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May 2015

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Serving Indiana

Question

 

Can children develop lupus nephritis?
 

Thank you to our National Walk? Sponsor

Walk to End Lupus Now?, Crown Point


The Walk to End Lupus Now?, Crown Point held on May 16 was a success!  The rain held off so everybody was able to Walk for lupus.  Thank you to all of our Staff, Walk Committee and Volunteers!  This event would not have been possible without all of your support and hard work.

Remember! The Walk is over but you can still keep fundraising! You have until June 16 to earn an incentive.  For all incentives a 4 week post event deadline applies. You have approx. 4 weeks after the Walk to continue to fundraise. At the end of the 4 weeks, you'll receive an email containing a certificate allowing you to redeem your prize. All merchandise will be shipped to participant's mailing address.

 

Thank you to our Presenting and Gold Sponsors! 

 

 

 



Walk to End Lupus Now?, Indianapolis
Registration for the Indianapolis Walk is now open!  Click here to register and start  raising funds for lupus. 

Plans for the Indianapolis Walk to End Lupus Now? Kickoff Rally  are underway and we hope you'll plan on joining us! The Kickoff Rally will be on Thursday, July 30, from 6:00-7:30 PM at the Basile Opera Center, 4011 N Pennsylvania St., Indianapolis 46205. 

We will equip you with valuable material, information and resources to help you in your fundraising efforts during this Walk season.

You will hear from Top Fundraisers and Team Captains on how they've gotten to where they are. This is also a great opportunity to bring people who are unfamiliar with lupus or the Walk to find out more.

Come to...
... mix & mingle with your fellow walkers and teams.
... share fundraising ideas and get new tips.
... get equipped with Walk promotional materials.
... learn how you can make a difference in your community.

Sarah Lyttle will be treating us to a Laughter Yoga session!

A Tasteful Affair
A Tasteful Affair
Please join us for the fourth annual " A Tasteful Affair," a beer, wine and food tasting event to benefit the Lupus Foundation of America, Indiana Chapter. Savor delectable dishes from local eateries while sampling fine wine and beer. Browse and bid at the silent and live auctions.  Thursday, June 25, 2015 * 6-9 p.m. The Mansion at Oak Hill   5801 E. 116th Street, Carmel, IN. $50 per person * $35 for lupus patient.  Must be 21 to enter.   Purchase Tickets




We're excited that Marianne Lyles (WTTV Channel 4) will serve as Master of Ceremonies, and Ken LaRose (Butler University Associate Athletic Director for Development) returns this year as our auctioneer!


Some of the fabulous auction items to WOW bidders this year:

* Weeklong stay in cozy condo in Sante Fe, New Mexico
* RCI Resort vacation stay, weeklong
* Wine and cheese tasting party for 14 guests at bidder's residence
* Mountain getaway experience in Asheville, NC and the Biltmore Estate
* Goldendoodle puppy companion *pending breeder review of spring litter
* Buffet dinner for 6 and international liquors tasting party at the home of LFA Board Secretary, Joann Ingulli-Fattic
* CBS Channel 4 "Tour of the News Station" 3-hour tour with opportunity to chat with Debbie Knox or Bob Donaldson and to spend some time with meteorologist Chris Wright, before witnessing the live evening 5 pm broadcast
* Magnum bottle of Meritage wine, 3-month wine club membership, and wine tasting for 2
* Ippolita earrings from Reis-Nichols Jewelers
* Sterling silver "X" earrings with small diamond in middle from Barrington Jewels
* Colts signed football by Bjoern Werner
* Signed Butler University team basketball
* Vera Bradley overnight weekender bag
* Round of golf at Broadmoor Country Club
* Children's Museum: Tickets for family of 4 (2 adults, 2 children)
* Indiana Repertory Theater: 2 tickets to a performance*
*Does not include A Christmas Carol
* Other treasures include tickets to area cultural attractions, spa services, apparel and home goods, sporting events, unique experiences and classes, and discounts to local dining establishments.

New in 2015!  
Attendees may participate in an exciting Wine Cork Pull and 50/50 raffle as part of the evening's festivities. 

Auctions items are still being accepted. If you know of a business who might be willing to donate an auction item valued at $50 or more, we'd love to hear from you! Please call the office at 800.948.8806 or email Rebecca Smith at rebecca@lupusindiana.org.

Upcoming Events

June 4, 2015

'Living with Lupus' Seminar

The Marott

6:00 - 7:45PM

Indianapolis, IN

Register Here


June 25, 2015

A Tasteful Affair

Mansion at Oak Hill

6:00 - 9:00PM

Carmel, Indiana

Buy Tickets


July 25, 2015
'Purple for a Purpose' Youth Event
Park Tudor School
1:00 - 4:00PM
Indianapolis, IN 

July 25, 2015
Third-Party Fundraiser
Krazy Horse Krew's 4th Annual Rockin' Purple for Lupus Ride
The Elbow Room
Sign In: 10:00 - 11:45AM
Kickstands up at Noon
Kokomo, IN

July 30, 2015
Indy Walk Kick-off Rally
Basile Opera Center
6:00 - 7:30 PM
Indianapo lis, Indiana

Sept 26, 2015
Walk to End Lupus Now?, Indianapolis
Southeastway Park
Indianapolis, Indiana


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Support Groups

We are happy to offer 14 support groups throughout the state. Lupus support groups provide an opportunity to spend time with others impacted by the disease. Sharing experiences, methods of coping and insights into living with lupus helps members develop coping strategies to reduce the stress that often accompanies living with a chronic illness.  We hope you'll attend a support group meeting soon. Click here to see all Indiana locations and details about each group.

'Living with Lupus' Educational Seminar, Indianapolis

The Lupus Foundation of America, Indiana Chapter is providing an educational seminar at the The Marott, 2625 N. Meridian Streeet, Indianapolis, on Thursday, June 4, from 6-7:45 p.m. (check in from 5:30 - 6 p.m.). All lupus patients, caregivers, family, friends, and health professionals who are interested in learning more about this cruel disease are welcome to attend. 

Featured speakers for this event are Inna Aroutiounova, MD (Rheumatologist, Center of Rheumatic & Immune Disorders) and Lucas Gafken, DC, DACNB (Chiropractic Neurologist). This event is free, but registration is required. 

Please visit www.lupusindiana.org or call 800.948.8806 for more information and to register for this "Living with Lupus" Seminar.  

'Purple for a Purpose' Youth Experience, July 25


 'Purple for a Purpose' Youth Experience is an event for children and teens ages 7-19 who have lupus or have a family member with lupus. Parents are welcome to attend with their children. 


 

This educational and fun event will be held on Sat., July 25, from 1:00-4:00 p.m.


Breakout sessions will be held with the following guest speakers:
* Kathleen O'Neil, MD, FAAP, FACR - Rheumatologist, Riley Hospital for Children
* Michael Blakley, MD, FAAP, FACR - Rheumatologist, Riley Hospital for Children
* Kiana Johnson, PhD - Psychologist and CEO/Founder of The Childhood Lupus Education and Research Foundation

Attendees will also participate in an instructor-led canvas painting activity*! Light snacks will be provided.
 

REGISTRATION IS REQUIRED by Thur., July 23, and there is a $20 registration fee; however, the registration fee will be refunded at check-in. 

Location:
Park Tudor School
Middle School Media Center
7200 N. College Ave.
Indianapolis 46240

*Acrylic paints will be used but participants are welcome to bring a smock or old shirt


 For more event information, please contact Debbie Campbell at 800.948.8806 or debbie@lupusindiana.org

Mahlia Mahdi: Finding My Voice 

Mahlia was diagnosed with lupus at just 8-years-old, when her parents noticed a rash on her face that slowly began to spread. After she received her diagnosis, Mahlia's parents struggled with what and how much to tell her. Now 11, Mahlia is finally starting to speak up about her disease, starting with her participation in the Lupus Foundation of America's new KNOW LUPUS public service announcements.
LEARN MORE

 
Answer: Lupus in children tends to be more severe than in adults and often involves multiple organ systems, including the kidneys. Up to 80 percent of children with lupus will develop lupus nephritis. If not adequately controlled, lupus nephritis can lead to kidney failure, the need for chronic dialysis or kidney transplantation and potentially death. Learn more about the effects of lupus on the kidneys
 

Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260