FDA Decision to Approve BENLYSTA
for the Treatment of Lupus

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FDA Approves New Drug for Lupus

LFA Applauds
FDA Decision to
Approve Benlysta

We are pleased to share historic news with you!  Today, the U.S. Food and Drug Administration (FDA) announced their decision to approve BENLYSTAŽ for the treatment of lupus.  BENLYSTA is the first treatment approved for lupus in more than 52 years, and is the first drug ever approved that was specifically developed to treat the disease. It signals a new era of improved treatment for the disease, and offers hope for a better quality of life for the over 40,000 people in the Philadelphia Tri-State Region and an estimated 1.5 million Americans living with lupus. 

Visit our website to learn more about what this historic announcement means for the future of lupus research.  You can also call us at 215-517-5070 for answers to your questions, information about upcoming programs and services and available resources.

Thank you for your continued support!

Wishing you good health,

-Annette

Annette Myarick, CEO

 

 Lupus Research Update


Blood Test for Antibodies That Might be Associated with Risk for Lupus Brain Inflammation

A protein in the brain called NR2A is part of a system that is important for learning and memory. Lupus patients can make antibodies to NR2A and some, but not all, studies have suggested that there might be a relationship between these antibodies and lupus brain inflammation (also known as neuropsychiatric lupus or NPSLE). Read more >> 

Read more >>

Are MicroRNAs Novel Biomarkers for Lupus Nephritis?

 Specific microRNAs have been identified in lupus patients and in some patients who have kidney involvement (lupus nephritis). In this study, the researchers hoped to learn whether people with lupus kidney involvement from different races shared the same set of microRNAs. 

Read more >>

New Blood Tests May Improve the Tracking of Lupus Kidney Disease in Children

Current treatments for lupus nephritis in children are toxic and sometimes ineffective. New tests for proteins that might be abnormal in lupus nephritis could help make the diagnosis earlier (when treatments have a better chance to work more quickly) and might also point to new ways of treating the disease (possibly with fewer side effects).   

Read more >> 

  

Support LFA's National Advocacy Efforts

Last week, more than 50 lupus advocates from the Philadelphia Tri-State Region and more than 200 total advocates from across the country banded together on Capitol Hill to make their voices heard during the Lupus Foundation of America's 2011 Advocacy Day. They met with their Congressional representatives and staff and urged them to support increased federal funding for lupus research, education, and awareness programs. Donate now and support the LFA's advocacy efforts. Help us continue to be the voice of the lupus community.


Lupus and Scleroderma in African Americans:

Overlap and Understanding 


A panel discussion featuring Nora Sandorfi, MD and two individuals living with lupus and/or scleroderma

 

Tuesday, March 29, 2011

12:30pm-2:00pm

Bala Cynwyd Library

2nd Floor Meeting Room

131 Old Lancaster Road

Bala Cynwyd, PA 19004


Register online or call 866-517-5070 for details

About Lupus: Lupus Nephritis


Lupus can affect any almost any part of the body, including the renal system.

Lupus nephritis is the term used when lupus causes inflammation to the nephrons in your kidneys, making them unable to properly remove waste from your blood or control the amount of fluids in your body. Abnormal levels of waste can build up in the blood, and swelling can develop. Left untreated, nephritis can lead to scarring and permanent damage to the kidneys and possibly end-stage renal disease (ESRD).  

 

Lupus nephritis most often develops within the first five years after the symptoms of lupus start, and usually affects people between the ages of 20 and 40. It is estimated that as many as 40 percent of all people with lupus, and as many as two-thirds of all children with lupus, will develop kidney complications that require medical evaluation and treatment. Because there are so few symptoms of kidney disease, significant damage to your kidneys can happen before you are diagnosed with lupus.

 

Symptoms of Lupus Nephritis

  • Sudden and unexplained swelling, especially in the extremities (feet or hands) or the eyes
  • Blood in the urine
  • Elevated blood pressure
  • Foamy appearance in urine
  • Increased urination, especially at night

Nephrologists are the physicians who treat the renal system. The tests they will use to diagnose lupus nephritis are: collection of urine, usually over a 24-hour period; blood tests; and often, a kidney biopsy.  

Read more about the Renal (Kidney) System and Lupus


Lupus Foundation of America, Philadelphia Tri-State Chapter
500 Old York Road, Suite 110
Jenkintown, Pennsylvania 19046