Sept 11 header
May, 2016
e-newsletter  
The Brains Behind Saving Yours

 

The Alzheimer's journey is a long one, with many twists and turns. The Southeastern Wisconsin Chapter has been here as a strong, passionate, and committed resource for over 30 years and with your support we intend to stay committed until the vision of a world without Alzheimer's is attained.

Go Purple in June for Alzheimer's & Brain Awareness Month

J une is Alzheimer's & Brain Awareness Month - an opportunity to hold a conversation about the brain, and share the fact that Alzheimer's disease and other dementias are a major public health problem. During the month of June, the Alzheimer's Association® asks people around the world to wear Purple and use their brains to fight Alzheimer's disease.
 
Join us! Show your true Purple and then promote your efforts via your social media channels! Whether you host a Purple with a Purpose Event, join The Longest Day, begin Walk to End Alzheimer's team recruitment or just ask everyone to wear purple on a designated day in June, let the world know!  And we will too!  Send a photo of your activity to  rmcgill@alz.org  and we will cross promote your efforts to #ENDALZ through our social media channels. Join us on Facebook, Twitter or Instagram @alzheimersSEWI.
 
Let's put our  Purple to Work people! 
Access our  Go  Purple Toolkit here 

Milwaukee Brewers Bring Alzheimer's Awareness to Miller Park on June 7 During Alzheimer's and Brain Awareness Month

We are thrilled that the Milwaukee Brewers have teamed up with the Alzheimer's Association to bring greater awareness of the disease during their June 7th game against the Oakland Athletics.  You are invited to join us for the 7:10 p.m. game, wear your Purple proudly, and cheer on your Brew Crew!

Tickets for the Alzheimer's Awareness Night game can be purchased  online For more information about the planned festivities please contact MaryAnn Vance at 414.479.8800 or mvance@alz.org  
Register Your Team for The Longest Day or Walk to End Alzheimer's by May 20 for Opportunity to Win Brewers 4 Pack 

Have fun while doing good is not just a tagline here at the Alzheimer's Association.  We mean it!   All team captains who sign up your Longest Day or Walk to End Alzheimer's teams by  May 20  will be entered in a drawing to win 4 free tickets to join us for the  June 7th Milwaukee Brewers  game during the Brewers Alzheimer's Awareness Night.  If you've already registered your team, you are in the drawing too!  

 Good Neighbor Pharmacy - The Longest Day® Official Sponsor

Good Neighbor Pharmacy (GNP) is a network of 3,200 independently owned and operated drug stores. To support their customer's growing concern around Alzheimer's, an estimated 1,300 GNP stores will distribute Know the 10 Signs brochures and execute a point-of-sale The Longest Day pin-up program from June 1-30, 2016. Customers who donate $1, $3 or $5 will receive a pin-up to honor someone who is facing the disease. 

If you live in Sheboygan County, please support this effort through the local GNP pharmacy -  Glander Prescription Plus,  3529 Superior Avenue in Sheboygan.

Don't forget to register your team now for  The Longest Day

Today's Courage, Tomorrow's Hope
~Stories from the Alzheimer's Journey ~  
Robin and Bruce Schreck

Remembering Bruce on The Longest Day

Robin Schreck would probably say that as a former Alzheimer's caregiver, every day proved to be The Longest Day.  "Alzheimer's was a very painful disease to watch," she recalled, just ten months after her husband, Bruce, passed away in July of 2015.  The disease is still painful for her and her family.

Three years ago, Robin saw an ad promoting the Alzheimer's Association's The Longest Day.  She wanted to do something to honor her husband, who so courageously battled the disease every day.   She started a team called Committed to Memory.  She got her family and friends involved.  This year, Robin is expanding her efforts to include her co-workers at Pepsico.  It is an effort she is passionate about, because she knows in her heart, that others under her own corporate roof may be struggling with the disease too.  Read about Robin and Bruce's Alzheimer's journey here 


Alive Inside Foundation Brings Project to Sheboygan County!

ALIVE INSIDE, an award-winning documentary about the power of music to help those living with dementia, is coming to Sheboygan North High School with a surprising new audience in mind - high school youth.  The screening serves as a benefit to expand the intergenerational "Adopt an Elder / Build a Bridge" program throughout Southeastern Wisconsin and will include a Q&A session with filmmaker Michael Rossato-Bennett.

In September, 2015, Sheboygan became one of the first U.S. cities to embrace this exciting program. Dan McGoldrick, teacher at Sheboygan North High School, was inspired by the film to involve his students in the first "Adopt an Elder / Build a Bridge" program designed specifically to work with elders who are being cared for in their homes.  The students at Sheboygan North were enthusiastic volunteers.  After viewing the film, students completed special training in which they experienced simulated dementia, and were paired with individuals living with dementia whom they visit weekly to find special songs that trigger memories, stories and connection.  The results have been fascinating and inspiring, with students and elders alike benefiting from their time together.  
 
The ALIVE INSIDE screening event takes place at the Sheboygan North High School in Sheboygan on June 2 at 6 pm. Tickets can be purchased online    A Q&A session with the filmmaker, along with a special musical performance follows the screening.

Attend an Information Session for Dementia Friendly Sheboygan County

The Sheboygan County Dementia Friendly Community Task Force has been meeting for several months in an effort to begin the process of creating Dementia-Friendly Sheboygan County. The group will be holding community information sessions throughout the county to survey the needs of residents living with memory loss along with the needs of their family care partners.
 
Share your input at one of these upcoming community information sessions:
 
May 17, 4:00 - 5:30 p.m. at Health & Human Services, 1011 N 8th Street, Sheboygan
May 25, 2:00-3:30 p.m. at Generations, 1500 Douglas Drive, Plymouth
June 17, 10:00-11:30 a.m. at Adell Meal Site, 510 Seifert Street, Adell
June 30, 6:00-7:30 p.m. at Cedar Grove Library, 131 Van Altena Avenue, Cedar Grove
 
A Dementia Friendly Community Kick-off event will be held in August 2016 to share the results of the information sessions/surveys and will provide opportunities for organizations, businesses and individuals to become involved in shaping Dementia-Friendly Sheboygan County.

 
Wisconsin Network Conference Draws Nearly 1000 Attendees
Former Wisconsin Governor Martin Schreiber (third from left) poses for pictures with family after accepting the Alzheimer's Association Special Service Award at the conference

The 30th Annual Wisconsin Network Conference on Alzheimer's Disease and Related Dementias concluded on May 3, having served nearly 1000 registered attendees.  We would like to salute the following individuals who were recipients of the conferences' Caregiver Awards:

Professional Award:                             Cori Marsh (Janesville)
Professional Award:                             Lizzie Gernon (Sun Prairie) 
Organization Award:                             Bridges Library System (Waukesha)
Family Caregiver Award:                      Nan Jagemann (Manitowoc)
Physician Award:                                 Diane S. Book, M.D. (Milwaukee)
Special Service Award:                        Martin Schreiber (Milwaukee)
Advocacy Award:                                 Representative Mike Rohrkaste (Neenah)
Advocacy Award:                                 Representative Dianne Hesselbein (Middleton)
Courage Award:                                   Michael Endsley (Sheboygan Falls)

Thanks for joining us! And mark your calendars now to attend the 2017 conference - May 7 - 9!
Schlossmann's Subaru City Shares The Love! 
(left) Tom Hlavacek of the Alzheimer's Association, Mike Schlossmann,(owner), Bruce Larsen (general manager) and Mark Schreiber (district sales manager)

We want to thank  Schlossmann's Subaru City of Milwaukee  for raising $13,645 to benefit Alzheimer's research, care and support during their recent "Subaru Share The Love" Campaign!

The Alzheimer's Association is a grateful recipient of this donation, and as we work hard each day to share the love back with individuals with dementia and their families, we just want to say..."Thanks Schlossmann's Subaru - we are feeling the LOVE!"
Barb's Got the Buzz - Advocating on Capitol Hill- Our April Adventure
Dan and Barb Johnson 

Barbara Cheek Johnson is a journalist living with early-stage Alzheimer's disease. In her newest blog,  Barb  recaps her trip to Capitol Hill where she advocated for Alzheimer's research during the Alzheimer's Association Advocacy Forum.

Read Barb's blog here
Alzheimer's Advocates in Action 

Our Alzheimer's Advocates have been busy representing the mission and achieving results!  On March 17th, our annual State Rally Day was attended by more than 100 advocates from across the state. In addition to raising awareness, advocates focused on thanking elected officials for supporting the Wisconsin Cares package of bills, revolving around Alzheimer's and dementia. Representatives Mike Rohrkaste and Dianne Hesselbein, co-chairs of the Speaker's Task Force met with the group and indicated that their efforts will continue as they work to get seven unsigned bills re-introduced in the next session.

In April, over 30 Wisconsin advocates attended the Alzheimer's Association Advocacy Forum in Washington D.C. They joined 1,200 advocates from across the country to ask for an additional $400 million in research funding, support around legislation to connect families to resources and care planning as part of their diagnosis, and further training in palliative care for Hospice. 
   
We want to thank these incredible volunteers for sharing their personal stories about the Alzheimer's journey with their legislators.  Your efforts are making a huge difference and you are the real heros!

 
People with Alzheimer's Can Take Action to Help Others

If you're living with Alzheimer's, you have a unique opportunity to turn your experience into inspiration for others. Your voice and the actions you take, big or small, are powerful tools that can help to raise concern and awareness and empower others.  Learn how you can make a difference here
 
Nutritious Meals are a Challenge for Those with Dementia

As a person's cognitive function declines, he or she may become overwhelmed with too many food choices, forget to eat or have difficulty with eating utensils. Proper nutrition is important to keep the body strong and healthy. For a person with Alzheimer's or dementia, poor nutrition may increase behavioral symptoms and cause weight loss.  Learn tips and tricks for healthy eating here

Cover to Cover - Resources on Alzheimer's and Dementia

Librarian Meredith Bishop 
Meet Meredith Bishop - a career Librarian who as a volunteer staffs the chapter's extensive onsite reference collection in the Esther and Sol Blankstein Resource Center. The collection includes hundreds of books and videos and Meredith is constantly researching new publications to enhance and update the reference library.

Meredith's May Picks - 

BOOKS
Forget Memory: Creating Better Lives for People with Dementia. Basting, Anne Davis. Johns Hopkins University Press, 2009.
            This title takes a positive approach to dementia care, emphasizing innovative arts programs which stimulate the patient's abilities, rather than dwelling on what has been lost. 

DVDs
The Inevitable Hospital Stay - How to Advocate for Your Loved One with Dementia . Snow, Teepa. Pines Education Institute of S.W. Florida, 2014
            Teepa Snow presents information on questions to ask of medical staff when a loved one with dementia is hospitalized, what drugs are commonly prescribed in hospitals that can have a severe effect on persons with dementia and how to detect pain and find comforting solutions.        2 hrs. +

To access materials in our collection, visit the Resource Center during regular business hours - Monday through Friday 8:30 a.m. - 5:00 p.m or call 800.272.3900. For more information visit our  website


Understanding Pieces of the Mind - Saturday, May 21

On Saturday, May 21 the Milwaukee Chapter of the Links Incorporated, the American Heart Association and the Alzheimer's Association will present two powerful panel discussions on stroke and dementia!


Understanding Pieces of the Mind so patients & caregivers can find Piece of Mind  will truly be an informative session with patients, caregivers and experts. Joan Prince, PhD, will serve as mistress of ceremonies. Join us and get some Peace of Mind!  Register here

 
Coming Up - Alzheimer's Association Education Programs


  • a a two or three session program for friends and family members of those experiencing memory related issues or a recent diagnosis of Alzheimer's disease 
  • offers general information about Alzheimer's disease and related dementia as well as how to better communicate and manage challenging behaviors
4:00 - 6:00 p.m.
Waukesha Memorial Hospital
725 American Avenune - Waukesha
Registration is required - to register contact the ProHealth class registration service at 262.928.2745

Thursday, June 9, 16, and 23
5:30 - 7:30 p.m.
Aurora Sinai Outpatient Center, Community Education Room
1020 N. 12th Street - Milwaukee
Registration is required - to register contact Nia Norris at 414.219.5159 or ncnorris@wisc.edu
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Living with Alzheimer's Disease - Late Stage

  • a two-part program geared for family caregivers that offers information on providing care, communicating, developing resources, working with the care team and providing an optimal end-of-life experience 
Tuesday,  June 7 and 14
1:00 - 3:00 p.m.
Alzheimer's Association
620 S. 76th Street. Suite 160 - Milwaukee
Registration is required - to register contact Deborah Klement at 414.479.8800 or 800.272.3900 
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Effective Communication Strategies

  • learn to decode the verbal and behavioral messages delivered by someone with dementia, and identify strategies to help you connect and communicate at each stage of the disease
Tuesday, May 17
6:00 - 8:00 p.m. 
Franklin Public Library
9151 W. Loomis Road - Franklin 
Registation is required - to register contact the Franklin Health Department at 414.425.9101

Tuesday, May 24
3:00 - 5:00 p.m.
Lincoln Village
1330 West Lincoln Ave. - Port Washington
Registration is required - to register contact Kathy Rassel at krassel@heritageal.com or 262.268.1300

Monday, June 6
5:00 - 7:00 p.m.
Alzheimer's Association
620 S. 76th Street. Suite 160 -  Milwaukee
Registration is required - to register contact Deborah Klement at 414.479.8800 or 800.272.3900 

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Healthy Living for Your Brain and Body
  • Learn about research in the areas of diet and nutrition, exercise, cognitive activity and social engagement and use hands-on tools to help you incorporate these recommendations into a plan for a healthy lifestyle
Wednesday, June 1
11:30 a.m. - 12:30 p.m.
West Bend Community Memorial Library
630 Poplar Street - West Bend
Registration is required - to register contact Sarah Prohuska at 414.479.8800, 800.272.3900 or sprohuska@alz.org

Thursday, June 23
6:30 - 8:00 p.m.
Waukesha Library
321 Wisconsin Avenue - Waukesha 
Registration is required - to register contact Deborah Klement at 414.479.8800, 800.272.3900 or dklement@alz.org

Education, Support and Social Engagement - At Your Fingertips


Whether you're looking for an Alzheimer's disease or related dementia education program, a support group, or a Memory Cafe, we have it all! Just click a link and access the upcoming opportunities in your area:






 

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Alzheimer's Association | Southeastern Wisconsin Chapter | 24/7 Helpline 800.272.3900 | www.alz.org/sewi