LIVE Stream of Grand Rounds & 2015 Research!

12/10/14

Dear Friends of PANDAS Network,

This year, we can look back on with pride and excitement. 2014 brought many advances for PANDAS/PANS including the upcoming publication of the JCAP and multiple conferences on PANDAS-PANS in the U.S. and internationally. In 2015, we can expect the completion of the highly anticipated PANDAS/PANS documentary.

Our Wish is that 2015 brings greater CARE for our children. This is our #1 priority and it is still difficult to find.

Below is a list of upcoming RESEARCH that portions of your donations will work to benefit. Our Board of Directors will begin to distribute funds in early 2015. Please also mark your calendars for Dr. Swedo's LIVE Grand Rounds video stream on December 11!

With Warmest Wishes for You and Yours,

The PANDAS Network Team

FREE LIVE VIDEO STREAM OF DR. SWEDO

The University of Arizona Medical Center will be hosting Dr. Susan Swedo of the National Institute of Mental Health at a Special Pediatric Grand Rounds on Thursday, December 11 from 12-1 pm MST. CME credits will be offered to any doctor in Arizona attending or watching the simulcast. The general public will be able to watch the Grand Rounds LIVE via live streaming on the internet!

Additionally, the University will host a second and separate special session with Dr. Swedo for visiting physicians.

CLICK TO LEARN MORE & DIRECTIONS TO VIEW THE LIVE STREAM.

2015 RESEARCH PROJECTS

Gene analysis of 800 PANDAS-PANS children

Gene analysis of 800 PANDAS-PANS children and their families will begin at the University of North Carolina by geneticist Dr. James Crowley. The blood samples will come from physicians who have IRB approvals through medical school settings. PANDAS Network will inform the community if/when additional samples can be added.

Tonsil and Adenoid Analysis

Tonsil and Adenoid Analysis conducted by Drs. Beth Latimer, Neurology and Earl Harley, ENT (Georgetown University) includes a research paper on autoimmune cell findings found in some PANDAS/PANS children's tissues and will soon be published.

Initial Findings of Retrospective Parent Survey

The initial findings of University at Buffalo and University of South Florida Retrospective Parents Survey (700+ responses) will be published. These finding will look at treatment trends, healing rates, family impact and more.

Contributing authors include Drs. Jan Tona (UB), Denise Calaprise-Whitty and Tanya Murphy (USF).

This Retrospective Survey was financially supported by PANDAS Network.

New Addition to the Cunningham Panel™ Expected in 2015
Newly identified antibodies that have crossed the BBB (Blood Brain Barrier) are expected to be incorporated in Moleculera Lab's Cunningham Panel™.

Dr. Dritan Agalliu (UC Irvine)

Dr. Dritan Agalliu (UC Irvine) will be releasing research on the mechanisms of strep in mouse model studies performed in his excellent lab. He conducts neuroscience research that includes multiple sclerosis, the BBB, as well as PANDAS.

PANDAS PHYSICIANS NETWORK

PANDAS Physicians Network has been launched and will be further expanded to allow doctors to meet and discuss new research and treatment protocols for PANDAS/PANS children. Take a look at it and recommend it to your practitioner.

CLICK TO VISIT PANDAS PHYSICIANS NETWORK WEBSITE.

In This Issue

FREE LIVE VIDEO STREAM

2015 RESEARCH PROJECTS

PANDAS PHYSICIANS NETWORK

LAST CALL!
ORDER YOUR JCAP BY 12/19!

The Child Mind Institute of New York and Journal of Child and Adolescent Psychopharmacology have worked to create a single pediatric journal exclusively for PANDAS/PANS.

No proceeds go to Pandas Network.

The cost of the journal ($100) is low now and will go up dramatically after this FINAL OFFER. A small number of parents have ordered this journal and we want to be sure parents understand - purchasing articles one-by-one in the future will quadruple the price of the journal! Please consider ordering one for insurance or treatment purposes!!

PANDAS Network will not be able to fulfill requests after the deadline!

CLICK FOR ORDERING INSTRUCTIONS & TO LEARN MORE.

THE BELIEVE NECKLACE