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Upcoming Events
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September 30, 2016
Women & MPN
Keynote Luncheon Speaker:
Dr. Gail Roboz, MD
Topic: How to be your own best advocate as an
MPN patient
Dr. Ruben Mesa, MD
Topic: New National Comprehensive Care Network MPN Guidelines
Dr. Laura Michaelis, MD
Topic: MPN 101
Dr. Alison Moliterno, MD
Topic: Gender Differences
in MPN
Dr. Raajit Rampal,MD,PhD
Topic: Genetics and Personalized Therapies
in MPN
Dr. Ellen Ritchie, MD
Dr. Saghi Ghaffari,
MD,PhD
Topic:
The Evolving Biology of MPN, Past, Present and Future
Dr. Richard Silver, MD
Topic: Is polycythemia vera curable with Interferon?
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The Carolinas
(2016)
Australia
(2017)
Los Angeles, CA
(2017)
Washington, DC
(2017)
Atlanta, GA
(2017)
Michigan
(2017)
Pediatric MPN Program
(2017)
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Coming in October
Updates from
Women & MPN Conference
In The Trenches:
Dr. Saghi Ghaffari, MD,PhD
Mount Sinai Hospital
Zhenya Senyak
MPN Forum
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Upcoming Support Group Meetings
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Pennsylvania-Sept. 15
Ohio-Sept. 24
California
Bay Area Event-Sept.17
LA
- Sept. 24
Indiana-October 25
Michigan-October, TBD
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Pain Pain Go Away!
Do you suffe
r from pain or peripheral neuropathy after transplant?
Mouth sores, bone pain, and pain associated with infections, organ damage, peripheral neuropathy and graft-versus-host disease can all contribute to a miserable day if not controlled properly.
Learn more by clicking
the titles below
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MPN Awareness
Looking Back-
Moving Forward
As I look at the many faces of the individuals in the MPN trenches today, I am reminded of how few there were when I began working for the MPN Research Foundation. We had a small list of MPN clinicians and researchers, and an even smaller list of organizations focusing on MPNs. Today, the numbers continue to grow as interest in myeloproliferative neoplasms grows in the medical community. With one drug on the market and several others in clinical trials, patients who relied on few treatment options, may soon have several to consider.
Organizations that had never heard of MPNs are now finding ways to help grow awareness. An international focus has evolved into a global reach we never dreamed possible.
For those who began clearing the path and to those who continue to untangle the numerous MPN mysteries, take a glance back for a moment to reflect on the incredible successes and great strides that have been made in the MPN community because of your dedication and hard work.
There will always be more to do. MPN Advocacy and Education International addresses issues and challenges that may not have been considered in the past. We enjoy the hard work and blazing the trails in advocacy and education. Mostly, we remember why we're in the trenches, and never lose sight of our purpose.
No one is useless in this world who lightens the burdens of others.
Ann Brazeau
CEO, MPN Advocacy and Education International
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Pediatric MPNs: A Mother's Story
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My daughter has always been a very active, happy child. She is cre
ative
, l
ov
es animals and art. She has always participated
in sp
orts. Currently, she runs cross country and plays field hockey and loves her ceramics and art classes. If y
ou
look at her, it is impossible to see a sick child, you'd never think she's different or that there is something wrong with her health.
When she was 8 years old our fa
mily moved to Kentucky
. Her new pediatrician requested a blood test, which was something she said she did for all of her new patients. My daughter had never had blood drawn as part of a normal check in any of the states that we had previously lived. At first it felt very invasive, but we agreed. To our surprise, it was discovered that her blood platelet count was at almost 2 million. The pediatrician of course requested a second test for validation and again the results were the same.
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