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Today is the LFA's National Advocacy Day! This morning, a group of 50 advocates from Delaware, New Jersey and Pennsylvania are making the trip to Washington DC to make their voices heard on Capitol Hill!
Members of congress are greatly influenced by the personal stories of their constituents. Your participation in the 2011 Advocacy Day can have an important impact on the decisions made by legislators. Our goal is to educate legislators about lupus and its impact on the people affected by the disease. We also want to urge them to allocate more funds for lupus research and education. The more representation we have, the stronger the message we can send to Congress!
Medical research leads to the discovery of new, safer, and more effective treatments for lupus, and ultimately a cure. There have been no new drugs approved by the U.S. Food and Drug Administration to treat lupus in over 52 years. Many current treatments for lupus have toxic side effects that can be almost as harmful as the disease itself. New, safer, and more effective treatments are on the horizon, and we need your voices and your presence now, more than ever!
Not traveling to Washington, DC today? Click to see what you can do to have your voice heard on Capitol Hill today.
We are sending this quick email update to share our news of Advocacy Day with you, and to provide you with tools to assist our advocacy efforts today!
Please keep an eye out for a second email this month. We will send our usual newsletter with educational articles and research updates along with a full explanation of the FDA's decision on BENLYSTA. BENLYSTA was developed by Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) as an investigational therapy to treat lupus and in November the FDA Arthritis Advisory Committee voted to recommend BENLYSTA for approval. The FDA will make a decision by next Thursday, March 10, 2011.
Lupus Foundation of America, Philadelphia Tri-State Chapter
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Update your facebook status:
Join me and urge Congress to support increased funding for lupus research and education programs by becoming an e-Advocate for the Lupus Foundation of America. Visit
to get started.
Tweet using the #lupusadvocacy hashtag:
Today is @lupustristate's #lupusadvocacy day. Urge Congress to support #lupus research & education programs http://capwiz.com/lfa
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Looking for more information? Contact us and we will mail you printed literature or direct you to other online resources.
If you are newly-diagnosed, or have never been to a lupus educational program before, consider joining us for the Beginner's Guide to Lupus in your community (additional dates and locations coming soon).
Beginner's Guide to Lupus
Presenter: Raymond Adelizzi, DO
Wednesday, March 9, 2011
Space is limited, register now
Beginner's Guide to Lupus
Presenter: James Udell, MD
Thursday, April 28, 2011
Contact firstname.lastname@example.org or 866-517-5070 for more information about upcoming programs in your community.