null
March 2016
Newsletter.png
Serving Indiana
Question
 
  How does lupus affect the blood?
Scroll down for the answer.  
Hello Spring_
 
Dear Friend,
 
March is for being outside, walking and preparing for upcoming Walk to End Lupus events!  Crown Point Walk registration is now LIVE.
 
Thank you for supporting our WORTH trunk show in February - with sales and donations we raised $1100 for Chapter activities. These grassroots fundraising efforts are vital to the growth and survival of our chapter. Below we spotlight National LFA's new Make Your Mark initiative, designed to provide resources and assist do-it-yourself event planning. Holding a family & friend-oriented fundraiser is a great way to raise your Walk totals towards reaching the levels required for our new and exciting incentives in 2016.
 
As our board continues to grow - we recently approved Dr. Camie Wright, an OBGYN at Riverview Health - we've gained strength in numbers and connections. If you have an interest in volunteering, please let us know; we greatly need volunteers in our office weekly, for our A Tasteful Affair fundraiser on June 30, and for our Indianapolis Walk event.  
 
I need to also report that Strategic Plan committee work is underway! If you haven't yet reviewed the path we have set in 2016, please visit here. Look for important progress notes in upcoming eNewsletters!
 
So much going on in Spring!  We hope to see you healthy and well at one of our events or participating via social media.  We like hearing from you and learning your story and sharing it is critical to all we do.
 
Cheers!
        
Morgan E. McGill
CEO
morgan@lupusindiana.org


Take Control of Blood Clotting

T aking control of blood clotting can be difficult for people with lupus. The disease can cause complications in two ways: either with too much clotting leading to a blood clot, or by not enough clotting, leading to excessive bleeding. Learn more about your risks and what you can do to prevent complications.
READ MORE
Upcoming Events
 
April 20, 2016
'Living with Lupus' Seminar
Deaconess Hospital
Evansville, IN
6:00 - 8:15 pm

April 23 - 24, 2016
WTHR Health & Fitness Expo
Indiana State Fairgrounds Expo Hall
Indianapolis, IN
10:00- 5:00 pm
 
April 23, 2016
Heartbeats Health Festival "Wellness in Bloom"
Hancock Regional Hospital 
Greenfield, IN
7:00 am- 12:00 pm

May 21, 2016
'Hit Lupus Hard' Boxing Event
Title Boxing Club 
Fishers, IN
Registration 1:30  pm

May 24, 2016
'Living with Lupus' Seminar
TBD
Indianapolis, IN
6:00 - 8:00 pm
Registration available soon on our website

June 30, 2016 
A Tasteful Affair
Park Tudor School 
Clowes Commons   
7200 North College Avenue, Indianapolis, IN
6:00-9:00 pm

May 14, 2016
Walk to End Lupus Now!
Lake County Fairgrounds
Crown Point, Indiana
Start time - Noon 
(Check in begins at 10:30 am)

October 1, 2016
Walk To End Lupus Now!
Historic Military Park at White River State Park
Indianapolis
Start time - Noon
(Check in begins at 10:30 am)
 

Save The Date

Lupus Awareness Month
May 2016

World Lupus Day
May 10, 2016

Put on Purple Day
May 20, 2016

2016 LFA Annual Leadership Meeting, Indy
June 19-21, 2016
 
"Purple with a Purpose"
Youth Event
July 30, 2016













Follow us @lfaindiana.
We are 184 followers and growing! Follow us!  
Discover Your Power!
 
Become a Club 100 Member
 
W ith every dollar raised, you have the power to bring us that much closer to solving the cruel mystery of lupus. Create a personal fundraising page and start by supporting yourself with your first donation. Every walker is encouraged to raise  $100  or more. Raise $100 to become a  Club 100  member. As a member, you will receive a Club 100 Walk to End Lupus Now T-shirt.
 
Remember,  e very walker is a fundraiser.    YOU have the power   to enhance the life of someone living with lupu s. 
 
Did you know:  
$35  - Can send Newly Diagnosed Packets to three individuals who have just learned they have lupus 

$65 - Could go towards helping a peer support group aimed at nurturing people affected by lupus 

$115 - Can underwrite a portion of lupus education program for the medical community 

$250 - Could help underwrite a fundraising event such as Walk to End Lupus Now 

$500 - Could fund breakthrough research that could solve the cruel mystery of lupus 

YOU can help the Indiana lupus community! Get your walk shoes ready and spread your purple pride! 
Making a difference starts with one step!



Grocery Shopping? 

LFA-IN now partners with Kroger in its Community Rewards program. Enroll by linking your Kroger plus card to the Lupus Foundation of America-Indiana Chapter at
 



Steroid Use in Children with Lupus

Lupus presents differently in each person, and because of this, physicians use a wide variety of medications to treat it. In particular, steroids are used frequently in the treatment of lupus. However, these treatments affect children and teens differently than their adult counterparts. This month, Dr. Emily von Scheven provides information about steroid use in children and teens. Listen to the presentation and submit your questions by no later than March 15.

LISTEN TO THE PRESENTATION
   

New Research Shows Benefits of Nutritious Diet in People with Lupus

A new study published in Lupus Science & Medicine ® looked to see if the type of diet in people with lupus and steroid treatment are related. In the study, vitamin D was not found to be associated with decreased lupus activity (fewer flares) as previous studies have indicated. However, other nutrients were found to potentially protect against increases in disease activity.







We need your support!
LFA, Indiana Chapter Specialty License Plate
 
WE NEED YOUR HELP in the next two weeks so that a specialty lupus license plate is available with the Indiana Bureau of Motor Vehicles in 2017!  We still need @175 signatures to meet the required minimum of 500 signatures of Indiana residents who have a drivers license. We need to submit the signatures to BMV by April 1. The specialty license plate is a great opportunity to help build lupus awareness and raise funds to meet the support needs of people impacted by lupus. It is $40 to purchase a specialty license plate and our Chapter would receive $25 for each specialty plate purchased.  According to the BMV, this may be tax deductible but you should check with your tax advisor. 
Join us in meeting our goal to collect 500 signatures by April 1, 2016 so that LFA, Indiana Chapter specialty plates are available for purchase in 2017:
  1. Download the petition
  2. Collect signatures from your family and friends who would be willing to pledge to order a specialty license plate. Even if you're the only name on the petition, that's okay - that's one more signature towards our goal!
  3. Mail petition to our office at 9302 N. Meridian St., Suite 203, Indianapolis, IN 46260

Discover Your Power ~ 2016 Walk Information
When you take part in one of our 2016 Walk to End Lupus Now events, you experience firsthand the power of the movement to end lupus. Register to walk or run and unleash your power by raising funds for lupus research and education programs, while increasing awareness and public support in your community.

End Lupus Now 5K Chip-Timed Run in Crown Point


W e are hosting an  End Lupus Now 5K chip-timed run  in  Crown Point  on  May 14th at 9:00 am at the Lake County Fairgrounds. Go to  runsignup.com  and in the box for "Find a Race" type "End Lupus Now" to register to run and start fundraising! Questions? Email to  Susan@lupusindiana.org 
Registration is required.

You are important to our success.  
Our new mobile-friendly registration website launched!
 
May 14 - Crown Point Walk, noon
Lake County Fairgrounds
 
October 1 - Indianapolis Walk, noon
Historic Military Park at White River State Park

______________________________________________________
Volunteer on Walk Day  
 
Get Involved in the fight again lupus 
 
Making a  Walk to End Lupus Now  successful requires a great deal of time and dedication from our volunteers. Volunteer as an individual, with your family, or a group.

Consider donating your time and volunteering for a Walk near you! At the Walk, you experience first-hand the movement to end lupus now. It's a wonderful experience that you won't want to miss! 
   

H elp us make the Walk to End Lupus Now a memorable and inspiring event for all those who attend.
 
If you have questions, contact us at Susan@lupusindiana.org
 or 800-948-8806.
 
_____________________________________
Walker Tools & Helpful Advice
Facebook Sharing
Social Media is one of the best avenues to enhance your fundraising efforts. Use the social share option to share your personal and/or team page.  It will direct folks to "Donate or Register" and your customized photo will automatically show up. For the best results add your personal story.
 
Customize Your URL
Customize your personal and team URLs to make it easier for donors and team members to find your page.  "Step 3" in our Fundraising Center Guide will show you how it works! 
 
Fundraising Tools & Tips  
To help unleash your power we put together some resources to help you throughout the Walk season.
We are here for you every step of the way.
 
These great guides, useful documents, and digital downloads can be found on the right-hand side of the Walk website under the 'About The Walk' drop-down tab labeled 'Fundraising Tools & Tips'.
 
Here are some links to helpful guides that address some of these same areas:
 
 

Wish To Help with ATA, June 30, 2016?
A Tasteful Affair
 
We need your help with ATA, June 30, 2016

Have something you personally or your company might be able to donate to our Silent Auction, Live Auction and Wine Pull?  We welcome your support in stocking our auction and raffle packages with some of the most exclusive items! 
  
Here's some items we are looking for:
  • Vacation Homes
  • Dining Gift Certificates
  • Entertainment and Sporting tickets
  • Airline miles
  • Artwork
  • Personal or Professional Services 
  • Jewelry 
  • Sports and Entertainment memorabilia
  • Wine, bottles must be 90 points rated or better
To donate an item for the silent auction, live auction or wine p ull
c ontact , Susan at   Susan@lupusindiana.org   or 317.225.4400 or 800.948.8806.

Nikki Waitt: Power to Persevere
 

As an ambitious and disciplined athlete, 19-year-old Nikki Waitt won national collegiate championships and aspired for a future as a professional water skier. Although lupus changed the course of Nikki's life forever, she is determined to share her story and inspire others to persevere.  Read More

Survey Opportunity for Parents of Teens with Lupus


If you are a parent of a 14 to 17-year-old with lupus, you are invited to participate in a survey through Boston Children's Hospital that asks about risk behaviors among this age group. If you are a parent of a 14 to 17-year-old with lupus and would like to share your knowledge and experience, please click the link below to learn more about this survey.

LEARN MORE


Muscles Matter: Staying active is the key to improving outcomes
  By Jenny Thorn Palter
 
When your rheumatologist asks you, "Are you getting enough exercise?" what's your response? For many with lupus, the answer may be "no." It's not lack of desire that's holding people back, though. Research has shown that people with lupus believe in the benefits of physical activity. But they have concerns about becoming overly fatigued, being overexposed to sunlight, and getting injured during exercise.
 
Yet, those concerns likely come second to the fact that many with lupus experience muscle weakness and muscle pain that can be severe. The muscles are the most common target of lupus inflammation, and many people are unable to complete basic exercises, such as leg lifts while seated, or a simple stretching routine. This lack of activity, though, can lead to eventual disability.   READ MORE


 
Answer
Blood is made up of many different parts, but those that are most often affected by lupus are the red blood cells, the white blood cells, and the platelets. The main issues having to do with lupus and the blood are: anemia, thrombosis, blood transfusions and bone marrow testing. Hematologists, who are specialists in blood disorders, are often involved in the evaluation and treatment of individuals with lupus.  Learn more.
 

If you're shopping online, don't forget that a portion of your purchase will benefit LFA Indiana Chapter when you shop using the link below:

Give Back While You Shop
 
Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260