News & Views    
March-April 2015


 
    www.hearinglossnyc.org      voicemail:  212-769-HEAR       [email protected]g
                    The Hearing Loss Association of America exists to open the world of communication
                   to people with hearing loss through information, support, education and advocacy. 
APRIL 21st CHAPTER MEETING
5:30-7:30 PM
 
CUTTING EDGE RESEARCH
 TO IMPROVE HEARING

featuring
 
Anil K. Lalwani, MD
Professor and Vice Chair for Research Otolaryngology/Head & Neck Surgery
Director, Cochlear Implantation Program
New York Presbyterian - Columbia University Medical Center
Lawrence Lustig, MD
Howard W Smith Professor and Chair, Department of Otolaryngology/Head & Neck Surgery, New York Presbyterian - Columbia University Medical Center
 
Mario Svirski, PhD
Noel L. Cohen Professor of Hearing Science, New York University School of Medicine
  
Susan Waltzman, PhD
Co-director, New York University Cochlear Implant Center
  
Moderated by David Landsberger, PhD
Assistant Professor, New York University
  
Muhlenberg Library
209 W. 23 Street, Community Room
Live CART captioning provided by Lauren Schechter of TotalCaption.
ASL interpreter on request with two weeks' notice.
 A HEARING-ACCESSIBLE VISIT TO THE
MUSEUM OF MODERN ART

Docent Georgia Krantz with captions


 Listening and reading

Fifty-five HLAA members from New York, New Jersey, Long Island, and Westchester celebrated HLAA's 35th Anniversary on Tuesday, March 17, at a NYC Chapter hearing accessible meeting at the Museum of Modern Art (MoMA). The event also commemorated 30 years of a positive advocacy relationship between Francesca Rosenberg, Director, Community and Access Programs, and HLAA members Ruth Bernstein, Joseph Gordon, and Arlene Romoff. Ruth Bernstein and Lara Schweller, Coordinator, Community and Access Programs of the MoMA Department of Education, organized this special event.
 
Participants enjoyed a wine and snacks reception hosted by the museum. Carrie McGee, MoMA's Assistant Director, Community and Access Programs, Department of Education, addressed the group in an audio-looped auditorium with captioning on the screen. After watching a brief clip of a captioned staff-training video about people with disabilities, in which Ruth Bernstein has a role, participants were divided into three groups. Group members then enjoyed informative, hearing accessible docent tours of MoMA's galleries.
 
HLAA members had the galleries to themselves - a very special luxury - because the museum was officially closed. The docents who led the tours wore portable microphones. Two groups used FM receivers with headphones or neck loops provided by MoMA. The third used FM receivers and streaming CART on their smart phones or tablets. The captions were provided by Lauren Schechter of TotalCaption, who accompanied the third group and typed every word the talented docent, Georgia Krantz, said.
 
Although MoMA regularly presents sign language interpreted and hearing accessible tours, the streamed captions were a first for the museum and for the participants. Everyone agreed this was a very special, memorable evening.

  

To access photos of this event taken by Toni Iacolucci and Rick Savadow of HLAA-NYC and Lara Schweller of MoMA, go to https://www.facebook.com/HearingLoss.NYC.

 

FEBRUARY  17th CHAPTER MEETING RECAP

Tinnitus and Meniere's

 

The speakers at HLAA-NYC's February meeting - Craig Kasper, Chief Audiology Officer of New York Hearing Doctors and fellow of the American Academy of Audiology, and Emmy Visconti, the Senior Clinical Audiologist of New York Hearing Doctors and a New York State hearing aid dispenser - talked about two prevalent ear-related problems, tinnitus and Meniere's disease.

 

Regarding Meniere's, Dr. Visconti explained that there are two types of fluid in the ears - endolymph and perilymph - and Meniere's results from an overproduction of the former. According to Dr. Visconti, "In addition to being the organ we hear with, the ear provides balance. It lets your brain know where you are in space. If there's a disorder in the balance system, it causes you to feel dizzy."

 

The cause of Meniere's is unknown. Theories center on genetic links, autoimmune disorders, viral infections, and ear infections. High salt intake, dehydration, stress, and fatigue are also linked to Meniere's, but as Dr. Visconti points out, "It's unpredictable, very tough to manage, and hard to diagnose. Attacks may last from 20 minutes to a full day or even longer."

 

About 615,000 people in the United States have Meniere's, and there are about 45,000 new diagnoses each year. Symptoms include tinnitus, vertigo, sound sensitivity, headaches, and nausea. "During an attack patients report feelings of fullness in the ear," Dr. Visconti said. "After an attack, most patients feel exhausted."

 

Treatment involves limiting salt intake and increasing hydration in order to reduce pressure in the ear. Certain medications - including Diazepam, Lorazepam, and Meclizine Hydrochloride - reduce vertigo and nausea. Vestibular rehabilitation, an exercise-based program, "will help you regain balance and get you back on your feet," according to Dr. Visconti.

 

"Coping is hard, because attacks are unpredictable," Dr. Visconti noted. "You need to get as much information as you can, know how much medicine to take and when to take it, teach your family about it, and let them know how to help you in the event of an attack."

 

Dr. Kasper defined tinnitus as "The perception of sound in the absence of a corresponding external sound. It can be described as ringing, buzzing, crickets, hissing, roaring." Some 50 million Americans currently experience tinnitus - 16 million severe enough to seek professional help; 2 million who become so depressed that it disrupts their day-to-day activities. About 50 percent of today's combat soldiers are coming back from war with tinnitus because of all the noise exposure. It's one of the top service-connected ailments.

 

Tinnitus is not a new phenomenon. As Dr. Kasper pointed out, ancient Egyptian texts described humming in the ears, and Beethoven wrote that his ears whistled and buzzed each day. "One thing to keep in mind," Dr. Kasper said, "is that tinnitus is not a disease or health condition; it's a symptom of something else." Common causes include Meniere's disease, noise exposure, ear infections, medication-induced damage to the ear, head injury, and tumors inside the hearing nerve. Stress also plays a major role.

 

About 80 percent of tinnitus cases are associated with hearing loss. "Just like Meniere's," Dr. Kasper continued, "education is the key for those with tinnitus." Tinnitus retraining therapy, involving a device that creates static-like sound that helps mask the tinnitus, is one of the most common options available. Others can be helped simply by using an appropriately fitted hearing aid. "There's no cure at this point," Dr. Kasper said, "so what we try to do is retrain the brain so that the tinnitus is less noticeable."

 

This is a personal journey, Dr. Kasper emphasized, "and like any rehabilitation process, you have to work at it. In addition to the right tools and information, an educated, empathetic clinician can help you through the process.

 

HLAA  WEBINAR SERIES
  
Visit the  WEBINAR SCHEDULE   for upcoming offerings. 
NOTABLE QUOTE
  
"Our lives begin to end the day we become silent about things that matter ." 
Martin Luther King Jr.
HLAA HELPS WIN DISCRIMINATION CASE INVOLVING
NYPD OFFICERS WITH 
HEARING AIDS 


  

As a result of a recently concluded four-and-a-half year civil case supported by HLAA's national office and local chapter, New York City police officers will no longer face mandatory retirement because they wear hearing aids.

 

In a court-approved settlement, NYPD veterans Daniel Carrione and Jim Phillips were offered reinstatement, subject to passing a hearing exam, while the city reviews its policy banning the use of hearing aids. The policy is considered a violation of the Americans With Disabilities Act and the NYC Human Rights Law.

 

"The perseverance of these two men has paved the way for a hearing aid policy at NYPD that takes into account the performance of the individual, without a preconceived notion of what it means to have hearing aids," said Anna Gilmore Hall, HLAA Executive Director. HLAA had filed an amicus brief in support of the officers. And Chapter members were prepared, if a trial had ensued, to be present in court and to participate in a press event opposing discrimination against those who wear hearing aids on the job.

 

For more, read Landmark Settlement for NYPD Officers with Hearing Loss. See also Katherine Bouton's New York Times column on this topic.

THE BLOG CORNER

Katherine Bouton
  
Gael Hannan
QUICK LINKS
 

HLAA CONVENTION 2015

 

HLAA's 30th annual convention will take place from June 25 to 28 at the Union Station Hotel in St. Louis, Missouri, and features workshops, an employment symposium, dynamic speakers, and an exhibit hall and trade show - all in a communication-accessible environment. 

 

To register, click here.

 

 

NYPL ORAL HISTORY PROJECT
 
The Andrew Heiskell Braille and Talking Book Library is working to document the stories of NYC residents living with a visual, physical, or other disability. For more information, click here.
  

Hearing Loss Association of America - New York City Chapter
  [email protected]
 

HLAA is a volunteer association for people with hearing loss, their relatives, and friends. It is a nonprofit, nonsectarian educational organization devoted to the welfare and interests of those who cannot hear well. Your contribution is tax deductible to the extent allowed by law. We are a 501(c)(3) organization. Mention of suppliers and devices in this newsletter does not mean HLAA endorsement, nor does exclusion suggest disapproval.