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December 2014

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Serving Indiana

Question

 

How can I manage being a caregiver from a distance? 
 


Morgan McGill to Head Up Lupus Foundation of America, Indiana Chapter  


The Lupus Foundation of America, Indiana Chapter (LFA Indiana) is pleased to announce that Morgan McGill, J.D., has been hired as its new CEO.

In that role, McGill will lead the Indiana Chapter in fundraising and awareness efforts as well as outreach to lupus patients and caregivers. McGill replaces Jan Ferris who will retire at the end of this year.

Prior to joining LFA Indiana, McGill served as operations manager/employee health management for American Health Network. She has extensive experience in the healthcare industry serving as the director of the Office of Women's Health as well as the Chronic Disease Prevention and Control Division for the Indiana State Department of Health. She graduated from the Indiana University School of Law - Indianapolis with a focus on healthcare law and received her bachelor's degree from Barnard; she graduated from the prestigious Sidwell Friends School in Washington, D.C.  

"I'm thrilled to be taking this position that brings all of my interests and passions together," says McGill. "Jan Ferris has done a wonderful job leading this organization, and I'm honored to be chosen to continue that work."

The Lupus Foundation of America estimates that 1.5 million Americans have a form of lupus. Although lupus can strike men and women of all ages, 90 percent of individuals diagnosed with the disease are women. Most people develop lupus between the ages of 15 and 44. The Foundation reports that the average annual direct health care cost of patients with lupus was $12,643 according to a 2008 study. Two out of three lupus patients reported a complete or partial loss of their income because they no longer are unable to work full time due to complications of lupus.


Congratulations, Award Winners!
2014 Phyllis Simko Volunteer of the Year
and the Lupus Hall of Fame Awards

On November 15, we gathered for a special luncheon to announce the Phyllis Simko Volunteer of the Year and our Foundation's 2014 Lupus Hall of Fame. 

Stacy Weller was awarded the 2014 Phyllis Simko Volunteer of the Year Award. Stacy Weller is the leader of Krazy Horse Krew of Kokomo.  A small group of motorcycle enthusiasts consisting of family and friends. After a successful first year with 63 bikes participating, "Rockin' Purple for Lupus" has become an annual event, generating over $7,000 for the Lupus Foundation of America in 2014 and pulling in riders and sponsors from all over the state. Thank you Stacy and the Krazy Horse Krew!!! 

  

 

The LFA, Indiana Chapter, Board recognizes Nick Ferris as an outstanding volunteer who has tirelessly given of his time and talents over the last 4 years. He has logged more volunteer hours than anyone in the last 4 years. Nick Ferris was awarded the Lupus Hall of Fame award for his exceptional commitment to the LFA, Indiana Chapter. Thank you Nick Ferris!

 

The LFA,Indiana Chapter sincerely thanks all of our Volunteers who give of their time and talents to support lupus patients all across Indiana. Thank you!!!


 


 


 

Thanks to those who "gave" on #GivingTuesday and a special thanks to those who shared their #Unselfies with us. Your donations help us provide programming and support for patients and caregivers as well as going toward research for a cure for lupus. 

Upcoming Events
March 14, 2015


Chili Cook Off

Merrillville High School, Freshman Cafeteria

1-4 PM

Merrillville, Indiana
More details to come.

 


May 16, 2015

 

Walk to End Lupus Now, Crown Point

Lake County Fairgrounds

Crown Point, Indiana

More details to come.







Support Groups
We are happy to offer 15 support groups throughout the state. Lupus support groups provide an opportunity to spend time with others impacted by the disease. Sharing experiences, methods of coping and insights into living with lupus helps members develop coping strategies to reduce the stress that often accompanies living with a chronic illness.  We hope you'll attend a support group meeting soon. Click here to see all Indiana locations and details about each group.
Ask the Experts: Dealing with Holiday Stress


 

"Ask the Experts" is a series of educational talks and presentations on a variety of topics designed to provide you with important information about living with lupus. This month, Cindy Coney, former Lupus Foundation of America Board Chair, who has been living with lupus for several years, answered 15 questions about Dealing with Holiday Stress.

  

Read her answers.

 

In case you missed her talk last month, visit the Ask the Experts page to listen to Cindy's presentation now.

 

 LISTEN TO HER PRESENTATION   

A Family Devoted to Lupus Awareness

When 14-year-old Amarissa was diagnosed with lupus nephritis, her and her family's lives were turned upside down. Amarissa quickly had to start chemotherapy treatments and discontinue her active lifestyle as a gymnast. Read more to learn how Amarissa and her family and helping raise awareness and educate others of lupus. Read More

 

 
Answer: Being a long-distance caregiver to someone who has lupus can result in some special challenges. An important part of effective caregiving depends on keeping information organized and up-to-date, so that you can always be prepared. For example, it is useful and suggested to have access to your loved one's personal, health, financial and legal records.Visit our Get Answers page to learn more.
 

Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260

Copyright � 2014. All Rights Reserved.