Lupus Foundation of America, Philadelphia Tri-State Chapter

 

 

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Tuesday, March 1, 2011
.Greetings!

Today is the LFA's National Advocacy Day! This morning, a group of 50 advocates from Delaware, New Jersey and Pennsylvania are making the trip to Washington DC to make their voices heard on Capitol Hill!

   

Members of congress are greatly influenced by the personal stories of their constituents. Your participation in the 2011 Advocacy Day can have an important impact on the decisions made by legislators. Our goal is to educate legislators about lupus and its impact on the people affected by the disease. We also want to urge them to allocate more funds for lupus research and education. The more representation we have, the stronger the message we can send to Congress!

Medical research leads to the discovery of new, safer, and more effective treatments for lupus, and ultimately a cure. There have been no new drugs approved by the U.S. Food and Drug Administration to treat lupus in over 52 years. Many current treatments for lupus have toxic side effects that can be almost as harmful as the disease itself. New, safer, and more effective treatments are on the horizon, and we need your voices and your presence now, more than ever!

 

Not traveling to Washington, DC today? Click to see what you can do to have your voice heard on Capitol Hill today

We are sending this quick email update to share our news of Advocacy Day with you, and to provide you with tools to assist our advocacy efforts today!

Please keep an eye out for a second email this month. We will send our usual newsletter with educational articles and research updates along with a full explanation of the FDA's decision on BENLYSTA. BENLYSTA was developed by Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) as an investigational therapy to treat lupus and in November the FDA Arthritis Advisory Committee voted to recommend BENLYSTA for approval. The FDA will make a decision by next Thursday, March 10, 2011.

 

Sincerely,

 


Annette Myarick
Lupus Foundation of America, Philadelphia Tri-State Chapter
HELP US MAKE LFA'S ADVOCACY DAY SOCIAL

Update your facebook status:

 

Join me and urge Congress to support increased funding for lupus research and education programs by becoming an e-Advocate for the Lupus Foundation of America. Visit

http://capwiz.com/lfa  

to get started.

 

Tweet using the #lupusadvocacy hashtag:

 

Today is @lupustristate's #lupusadvocacy day. Urge Congress to support #lupus research & education programs http://capwiz.com/lfa 

 

New to Lupus? Start Here. 
What is lupus? What causes it? What are the forms of lupus?
How is lupus diagnosed? What tests are used?
What are the treatments for lupus? What is the best approach to taking medications?
How can lupus affect my body? What organ systems can it affect?
How can I live well with lupus?
How can I explain lupus to others?

Looking for more information? Contact us and we will mail you printed literature or direct you to other online resources.

If you are newly-diagnosed, or have never been to a lupus educational program before, consider joining us for the Beginner's Guide to Lupus in your community (additional dates and locations coming soon).

Beginner's Guide to Lupus
Presenter: Raymond Adelizzi, DO
Wednesday, March 9, 2011
12:30-1:30pm
Underwood Hospital
Woodbury, NJ
Space is limited, register now

Beginner's Guide to Lupus
Presenter: James Udell, MD
Tentative details:
Thursday, April 28, 2011
7-8pm
Newtown, PA

Contact info@lupustristate.org or 866-517-5070 for more information about upcoming programs in your community.