Welcome to the July 2018 edition of our
LINK E-nnouncement!
We strive to educate, inspire and offer support and hope to patients, caregivers and health care professionals navigating the bone marrow transplant journey.
It is truly our honor.
Our July Guest Blogger:

Meet Greg Rose
Meet this married dad of three who's life was humming along until it wasn't.

Greg, now ten years post transplant, will inspire you with his list of incredible tips post transplant. Learn more about umbilical cord transplant, optimism and much more.


The Meredith Cowden Foundation will host its annual fundraiser on Friday, Aug. 3, 2018, at the Fairlawn Country Club, located at
200 North Wheaton Rd.,
Akron, OH.

This wonderful six course event is $150 per person which includes valet parking. This year's guest speaker is Dr. Navneet Majhail, MS, MD, the Director of the Cleveland Clinic's Blood and Marrow Transplant Program.
This event raises funds to improve the quality of life of leukemia and lymphoma patients by funding the 2019 GVHD National Medical Symposium, which is dedicated to research, information, treatments and finding a cure for Graft Versus Host Disease .



Link Partner Spotlight

Check it out! Each month, we will be spotlighting a Link Partner. Link Partners are centers and allied organizations who support our mission in so many ways. See the bottom of this newsletter for a complete list. This month we thank and showcase The Leukemia & Lymphoma Society. This new monthly feature will provide best practices, tips, special events and much more.

If you are a Link Partner, be sure to email [email protected]
to reserve your spot!

Diagnosed with a Blood Cancer?
The Leukemia & Lymphoma Society Can Help

If you have been diagnosed with a blood cancer, The Leukemia & Lymphoma Society (LLS) can help. We provide information, resources and support to those affected by a blood cancer. Check out these resources below. We are here to answer your questions and support you.

Speak One-on-One with a Specialist
Speaking one-on-one with an Information Specialist can assist you through cancer treatment, financial and social challenges and give accurate, up-to-date disease, treatment and support information. Our Information Specialists are master's level oncology social workers, nurses and health educators. Call 800-955-4572 (9 a.m. to 9 p.m. EST, Monday to Friday) or send an email to: [email protected] .

Learn about Clinical Trials
Patients can work one-on-one with an LLS Clinical Trial Specialist who will personally assist them throughout the entire clinical-trial process. Clinical Trial Specialists are registered nurses with expertise in blood cancers. For more information about this program, please contact an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. EST . 

Schedule a Nutrition Consult
Patients and caregivers may receive free one-on-one phone and email consultations with a registered dietitian with expertise in oncology nutrition. For more information, please visit www.LLS.org/nutrition or contact an Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. EST.

Get Informed
Information in our booklets and fact sheets at  www.LLS.org/booklets is accurate and up-to-date. Learn about your diagnosis, treatment and survivorship issues. Also, take a few minutes to go through Each New Day , a booklet that may help in addressing your initial concerns, including questions to bring to your healthcare provider and specialists. All materials can be downloaded or ordered from our website and are free of charge.
 
Get Connected
The LLS Community is an online social network of blood cancer patients, survivors and caregivers. LLS Community offers support, provides trusted information and resources, and helps users feel connected, so that no one has to face a blood cancer diagnosis alone. Join now at www.LLS.org/community.

Get Matched with a Peer
LLS may be able to match you with a patient or caregiver to speak to over the phone who has been through a similar diagnosis and experience. Visit  www.LLS.org/FirstConnection .

Listen In
Tune in to the LLS podcast,  The Bloodline with LLS  ( www.LLS.org/podcast ) as Lizette Figueroa, Director, Education & Support, and Alicia Patten, Senior Manager, Education Programs, speak with experts and patients to guide listeners in understanding diagnosis, treatment, and resources available to blood cancer patients. Episodes focus on survivorship issues as well as disease-specific topics. To listen to our episodes and subscribe to our email list go to http://www.thebloodline.org/TBL/ .

Find Support Locally
Support groups are the perfect place to talk with other people affected by blood cancers, including patients, family members , and caregivers. The groups provide mutual support and offer the opportunity to discuss anxieties and concerns with others who share the same experiences. This sharing strengthens the family bond and enhances everyone's ability to cope with cancer. Learn more about the support group nearest you and other local services. To find your local chapter, go to http://www.lls.org/chapter-selection-page .

Save the Date!

The nbmtLINK will host a FREE webinar on Wednesday, Sept. 12 at Noon EST.
(More information to follow once our registration page is set up.)

Transplant Treatment Journey: Bone Marrow/Stem Cell Transplant Basics and Clinical Trials

This free webinar will describe the process of bone marrow/stem cell transplant, the steps in preparing for transplant, clinical trial options and coping skills. There will be multiple resources for additional help sure to help patients and caregivers navigate the entire journey. There will be plenty of time for questions as well.

This program was made possible by the generous support of: 
National Marrow Donor Program/Be The Match
The Leukemia and Lymphoma Society
Jazz Pharmaceutical
Gilead Sciences, Inc.
The Karmanos Cancer Center's Blood and Marrow Stem Cell Transplant Program

Questions, contact Peggy Burkhard, [email protected]
 
How We Help Others!
We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.
Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.
We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.
We Invite You to Become A Link Partner!
Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

American Society for Blood & Marrow Transplantation (ASBMT)
Anthem, Inc.
Barbara Ann Karmanos Cancer Center
Be The Match
Blood and Marrow Transplant Program, John Theurer Cancer Center at
Hackensack UMC
Blood Marrow Transplant Program at Northside Hospital
Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University
Center for International Blood and Marrow Transplant Research (CIBMTR)
City of Hope 
Dana-Farber/Brigham and Women's Cancer Center
DKMS (formerly Delete Blood Cancer)
Duke Adult Blood and Marrow Transplant Program
Froedtert Hospital and the Medical College of Wisconsin
Henry Ford Transplant Institute
Incyte Corporation
Memorial Sloan-Kettering Cancer Center
Meredith A. Cowden Foundation
Nebraska Medicine
Oregon Health & Science University Knight Cancer Institute
Roswell Park Cancer Institute
Seattle Cancer Care Alliance
Siteman Cancer Center at Barnes-Jewish Hospital/Washington University School of Medicine 
Spectrum Health Cancer Center
The Leukemia & Lymphoma Society
University Hospitals Seidman Cancer Center
UPMC CancerCenter
Vanderbilt Ingram Cancer Center
Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps. Wishing you a wonderful summer with lots of time to recharge and enjoy life.

Sincerely,

Peggy Burkhard, Executive Director
(248) 358-1886
National Bone Marrow Transplant Link