We wish you and your loved ones a happy and healthy Holiday and New Year.

In the spirit of the season we would like to thank you for your generous support. This year, because of generous supporters like you, we have been able to fund world class medical research and assist families living with PCDH19.

If you are still considering making a charitable gift this season, please consider joining us on our mission and choosing the PCDH19 Alliance

2016 Highlights
Biennial PCDH19 Alliance Professional and Family Research Conference.
In Partnership with UCSF and under the Guidance of Dr. Joseph Sullivan, we brought together researchers and families  to present and discuss the latest PCDH19 research. 

Our 2016 Research Grant Recipients
Professor Paul Thomas
Head Discipline of Biochemistry School of Molecular Biomedical Science
University of Adelaide
Dr. Segiu Pasca, Assistant Professor of Psychiatry and Behavioral Sciences
Stanford University
The Color Violet- A Documentary in Partnership with UCSF and Ambry Genetics
The Color Violet 
A Film in Partnership with Ambry Genetics and UCSF
Over two years in the making, we were excited to be a part of the premiere The Color Violet at the American Epilepsy Society Meeting in December. Along with Ambry Genetics and UCSF, we are working on bringing this powerful film about epilepsy and genetics to a screen near you. 

Learn More

The PCDH19 Alliance is dedicated to:

- accelerating leading scientific research to find an effective treatment
- supporting affected families in tangible and intangible ways
- raising public awareness to promote early diagnosis and best care 

Thank you for your support. We could not do this without you.


Julie Walters, Karin Wells-Kilpatrick, Leslie Henkel, Heather Fryman, and Sue Taylor
PCDH19 Alliance Board of Directors