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January 2016
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Serving Indiana
Question
 
 
Have you set your goals for the New Year? We have some ideas for you!
Scroll down for the answer.  
Snowflakes 

Dear Friend,
 
Happy New Year's to you and yours!  We hope that you have resolved to continue to engage with Chapter staff and volunteers and make use of the great resources we work so hard to provide.
 It is a wonderful time of year to reflect on the many blessings we all possess and the many successes we experienced in 2015.  Please celebrate the following achievements that were made possible in 2015 because of your continued support:
  • $6 million for the National Lupus Patient Registry program at the Centers for Disease Control and Prevention (CDC), the largest appropriation in its history and a Foundation priority since 2003.
  • $32 billion for the National Institutes of Health (NIH), which is a $2 billion increase and the largest increase in more than a decade to the federal agency that funds the majority of lupus research.
  • $278.7 million for the Department of Defense's (DoD) Peer-Reviewed Medical Research Program (PRMRP), which provides funding to researchers studying specific diseases, including lupus.
  • $2 million for the Office of Minority Health lupus program with a new focus, thanks to Foundation led advocacy efforts, on developing and implementing a clinical trial education action plan for lupus.
We are grateful for all of you: for participating in a Walk, for attending a support group or seminar, for volunteering at an event or even helping out for an hour in our office!  If you hosted a fundraising event or in any way helped educate someone about lupus last year - you have been an integral part of our success.  2016 will bring the LFA-Indiana Chapter a new Strategic Plan, new board members, and new collaborations with community partners.  Our efforts are guided by your dedication - thank you for your commitment to those affected by lupus in Indiana.
  
Already this year the triumphs continue:  The National Institutes of Health's National Institute of Arthritis and Musculoskeletal Skin Diseases (NIAMS) has recently announced a new Action Plan for Lupus Research. Continue reading below to learn more about how this plan will increase the scientific understanding of lupus.
Once again, for those who donated as part of our Annual Campaign, thank you so much for your support!
Thank you for your continued involvement.

   
Morgan E. McGill
CEO
morgan@lupusindiana.org

 

    National Institutes of Health Releases Plan to Expedite Lupus Treatments and Cures

Today, the Lupus Foundation of America (Foundation) applauds the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health (NIH) for  releasing a new report, the  Action Plan for Lupus Research . The research plan identifies and examines opportunities to increase scientific understanding of lupus, which will ultimately lead to safer and more effective treatments and, eventually, curative strategies. Learn More

Upcoming Events
February 10, 2016
'Living with Lupus' Seminar
Hancock Regional Hospital
6 pm
 


 
Walk to End Lupus Now!
May 14th, 2016
Crown Point, Indiana
Lake County Fairgrounds


 

Walk To End Lupus Now!
October 1, 2016
Indianapolis
Historic Military Park at White River State Park


 


Save The Date

Lupus Awareness Month
May 2016

World Lupus Day
May 10, 2016

Put on Purple Day
May 20, 2016

2016 Annual Leadership Meeting, Indy
June 19-21, 2016
 
A Tasteful Affair
June 30, 2016 ~ Park Tudor School

Thanks to all who came out on January 11th to dine for a cause at PUNCH BURGER in Carmel.  Many braved the cold weather to attend this community fundraiser that raised over eighty dollars for our organization's education, research and advocacy efforts! We appreciate your appetite and willingness to donate.


 











Follow us @lfaindiana.
We are 161 followers and growing! Follow us!  

We can't wait to launch our 2016 events beginning in January. Keep an eye on this space for the latest updates and visit walktoendlupusnow.org 



We Want to Hear Your Story!
LFA-Indiana has joined with the Indiana Patient Access Coalition to support a new step therapy bill authored by Senator Michael Crider. Step therapy policies are on the rise by insurance companies and oftentimes fail to take into account a person's medical situation or history. Step therapy requires patients to take other potentially ineffective medications first before insurance pays for a physician's prescribed original prescription - resulting in delay that can sometimes deny quality patient care and the decision making of patients and physicians.
If you or a loved one has experienced this process, please let us know at  info@lupusindiana.org



Grocery Shopping? 

LFA-IN now partners with Kroger in its Community Rewards program. Enroll by linking your Kroger plus card to the Lupus Foundation of America-Indiana Chapter at
 
A Tasteful Affair
Wish To Help with ATA, June 30, 2016?

Have something you personally or your company might be able to donate to our Silent Auction, Live Auction and Wine Pull?  We welcome your support in stocking our auction and raffle packages with some of the most exclusive items! 
  
Here's some ideas of things we are looking for:
  • Vacation Homes
  • Dining Gift Certificates
  • Entertainment and Sporting tickets
  • Airline miles
  • Artwork
  • Personal or Professional Services 
  • Wine, bottles must be 90 points rated or better
To donate an item for the silent auction, live auction or wine pull, contact Office Manager, Susan Perry, at Susan@lupusindiana.org or (317) 225-4400.

Next 'Living with Lupus' Seminar ~ Hancock Regional
 
We will be offering a 'Living with Lupus' seminar at Hancock Regional Hospital, 801 N. State St., Robert Keen Classroom (lower level), Greenfield, IN 46140. The seminar will be held on Wednesday, February 10, 6:00-8:00 pm. More than 90% of people with lupus will experience joint and or muscle pain related to their lupus.  Dr. Steven Neucks (Rheumatologist) will be discussing managing chronic pain associated with lupus and there will be a yoga session led by a certified yoga instructor from Hancock Regional Hospital.   Don't let the word 'yoga' scare you! This will be a seated and chair-supported session that all attendees should be able to participate in, regardless of their level of mobility.
 
To register, visit http://IndianaLFA.kintera.org/2016GreenfieldSeminar or call 800.948.8806 by Monday, February 8.
 
Discover Your Power ~ 2016 Walk Information
 
Registration Opens Soon!
When you take part in one of our 2016 Walk to End Lupus Now events, you experience firsthand the power of the movement to end lupus. Register to walk and unleash your power by raising funds for lupus research and education programs, while increasing awareness and public support in your community.
 
You are important to our success.  In February, our new mobile-friendly registration website will launch.  Please stay tuned!
 
May 14 - Crown Point Walk, noon
Lake County Fairgrounds
 
October 1 - Indianapolis Walk, noon
Historic Military Park at White River State Park
 
March 15 - Crown Point Walk Kick-Off Dinner
Avalon Manor, 6pm
*Attending the Kick Off meeting is a great way to meet other team captains and supporters, pick up Walk materials, learn new ways to personalize your fundraising page, and win door prizes. Hope to see you on the 15th!
 
We Are Pleased to Announce Our New Spring Intern!

Keith D. Thomas
Keith is in his last semester at Anderson University in the Residential MBA program. His undergraduate degree is in History and he played four years of football for the Anderson Ravens. He is quite active in sports leagues in his community and volunteers for a youth basketball league.  His hometown is Chicago, Illinois and he still has family in the area. He is married and lives in Anderson.
Our Chapter is very lucky to have Keith working with us and we look forward to his help this semester!
Keith can be reached at   LFAintern@gmail.com

Support Group Updates
 
The Anderson support group will now meet on the third Wed of the month from 5:30-7:30 pm at the Anderson Public Library, 111 E. 12th St., in the Carnegie Room.
The group also has new co-facilitators, Alisha Ray and Bonnie Sweeney, who are excited to be leading the group.
The support group that previously met in Otterbein will now meet at the Old National Bank, 140 S. Creasy Lane in Lafayette on the second Wed. of the month from 5:30-6:30 pm. 
The Crown Point support group is also being led by two new co-facilitators and best friends, Bridget Collazo and Bekah Alberts.
PLEASE NOTE: The Carmel, East Chicago and Valparaiso support groups are no longer meeting.
We will be announcing details for new support groups in Kokomo and South Bend in the next few weeks!
 
What to expect when you attend our lupus support group meetings...A warm and caring environment where people with lupus, their family members, caregivers, and loved ones spend time with others impacted by this complicated disease. Sharing experiences, methods of coping, and insights into living with lupus helps members develop coping strategies to reduce the stress that often accompanies living with a chronic illness. We hope you'll attend a support group meeting soon.  Click here to see all Indiana locations and details about each group.

New Board Members Join LFA-Indiana
Two new board members will begin their three year term in January 2016.  We are pleased to have approved Terry Cala, formerly of PNC Bank and now an independent financial consultant for private clients, and Jean L  . Guillen, a Multicultural Affairs manager at Ezkenazi Health in Indianapolis. Both gentleman bring community involvement and technical skills to their role.

The LFA-Indiana bylaws allow up to 17 members to serve on the governing board. If you are interested in an application, please contact our office at 317-225-4400 or email to Susan Perry, Office Manager, for more information. Karen Deno serves as Board Chair in 2016.

Volunteering Opportunities with Our Chapter
Our volunteers are an integral part of our mission to combat this cruel disease. We offer volunteer opportunities that empower all kinds of people to share their unique gifts to help make our mission possible.  No matter how you choose to join our team, you'll experience the joy of working among people who are passionate about our cause. We have event-day slots open for our three fundraisers, however, there are also slots available for making telephone calls to past walkers, helping out in our office weekly, or soliciting area business to distribute flyers or request auction items. Learn more about how you can make a difference through volunteering.
  
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Answer
We have all heard the popular "Eat Healthier and Exercise" advice, but few people can keep these top goals.  Let's consider something a bit easier:
1) Improve mental well being by thinking positive and laughing often
2) Improve self - reduce stress, become more independent and organized
3) Spend quality time with family and friends
4) Volunteer to help others
5) Improve social skills
You get the idea!  Good luck and Happy New Year!  You can do it!
If you're shopping online, don't forget that a portion of your purchase will benefit LFA Indiana Chapter when you shop using the links below:

Give Back While You Shop
 
Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260