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The Be Project is Beyond Batten Disease Foundation's 24-month campaign to raise $6 million to fund the treatment discovered by BBDF-funded research. We are thrilled to have passed the halfway point and have raised $3.3 million! Join the movement and get involved with the Be Project!
WATCH THE VIDEO
.
As we approach this season of gratitude, we want to share how much we appreciate you and all the many ways you support our efforts. Happy Thanksgiving and warm wishes for a wonderful holiday!
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November 28
On #GivingTuesday, Facebook and the Bill & Melinda Gates Foundation will be matching up to $2 million of funds raised for US nonprofits through Facebook's charitable giving tools. The match will begin November, 28th at 8AM EST. And, Facebook is waiving all fees for donations to nonprofits on #GivingTuesday.
BBDF's Facebook page is ready for fundraisers! For each fundraiser, we have the opportunity to have donations matched up to $1,000, with
a total possible match for BBDF of $50,000
on November 28th! Go to our
Facebook page
and click on "Fundraisers" in the left panel. It's very easy! Set it up now and then promote it on the 28th! Please
email us
if you would like to do this, but need help setting up your fundraiser.
Thanks to Briana Fernandez, Jo Klein, Jessica Curran O'Toole, Ashley Jenn, Jaquelyn Hedrick, Margaret Hooder, and Tiffany Cornett for their recent Facebook Fundraisers!
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With nearly 900 guests in attendance, the Will Herndon Fund's 9th Annual Hope Under the Stars was an amazing event! It included an auction, dinner, dancing and a performance by the awesome kids' drumming group
Let Them Drum
.
The event grossed a whopping $611,082!
Thanks to the chairs: Angela Banzhaf, Amy Young and the volunteers for a fabulous night of HOPE.
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The 3rd Annual Family Night at Schlitterbahn brought together family supporters splashin' for a passion and netted $83,452 for research! View pictures of the event
here
.
Thank you to all who participated and sponsored, especially
Retail Me Not
. Special thanks to our co-chairs, Clary Auler and Laurel Hooper, as well as Kristin Cowden who spearheaded the silent auction.
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A Cure in the Nick of Time
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The 3rd Annual A Cure in the Nick of Time organized by Jessica Curran and her family was held in September in Duxbury, Massachusetts! The event raised over $31,000 for research. We are especially grateful to the family of Nicholas Bateman and their community for supporting this event. View pictures of the event
here
.
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Youth Leadership Committee
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You've probably noticed the bees are out again this year in Austin! The YLC has been hard at work on the BUZZ campaign where they place bee signs in the yards of unsuspecting residents who are then encouraged to make a donation to have them removed. They have raised $4200 and will be buzzing through November. If you'd like to make a contribution to their effort, you can do so
here
.
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Sophie Sutton, Caroline Foucher, and Mary B. Wade hosted a lemonade stand this month and APD Officer Roger Aguilar stopped and made a donation! They raised a total of $71.90!
We are thankful to all the generous people who host bake sales and lemonade stands to raise money for research!
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You can
BE THE CHANGE
this holiday season by making a donation
in honor of friends and family. Print your own cards and BBDF can supply
inserts
recognizing the donation or mail one of
these special pieces
of art created by Batten affected kids and family members.
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Garland Benson is working hard to raise $1 million to go toward the treatment for his sister and others affected by Batten disease. His plan is to get 100,000 people to donate $10 each. To date, his Be A Hero campaign has raised over $166,000! If you're a Facebook user, you can watch his interview with Experience Pros
here
.
You can help by sharing his efforts on Facebook, Instagram, Twitter and YouTube!
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