quick Links

  

Join Us!

Making a Difference Starts with One Step 

  2nd Annual Walk for Lupus Now 


 

Sunday, May 15, 2011

Ocean City Music Pier

Ocean City, NJ

 

 

Sunday, June 5, 2011

Hare Pavilion

Wilmington Riverfront

Wilmington, DE  

 

 

Stay in Touch 

Join Our Mailing List

Find us on Facebook

Follow us on Twitter

Support Groups 

Living Well with Lupus Chat - A Telephonic Support Group

Thurs., April 14th

7:30-8:30pm

 

Riddle Hospital

Media, PA

Sat., May 7th

10:30am-12:30pm

 

Lancaster General  

Lancaster, PA

Sun., April 17th

4:30pm-6:00pm

 

Abington Memorial Hospital

Abington, PA

Wed., April 13th

7:00pm-9:00pm

 

Bala Cynwyd Library

Bala Cynwyd, PA

Sat., April 9th

12:00-2:00pm

 

St. Eleanor's Church

Collegeville, PA

Wed., April 13th

Wed., April 27th

7:00pm-8:30pm

Save the Date  

Zumba Dance Party

A community-organized event to benefit the LFA, Philadelphia Tri-State Chapter

Fri., April 15th

Jenkintown, PA 

View the event flier for contact information 

 

Cardiopulmonary Issues and Lupus

Learn from the Experts

Joseph Shanahan, MD 

Tues., April 19th

 

 Lupus and the Skin 

Learn from the Experts

Victoria Werth, MD 

Thurs., June 30th 

 

17th Annual Lupus Links Golf Tournament

Monday, July 18th

Green Valley Country Club

Lafayette Hill, PA

 

9th Annual Bridge Tournament for Lupus

Monday, September 26th

Green Valley Country Club

Lafayette Hill, PA

 

20th Annual Lupus Loop

Sunday, October 30th

Fairmount Park

Philadelphia, PA 

Contact Us 

View our Staff and
Board of Directors List

Looking for information? Have a question or concern? Want to share your story?

Use our Contact Us form to get in touch.
APRIL 2011
Greetings!

Greetings!  The countdown to Lupus Awareness Month is on!  We will continue to build on our theme, Band Together for Lupus. Are you in the band? We hope you'll join us and Band Together for Lupus™ to raise awareness and educate others about lupus this May during Lupus Awareness Month. It's estimated that 80 percent of the public know little or nothing about lupus. Together, we can change that, but we can't do it without you. Think of the impact we could make if everyone with a connection to lupus informed 10 people about the disease!
  
Some ideas to consider:
  • Wear your LFA purple wristband and encourage others to show their support;
  • Sign up for the Walk for Lupus Now events coming up in Ocean City, NJ or Wilmington, DE;
  • Place lupus awareness posters or literature in your community;
  • Promote lupus awareness on your social media tools such as Facebook, Twitter, Linkedln, etc.;
  • Organize a Denim Day or other activity to promote  lupus awareness at your workplace, school or community group;
  • Participate in one of our upcoming educational programs, community events or join us for our Annual World Lupus Day Rally on May 24th in Love Park at 15th and JFK Boulevard in Philadelphia.  Don't forget to wear your purple!

Thank you for all that you do to support the LFA and raise awareness about lupus! You help us to advance our mission of providing support, services, and hope to all people affected by lupus!

  
Warmest regards and wishing you good health,
  
-Annette  
Annette Myarick
CEO, Lupus Foundation of America
Philadelphia Tri-State Chapter

 

 

 

 

Upcoming Volunteer Opportunities


Walk for Lupus Now South Jersey
Sunday, May 15, 2011
Ocean City, NJ

World Lupus Day Rally
Tuesday, May 24, 2011
11:00am - 2:00pm
LOVE Park, 15th and JFK Blvd.

Philadelphia, PA
 

Walk for Lupus Now Delaware 

Sunday, June 5, 2011

Wilmington, DE

 

Ongoing Volunteer Opportunities: 

Health Fairs throughout Southeastern Pennsylvania, Delaware, and Southern New Jersey 

The Beginner's Guide to Lupus

 

If you are newly diagnosed, have never been to a lupus program before, or are wondering "Could I have lupus?", this is the program for you!

The Beginner's Guide to Lupus
Presenter: James Udell, MD
Thursday, April 28, 2011
7:00-8:00pm
Newtown, PA


The Beginner's Guide to Lupus Presenter: Rashmi Khandilkar, MD
Wednesday, May 4, 2011
5:30 - 6:30 pm

Newark, DE 

 

Click here to register online!

Bringing Down the Barriers 

LFA's National Research Program

It is clear that we know more about lupus than we did 10 years ago. Advances in lupus research have provided us with a better understanding of the possible underlying causes of the disease and its progression, and have provided unprecedented opportunities to expand greatly our knowledge base on lupus.

Doors are opening to new approaches for improved treatment and care. We are in a position to answer many of the questions about lupus that scientists have been asking for decades. With new scientific findings, additional pathways have been identified for further study. However, without an expansion of public and private support for medical research on lupus, many of these opportunities will be lost and further progress delayed.

Read more about the LFA's National Research Program, Bringing Down the Barriers™