NEW LFA IN logo_stacked_smallweb   

DECEMBER 2013 

 

NEWSLETTER

Serving INDIANA

 
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 How can I help the Lupus Foundation this holiday season?
Find out the answer below!

 

 

 

    Upcoming              Events



 SAVE THE DATES!


We just got finished with one Walk, and we're off to another! 

 

Please save the dates for next year:

 

Crown Point Walk to End Lupus Now

May 17, 2014

 Register now. 

 

Indianapolis Walk to End Lupus Now

September 27, 2014

 

Registration pages for Indianapolis will be coming soon, so stay tuned!

 

QUICK GIFT IDEA for Team Captains and Walk Participants...

This year, ask your friends and family to donate to your Walk team!

 

 

Wanted: Leaders!

 

LFA Indiana is in search of committee chairs for our 2014 Walks. Please contact LFA of Indiana CEO Jan Ferris  at jan@lupusindiana.org.

 

Do you live in the Evansville area? 

We are currently looking for a co-facilitator for our Evansville support group. If you are interested and want to learn more, please contact Debbie Campbell at debbie@lupusindiana.org.

 

 I just wanted to take this opportunity to thank each and every one of you for making 2013 an outstanding and memorable year.

 

Thanks to the generosity of our donors and the hard work of our volunteers, we have been able to increase our services to lupus patients in Indiana as well as make significant strides toward a cure with our fundraising efforts. 

 

As we serve more patients and create more awareness across the state:

 

* We have the largest number of active volunteers in our history.

 

* This past year, our foundation exhibited at 20 different community health fairs in several parts of the state, reaching thousands of people telling them about lupus.

 

* In 2013, we grew from two support groups to record number of 11 groups.

 

* In 2013, we executed five successful fundraisers starting last March with the Merrillville Chili Cook-off, then the Northwest Walk in Crown Point in May, followed in June by A Tasteful Affair wine and food event in Indianapolis. Then two more very successful events in the fall: The Golf Outing in September and in October, the biggest event of all, the Central Indiana Walk. These five events raised a whopping $177,000.

 

With your continued support, we are making a profound difference in the fight against this cruel disease.

 

Happy, happy holidays and best wishes for a bright and hopeful New Year.

Jan Ferris Signature   




Jan Ferris, LFA of Indiana CEO

 

Congratulations, Award Winners!
2013 Phyllis Simko Volunteer of the Year
and MVP Awards
This year, we were incredibly fortunate to have an unprecedented number of volunteers who helped make it our most successful year to date. On December 7, we gathered for a special luncheon to announce the Phyllis Simko Volunteer of the Year and our Foundation's 2013 MVP.

Carla Day has been an exceptional volunteer for our Foundation. For the last 2 1/2 years, she has served the Lupus Foundation in many capacities. She now serves as Food Chairman of the Central Indiana Walk, Volunteer Coordinator for all of the Health Fair events in Indy, and recently became certified as a facilitator for the Eastside "Living With Lupus" support group which will begin in January. 
Because of Carla's 'can-do' attitude and organizational skills, thousands of Hoosiers have received information about lupus. Her unwavering devotion to the Foundation exemplifies her strong moral fiber and character. She is a worthy recipient of this year's Volunteer of the Year award.
 
Melody Benson was awarded the first ever MVP award for her invaluable service to the Lupus Foundation. Melody has been Chair of our biggest fundraiser of the year, the Central Indiana Walk, for the past 3 years. She has also served on our Board of Directors for 3 years and counting. She is truly one of our most valuable team players and we greatly appreciate her generous spirit and warm-hearted service in our Foundation. Many, many thanks to all of our volunteers and congratulations Carla and Melody!  

We were also thrilled to have some of our Support Group Facilitators join us for the luncheon. These valuable volunteers are on the "front lines" with lupus patients and we are so grateful to them for their hard work and diligence.

 

'Tis the (Stressful) Season?
Managing Stress During the Holidays
As all lupus patients know, high stress levels and fatigue can negatively affect your health, and are usually the cause of lupus flares. Good self-care is essential for managing lupus, especially during the hustle and bustle of the holiday season. This year, instead of overloading your schedule with activities and extra responsibilities, put your health first and try these "take it easy" tips!

Keep your daily schedule as simple as possible.
Try to keep your list of obligations to others at a minimum. Use the support system of family and friends to help you get through the busy days and don't be hesitant to ask for help when you need it. Preparing holiday meals in advance and alternating activities with periods of rest throughout the day can also help simplify and de-stress your day. 

Exercise regularly.
A simple, short walk can reduce stress, clear your head, and improve your mood. If it's too cold outside for a stroll, try some easy indoor exercises. Low-impact exercises, such as tai-chi or yoga, are perfect for lupus patients who want to stay out of the cold.

Use relaxation techniques to clear your mind.
Make time in your day to calm your body and mind. Practicing mediation, yoga, or simply listening to quiet music can help keep you stress-free. Finding a few minutes throughout your day to take quiet, deep breaths will help clear your mind and keep you from becoming overwhelmed. 

Get plenty of rest.
Some lupus patients need up to 12 hours of sleep every night. Establishing and keeping a generous, consistent sleep schedule will help you enjoy your holidays! 

Managing holiday stress can take extra effort for people with lupus. Having the support of family and friends, as well as organizations like the Lupus Foundation, will make the "most wonderful time of the year" much more wonderful. Relax- and have a happy holiday! 

 

Holiday Gift Ideas
Perfect Gifts for Loved Ones with Lupus
Still looking for a thoughtful gift for a loved one whose life is affected by lupus? Whether they are a lupus patient, caregiver, or family member, chances are they can benefit from the helpful books we have found!
*Items with an item # are available at shoplupus.org and the proceeds will go directly to the Lupus Foundation!

After the Diagnosis: Transcending Chronic Illness
by Julian Seifter, M.D.,
and Betsy Seifter, Ph.D. (approved 2011)
In this often-inspiring book, the authors use case studies drawn from Julian's
decades as a practicing physician to explore the process of creative change in
the way we think about chronic illness, and provide strategies for balancing
being sick and being ourselves.
After the Diagnosis speaks not only to the millions of people living with chronic illness, but also to their loved ones and caregivers. Julian Seifter is one of the leading kidney specialists in the country, as well as a professor at Harvard Medical School and chair of the Ethics Committee on Human Research at Brigham and Women's Hospital in Boston. 
(Simon & Schuster, New York, NY; 2010) $25; 243 pp.
 
Coping with Lupus Revised and Updated 4th Edition
by Robert Phillips, Ph.D. (approved 2012)
This is a new edition of one of the most popular books for people newly
diagnosed with lupus. Dr. Robert Phillips, licensed psychologist and director of
New York's Center for Coping, answers a variety of lupus-related questions in
the revised edition of his highly respected guide. Phillips offers provides
insightful and much-needed information on lupus, including coping strategies,
symptoms, treatment, and medications. 
(Avery Publishing Company, Garden City Park, NY, 2012)
Available at the LFA online shop, shoplupus.org;
Paperback, $21.00; 489 pp.
Item # 136813


How Can You NOT Laugh at a Time Like This? Facing Illness with Humor, Creativity, and Grit 

by Carla Ulbrich (approved 2011)

Singer/songwriter turned comedian and author Carla Ulbrich says having a sense of humor is essential to our health. Her book is a collection of short essays with titles like "The Top Ten Annoying Things to Say to Someone Who's Just Been Diagnosed," "My Other Body Is a Porsche," and "A Good Vein Is Hard to Find." Her candid insights, wisecracking commentary, handy lists, and hilarious song lyrics set to popular tunes encourage readers to face illness with courage and humor, and to thrive and celebrate life despite medical complications. 

(Tell Me Press, New Haven, CT; 2011) 

Paperback, 219 pp.; $14.95. 

 

Loopy Lupus Helps Tell Scott's Story 

 (approved 2002; reapproved 2013)

This book, written by Scott and his third-grade class, explains what it's like to live with lupus. The story is told in Scott's voice, for children reading the book, and in the voice of Loopy Lupus, for parents, teachers, and caregivers. (Lupus Foundation of America, 2002). 

Paperback, 34 pp. $8.95. 

Item # 136802-001 

Hardcover Item # 136802-002

 

The Lupus Book: A Guide for Patients and Their Families Fifth Edition 

by Daniel J. Wallace, M.D. (approved 2012)

This revised and expanded edition of the best-selling guide to lupus explains a complicated disease in easy-to-understand terms, and is suitable for motivated patients who want a concise, practical overview of their disease. It also contains new sections relating to disability, economic impact of the disease, biologics and other new drug treatments, clinical measures of disease activity, clinical trial methods, and proactive treatment strategies, while the sections on immunology, immunosuppressive medications, clinical trials, and new treatments have new information. 
(Oxford University Press, 2012). 
Hardcover, 304 pp. $19.95. 
Item # 136812
 

There are many more gift ideas at www.shoplupus.org! All of the proceeds from online sales go to the Lupus Foundation of America. 

 

Support Groups in 2014

 


             For more information on support groups in your area, visit                                    www.lupus.org/indiana/pages/support-groups.

Give the Gift of Hope

The LFA Indiana Chapter is the only organization in Indiana dedicated to improving the quality of life for all people affected by lupus through programs of research, patient education, and advocacy.
  
Today, more than ever, we need your support in meeting the needs of the lupus community. Click here to learn more about joining the fight.


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Help support the Lupus Foundation this holiday season! Whether you purchase gifts from our Online Shop

                make an online  Donation

      or plan to be a Team Captain for one of our 2014 Lupus Walks...

                         YOU can make a DIFFERENCE!

 


  
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