It's Lupus Awareness Month! Download the calendar of awareness activities.  
Lupus Foundation
Lupus News
May 2016
FROM THE DESK OF THE PRESIDENT
Hope in Lupus Awareness Month and for LFM's 40th Anniversary
If you are an individual living with lupus or have a close family member with lupus, you likely know that May is Lupus Awareness Month. Recently, I had an opportunity to meet 2013 Lupus Ambassador Chris Cronick. If you have met Chris you know that she is a sharp, energetic individual with a passion for telling her story about being diagnosed and living with lupus daily.

Sitting at a Minneapolis restaurant, Chris described to a group of us some of the physical challenges she has endured since first being diagnosed six years ago - rheumatoid arthritis, fevers, hair loss. She said she could talk for hours, if not days, on the emotional, spiritual and financial roller coaster too.

Yet through all the challenges that Chris has faced, she spoke about something much more important to me - hope. Hope that ...
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Tharan Leopold, President
ANNOUNCING:
Emerging Trends Conference
Improving Health and Well-being of Lupus and Other Autoimmune Diseases
Saturday, October 29
8:30 a.m. - 4:00 p.m.
College of Saint Benedict, St. Joseph

Designed for those living with lupus and other autoimmune diseases, healthcare professionals, social service providers, and community members, the conference provides an opportunity to learn about cutting-edge research and treatment aimed at improving health and well-being including, functional medicine and integrative health.

More details, registration and information forthcoming.

Congratulations to LFM's 2016 student summer fellows
The Research Committee and Board of Directors of the Lupus Foundation of Minnesota (LFM) is pleased to announce this year's selection of recipients for the 2016 Student Summer Research Fellowship Program. Funding awarded for summer fellowships in 2016 totals approximately $22,500.

This year, LFM received applications from a diverse array of students representing nine different academic institutions located within Minnesota and across the country. Students selected for these fellowships will be working alongside established researchers at the University of Minnesota and the Mayo Clinic on lupus-related research.

Awardees, their placements and their home institutions include:
University of Minnesota, Division of Rheumatic and Autoimmune Diseases
Dr. Daniel Mueller and Dr. Erik Peterson, Researchers                   
  • Meghan Koop, College of St. Benedict         
  • Stephanie Magill, Augsburg College 
Mayo Clinic, Division of Rheumatology
Dr. Timothy Niewold, Researcher
  • Emily Fellows, University of New England
  • Anoohya Muppirala, Kenyon College
  • Blair Stewig, Augsburg College
At the end of this summer, LFM's student fellows will share summaries of their research at both the University of Minnesota and the Mayo Clinic. The dates for these presentations will be featured on the LFM website calendar.

Megan on a recent training run
26.2: Racing toward a lupus breakthrough
While running Grandma's Marathon, Megan Bertheaume is raising funds for lupus
Lupus impacts many beyond the individual living with the chronic autoimmune disease. It also affects family, friends, caregivers, and coworkers. Although treatment, medications, and a healthy lifestyle can help people with lupus live well with the disease, the battle is sometimes lost.

Megan Bertheaume understands this reality all too well. Her aunt, Gail Thrasher, suffered from lupus. Gail was diagnosed in her 50s and managed her symptoms with the use of medication. Unfortunately, she passed away unexpectedly due to lupus complications last June at the age of 68, just weeks shy of her 69th birthday.

Later that summer, Megan and her family participated in the Lupus Walk for Hope and 5K Run in the Twin Cities. Shortly after the event ...
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Leather Up for Lupus Charity Bike Ride
Detroit Lakes Eagles/Auxiliary raise awareness and funds for LFM
Lupus awareness and fundraising takes to the road next month ... specifically to Detroit Lakes, where the Fraternal Order of Eagles Detroit Lakes Aerie and Ladies Auxiliary #2342 will host a charity ride for lupus. On June 11, motorcycle riders and passengers are invited to join the Eagles for this day-long event, which begins with the ride itself and is followed by a social hour, hog roast dinner, and music.

The inspiration behind this charity ride comes from the two current presidents of the Eagles and Ladies Auxiliary, Sean and Cylinda Scheiben. Sean was diagnosed with lupus about two and a half years ago and didn't realize at the time just how much lupus would affect him on a daily basis. "It was scary and confusing, dealing with flares, remission, brain fog, and how it affected my mind and body was overwhelming at times," said Sean.
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Cylinda and Sean Scheiben

City of Minneapolis proclamation declaring June 3 as Sludgeathon  Day
Light up the night in purple with this year's Sludgethon
Ninth annual on-air marathon fundraiser to be celebrated with proclamation and I-35 W Bridge in purple
In anticipation of Cory Cove's ninth annual Sludgeathon fundraiser next month, Mayor Betsy Hodges has officially proclaimed June 3 as Sludgeathon Day in Minneapolis, and the I-35W Bridge, thanks to MnDOT, will be aglow in lupus purple beginning at dusk that evening.

Cory himself will likely not see the colored bridge that night, as he'll be in the KFAN 100.3 FM studio, in the middle of his annual 24-hour on-air marathon that benefits the Lupus Foundation of Minnesota. Kicking off at noon Friday, the event will once again be accompanied by an online silent auction, opportunities to donate via phone or web, and visits from other iHeartMedia personalities, sports stars, and local celebrities.
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ASK A DOCTOR
Lupus and how it affects mental health
Q: How can living with lupus affect my mental health?
- Keith, Duluth

A: In considering this question, it's important to start by defining mental health, an often misunderstood term. I like the World Health Organization's (2016) definition because it takes a holistic approach: "mental health is defined as a state of well-being in which every individual realizes his or her own potential, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make a contribution to her or his community." It is also helpful to recognize that ...
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Kimberly Jackson
Introducing Kimberly Jackson, LFM's work-study student from Rasmussen College
Kimberly Jackson has joined our staff at the Lupus Foundation of Minnesota (LFM) through a work study role with Rasmussen College. She'll be providing administrative support through June. Taking pride in everything she does, Kimberly is nearing the end of her medical assisting program and has a three-year-old daughter. Originally from Chicago, Kimberly has been in Minnesota for about four years now and enjoys cooking and spending time with her daughter.
LFM accepts IRA charitable rollovers
On December 18, President Obama signed legislation that retroactively extended the charitable IRA rollover for 2015 and made this provision permanent for future years.

For those aged 70½ or older, it is once again possible to make charitable gifts of up to $100,000 directly from traditional and Roth IRA accounts to one or more qualified charities without paying federal income tax on the withdrawal. Stipulations specify:
  • Donors must request a direct transfer of funds from their plan administrators to a qualified public charity. It is important not to withdraw funds before making a gift.
  • Distributions made under this law can be used to satisfy the donor's required minimum distribution.
  • Gifts cannot be used to fund a gift annuity or charitable remainder trust.

To make a gift to the Lupus Foundation of Minnesota (LFM) from an IRA, contact your IRA plan administrator and request a direct qualified charitable distribution from the account to LFM, a 501(c)3 organization, tax ID #41-1946191.

Contact us at 952-746-5151 to inform us of the gift and to let us know how we should direct it.
Other upcoming events
(click the links for more information and registration)
Click to download this image for our own social media use.


Join LFM and friends to raise awareness and funds for lupus during this Lupus Awareness Month. Visit our Facebook and Twitter pages for daily lupus facts and share them to spread awareness. And, in addition to the events below, download the Lupus Awareness Month Activities calendar for ideas and inspiration on ways you can promote lupus awareness all month long.

May 12
In this seminar with Carrie Reynoso, learn the underlying causes of brain fog and different strategies to re-balance the brain, such as diet, the use of supplements, and relaxation techniques.

May 14-15
LFM is proud to be a charity partner of the Midwest Comic Book Association (MCBA) and their annual ComiCon event. All are invited to the Minnesota State Fairgrounds for two days of comic book action.
 
June 8
Join Jennifer Chen, Pharm.D., as she provides information about using medication wisely, including ways to minimize the risk of side effects and increase the effectiveness of commonly used medications related to lupus and other autoimmune diseases.

June 13
Join Brenda Frie at this seminar to learn ways to decrease pain, fatigue, and inflammation from joint pain for people living with lupus and other autoimmune diseases.

Contact Us
Lupus Foundation of Minnesota
The Atrium Suite 135
2626 East 82nd Street
Bloomington, MN 55425

Phone: 952-746-5151
Toll-Free: 1-800-645-1131
Email: info@lupusmn.org
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