AllergyMoms


August  2011
AllergyMoms Newsletter
3d ten things cover

 10 Things

Children

with Food Allergies

Want You to Know

~ eBook & Teleclass


 


  Go HERE to order
or for more information.

Ebook is available here for immediate download!






Ready for school?   Gina Clowes

 

After a few heavenly years in a small private school (that closed a few months ago), my son will head back to public school this year.  

  

I've gotten to know some of the administrators in this district over the years so it was a different experience meeting with them last week.  We're on the same team--right from the get-go.  

  

My theory is that once one or two parents get through to school administrators about what is at stake when caring for a child with food allergies, they want to avoid mistakes as much as we do.

 

I've also seen that there are things that parents can and should do, (as well as a few that they should never do), to increase the odds of success when trying to get their message across to others.  

 

I've shared an article below to help you prepare for the upcoming school year.  If you need more help,  please check out my column in  Allergic Living Magazine or my ebook Ten Things Children with Food Allergies Want You to Know.

 

Take care,
signature



Gina Clowes

 

P.S. Congrats to Jennifer Hailey Nichols who won a copy of my ebook last week on the AllergyMoms Facebook Page. 

 

Each week, I'll select one FaceBook friend who "Likes" the AllergyMoms Page and give them a free copy of my ebook Ten Things Children with Food Allergies Want You to Know

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One Wrong Bite:  Food Allergy Fatality 

ambulance

Gina Clowes

 

A 15-year-old boy, Jahrell Dillard, died on Wednesday from an allergic reaction after taking one bite of cookie he believed to be safe.   

 

His friends and loved ones created a Facebook group "Prayers and support for the Dillard Family" and sadly added "RIP Jahrell" days later.

 

As you read through the brief history of comments, at first Jahrell's friends and loved ones asked for prayers for him.

 

Then they shared the sad news that Jahrell was on life support.   

 

And finally, " he's gone..."

 

One friend wrote, "I pray this is not real."  

 

Jahrell was at a local Wal-Mart with his mother and two sisters on Tuesday night. He decided to go out to the car to snack on one of the chocolate chip cookies that his aunt had given them earlier that day.

 

According to his father Charles Dillard, as reported through 11alive.com: "Immediately he realized there were nuts in the cookie."

 

Jahrell, who was allergic to peanuts and other foods and had asthma, rinsed out his mouth. He also took an antihistamine, as he had done in the past, but this time, the antihistamine wasn't enough.

 

His mother called 911 and Jahrell was rushed to Walton County Medical Center and later life-flighted to Children's Healthcare of Atlanta. He died the following day.

 

I spoke with Loganville Police Detective David Hunt, and asked what we could do to help.  He said for now "Have faith and pray for the family."

 

Detective Hunt said that Emergency Medical Service (EMS), police and firefighters were sent to Wal-Mart in Loganville, GA all at the same time because in a situation like this, "especially when it involves a child" they want to get someone on the scene as soon as possible. But by the time they got there, it was already too late.

 

I asked Detective Hunt if Jahrell had an EpiPen with him and he said he didn't think so. "Probably not" he said.

 

 The Atlanta Journal-Constitution  reported that Jahrell "normally didn't carry an injection of epinephrine, known by the brand name EpiPen, because he was aware of his allergy and generally cautious."

 

This brings up so many unanswered questions. And many parents want to know: "Why didn't he have an EpiPen?", but let's not use this time to judge anyone.

 

No one can say with absolute certainty what would have happened even if he had been injected immediately with epinephrine, although we assume that the outcome might have been different.

 

I feel like we have all failed at our job when this happens. Somehow we are not getting the message out there: Read labels, and always carry epinephrine because no matter how careful you are, mistakes will happen!  

 

I reached out to my friend Brian Hom on this issue. I have so much respect for Brian, because since losing his son BJ to anaphylaxis, he is a tireless advocate and is  always thinking about how we can do a better job at enlightening others.

 

With another peanut allergic son at home, he feels a sense of urgency to educate others on the dangers of food allergies until we can find a cure.

 

Here is what Brian had to say today:  

 

"The medical community needs to take a more active role.  

My son BJ was prescribed an EpiPen at age two but after the prescription expired and each year during annual exams, the doctors never renewed the prescription. 

 

We went 16 years without an EpiPen!  

 

It will take the teamwork of parents, doctors and the non-profits working together to educate the community at large.  

 

Having an EpiPen is a cheap life insurance. Better safe then sorry.  

 

Unfortunately many people, especially teenagers find it an inconvenience to carry them, especially if they've never had a serious allergic reaction. BJ never had an anaphylactic reaction until the final reaction that claimed his life."

 

He's right of course, and we have our work cut out for us.

 

There is no sign from God or the Universe on the day a tragedy will strike. We have to be vigilant every day. There is no day off from food allergies.

 

So, hug your little ones (or not so little ones) today. Read labels. Carry your EpiPens. Walk for food allergy education and awareness. And send your thought and prayers to the Dillard family.  

 

If you'd like to comment, please join us on the  AllergyMoms Facebook page.

 

Click HERE to sign up to walk, run or donate to the BJ Hom Memorial Walk and 5K.   

 

 

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Back to School with Food Allergies  

School Children

By Gina Clowes

 

If you haven't done so already, you still have some time to discuss your child's food allergies with your teachers and school administrators with the goal to develop a plan to keep your child safe and included at school. With the last days of summer winding down, you'll want to request a meeting right away. The steps below will give you a general overview and help you prepare for your discussion.

 

Plan Ahead.  It will be helpful if you have a letter from your child's allergist explaining the allergies and any accommodations he or she recommends and some schools require this.

 

Using the recommendations from your child's allergist, create a Food Allergy Action Plan (FAAP), or Individual Health Care Plan (IHCP) to document your child's allergies and how your child needs to be treated for allergic reactions. Most parents include a recent photo of their child on this important document.

 

Get it in Writing.  Find out if your state or school district has a food allergy policy, as that would be a great place to start.  If so, you may still need to add other accommodations specific to your child.  If your state or district does not have a written policy, you'll want to work with school administrators to create a detailed plan for your child. (Some allergic children qualify for a Section 504 Plan.)  Together, you can determine how your child will be accommodated with minimal risk of exposure in a variety of situations and locations throughout the school day and through the year.  

 

A key aspect of this plan, from your point-of-view, should be that there will always be an adult trained in recognizing and treating allergic reactions available to assist your child. The plan should also include detailed placement plans for your child's medication(s), emphasizing that they are available quickly in one or more unlocked locations. You should set reminders for yourself to check expirations dates and be sure to replace medications that expire during the school year.

 

Let Them Eat Cake.  There is often much more food at school than most adults realize.  Discuss how your child can be kept safe and included during snack time, lunchtime, birthday celebrations, classroom parties, field trips, assemblies or school wide activities.

 

Birthday celebrations and holiday parties are meant to be special occasions of fun and festivities but they often don't feel that way to someone who cannot share in the goodies and special treats.  My book, "One of the Gang," shows how hard it can be for allergic children when they cannot partake in snacks and treats, and may shed light on this issue for those who don't understand the emotional toll of food allergies.

 

Think Outside the Box.  Some parents like to send in a "safe snack box" for their child in the event that an unsafe treat is being served to the other students.  You can keep safe candies, cookies and a few safe juice boxes there for these occasions.  I think if something works well for you, by all means continue.

 

Other parents feel that this lets teachers off the hook for finding ways to include the child with allergies.  You will need to examine your own unique situation, and determine what's right for your child.  

 

Personally, I've never been a fan of the "safe snack box." I call it the "We're-planning-ahead-to-exclude-your-child-box." It's one thing for children to have to bring their own snacks to play dates or parties. School is different. And if teachers and administrators decide to allow classroom celebrations, they should be inclusive. 

 

Seek and Ye Shall Find.  Ask to review classroom supplies, including materials for Art and Science projects and find out if the teacher will be using any type of food rewards. Especially in Kindergarten and early elementary school, there seems to be an abundance of crafts

involving beans, pasta noodles, and cereals.  Also, check pet foods as many contain nuts, seeds or other allergens.

 

Teach Your Children Well.  Even pre-schoolers and kindergarteners can be taught ways to keep themselves safe. Let them know to eat only foods approved by you (or teacher if appropriate) and not to share or trade food with others. Remind your child to report symptoms of a reaction immediately.

  

Most Likely to Succeed.  Saying good-bye to our precious children on the first day of Kindergarten or first grade is hard for all of parents, but when you add in the uncertainty and fear surrounding a diagnosis of food allergies, it can seem overwhelming. As much as we'd all love to, we cannot guarantee our children's safety in any situation.  If you've done your homework and have a solid plan in place for your child, you're most likely to succeed in helping your child have a safe and inclusive year at school.    

 

This article was originally written for Health Central and is reprinted here with permission.   

 

 

 

The contents of the AllergyMoms site including newsletters are for informational purposes only and are not a substitute for professional medical advice, diagnosis, or treatment. For medical advice, please contact your physician or other qualified healthcare professional. 

 

The contents of the AllergyMoms site including newsletters are for informational purposes only and not for the purpose of providing legal advice. Contact your attorney for professional legal advice.  

 

The reader accepts sole responsibility for the use of the information contained here.  

 

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