Lupus Foundation
Lupus News
November 2016
FROM THE DESK OF THE PRESIDENT
Experiencing the Lupus Walk for Hope & 5K Run
Tharan Leopold, President
Roughly one year ago, I began my role as President of the Lupus Foundation of Minnesota. Since all three Lupus Walk for Hope & 5K Run events had already taken place, I had been patiently waiting for the fall of 2016 to arrive so I could experience each one firsthand.

Each event, with its own uniqueness and energy, almost felt like a family celebration to me. Individuals who maybe hadn't seen each other in months coming together for a common purpose - to champion for a cure for lupus, to support one another, to generate awareness about the disease, and to share stories. 

There were a number of things that amazed me and made me feel honored to be part of this lupus community ...
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Pickup Service Clarification to Constituents
Recently, we have been made aware of attempts by someone other than the Lupus Foundation of Minnesota (LFM) to notify folks about a lupus pickup service. To be clear, LFM stopped our collection of in-kind goods (clothing and household items) in January of 2015.

We are committed to communicating at every opportunity on issues important to you and the people we serve. As a reminder, the Lupus Foundation of Minnesota (LFM) is an independent non-profit, not affiliated with any national organization.

As always, thank you for your dedication to LFM.
 
 
Chef Matt Lepisto
Supporting LFM with a recipe of giving back, connection, and culinary skill
As a culinary student, Matt Lepisto was taught the value of giving back. "I knew I would someday give back to the community using my talents," Matt said, but admits he had no idea what form that would take. The answer came quickly ... as a featured chef at the Lupus Foundation of Minnesota's (LFM) Lupus Food and Wine Classic.

Matt was no stranger to lupus, his uncle was diagnosed with the disease when Matt was young boy. Throughout his life, he met others with lupus yet was surprised by how little information existed. Fast forward a decade and a half ...
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LFM presented $1,000 gift from Polaris Volunteer of the Year
Caitlyn McCarthy designates funds in honor of her grandmother
Caitlyn McCarthy presents Polaris's $1,000 gift to LFM President Tharan Leopold
It's always fun to learn about the story behind gifts that come in to the Lupus Foundation of Minnesota (LFM) and recently we had the opportunity to meet with an individual whose volunteerism was acknowledged by her employer.

Caitlyn McCarthy was named Polaris's 2016 Volunteer of the Year. Annually, this honor is bestowed upon an employee who is nominated by his or her peers for demonstrating exceptional volunteerism in their local community and for helping make a significant difference in the lives of others. As a reward, the volunteer receives $1,000 to donate to a nonprofit organization of his or her choice.
Read More  

New blog series keeps an eye on lupus research
Today, we launch a blog series that will take a look at new research from various sources, broken down in digestible pieces by Dr. Emily Gillespie, one of LFM's 2014 and 2015 Lupus Clinical Research Grant recipients. Following her passion for research writing, Dr. Gillespie will provide these updates on a regular basis, and we plan to introduce them in this publication, as well as on our social media platforms.

The first installment talks about lupus and personalized medicine and its possible implications for better lupus treatments.
Commemorate LFM's 40th anniversary with a gift  on  Give to the Max Day
If you're participating in this annual day of giving, don't forget LFM 

Just around the corner, on Thursday, November 17, is Give to the Max Day, Minnesota's annual day of giving. The Lupus Foundation of Minnesota (LFM) would be humbled to receive a gift in honor of our 40th anniversary.

Consider a dollar-per-year gift in recognition of four decades of funding lupus research, providing education, support and referrals to people living with lupus, and bringing greater public awareness of the disease. Your donation via the GiveMN platform continues to support these initiatives, launching us into the next 40 years.

On Give to the Max Day, to make a gift, visit LFM's GiveMN page. Or use the link to submit your gift now through November 16; these donations will automatically be processed on November 17.
As the author suggests, try a gentle form of exercise, like LFM's December 8 class on Tai Chi Chih.
Protect your joints in the face of lupus pain and inflammation
An occupational therapist's five easy ways to improve daily activity
by Brenda Frie, MA, OTR/L CHT

Joint pain and inflammation within the hands and feet are often symptoms of lupus. The inflammatory process associated with lupus can expand the joint capsule, stretching supporting ligaments, which can decrease joint stability. It is important for anyone living with lupus to be aware of positions that protect joints from the force of everyday activities.

In my clinical practice as a hand therapist, I have found the following principles of joint protection to be helpful in reducing joint stress ...
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You and your coworkers can support LFM at work through Community Health Charities
Donating to the Lupus Foundation of Minnesota (LFM) through payroll deduction is easy thanks to Community Health Charities (CHC), the region's largest federation dedicated to improving the lives of those affected by chronic illness.

As a member of CHC, LFM is one of 40 local charities who benefit from workplace giving programs at over 200 different businesses in Minnesota. When employers work with CHC to manage workplace giving ...
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Introducing LFM's new mobile-responsive website 
As the world continues to transition from desktop computers to more and more mobile devices, LFM's website is now mobile friendly! The LupusMN.org website now automatically formats content for a better experience on your cell phone or tablet.

Beyond the mobile-responsive update, content is rearranged a bit around our organizational pillars - research, education and support, and awareness. The calendar has been color-coded and the news section re-developed for easier cataloging and reference.

Be patient as we continue to fine-tune this new site, and look for additional features as time goes on.
Upcoming events (click the links for more information and registration) 
November 9
Offered in collaboration by the Lupus Foundation of Minnesota and the Penny George Institute for Health and Healing, gain a basic understanding about what causes brain fog and learn key strategies to rebalance the brain and optimize brain function.

November 10
Discuss what it means to be a care partner and how to enhance your health as a caregiver. This program is offered as a collaboration of the Lupus Foundation of Minnesota, the Upper Midwest Chapter of the National Multiple Sclerosis Society, and the MS Achievement Center-Fairview Health Center.

November 30
Through this webinar, learn more about the emotional and social challenges of living with an autoimmune disease and take away some strategies to better manage them in everyday life.

December 1
Join us for lunch to connect with people recently diagnosed with lupus and other autoimmune diseases.Dr. Anna Schmagel, rheumatologist at the Rheumatology Clinic at the University of Minnesota, will conduct an open discussion.

December 5
Get equipped with the necessary skills, information, and resources to become a group facilitator for LFM. No previous group facilitation experience is required and individuals are welcome to facilitate whether they have lupus or not.

December 8
Experience a gentle form of exercise that can reduce fatigue, stress, and joint pain as well as increase energy, circulation, and balance. This practice is adaptable for every fitness level and can be used in daily life.
Contact Us
Lupus Foundation of Minnesota
The Atrium Suite 135
2626 East 82nd Street
Bloomington, MN 55425

Phone: 952-746-5151
Toll-Free: 1-800-645-1131
Email: info@lupusmn.org
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