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March 2014
Thank you for reading our March issue of Epilepsy News. We're dedicated to providing our readers with informative, exciting and interesting news related to autism in NJ. Starting with this issue, we are rolling out a new look and layout to our newsletters to make them more targeted towards your interests and easier to read on a mobile device. Give us your feedback!

For a larger look at trainings happening around NJ, don't forget to check out The Training Calendar. If you would like to contribute to our monthly e-zine content, let us know!
Epilepsy Advocacy Day at State House
Join the Epilepsy Foundation of NJ at the State House to hear what is being done in New Jersey to support people with epilepsy. Topics will include: SUDEP, driving laws and the Epilepsy Task Force.

Thursday, April 17, 2014

The State House Annex
125 West State St. Room 16
Trenton, NJ 08625

 

RSVP Today!

View flyer

 
National Epilepsy Foundation Calls for Increased  Medical Marijuana Access
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The Epilepsy Foundation of America (EFA) released a statement in late February clarifying their stance on medical marijuana as it relates to epilepsy. The statement advocates that all patients living with epilepsy have the right to physician directed care, including medical marijuana. EFA also calls for the Drug Enforcement Administration (DEA) to reduce the barriers that prevent clinical trials and medical research to test marijuana's effectiveness in preventing seizures. Read full statement
NY Times: We Need Proof on Marijuana

Dozens of other anecdotes of miraculous responses to marijuana treatments in children with severe epilepsy are rife on Facebook and other social media, and these reports have aroused outsize hopes and urgent demands. Based on such reports, patients and parents are finding official and backdoor ways to give marijuana to their children. But scientific studies have yet to bear out the hopes of these desperate families. Continue reading

 
Shore Walk Returns to Seaside!
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Join The Family Resource Network and its affiliates as we raise awareness and dollars to support existing programs and expansion projects. This will be a fun filled day for families, friends and community partners to walk in support of their loved ones. Please note that we will be returning to our original walk location for the  2014 Shore Walk to the boardwalk in Seaside Park, NJ. A casual walk along the boardwalk, entertainment and refreshments will be just a few of the days highlights. Sign up today!
Nominate a Student Ambassador
In conjunction with the Shore Walk for a Brighter Tomorrow, FRN is introducing a new Student Ambassador program. An ambassador is the "face" of the event and uses his or her personal story to inspire, engage and educate the community. Through forming walk teams, speaking engagements, media interviews and public outreach, ambassadors energize others to get involved with the Walk for a Brighter Tomorrow. In addition to involvement as volunteers and fundraisers, the Student Ambassador Program provides opportunities to the participants to build friendships and support. Continue Reading
New Auction Items Added to Stone Pony Event
We have some fantastic auction items that will be open to bidding on Sunday, March 30th at the Paint the Pony Purple Event. Proceeds will benefit EFNJ!
  • Guitar signed by Johnny Depp
  • Fiddle signed by Charley Daniels (pictured)
  • 2013 New York Jets Team signed replica football
  • Guitar signed by Michael J Fox
  • Guitar signed by Lindsey Buckingham of Fleetwood Mac
  • 4 Tickets to a New Jersey Devils game (with puck signed by Adam Henrique)
  • 2 tickets to The Bridges of Madison County Musical on Broadway
  • 2 tickets to see Newsies on Broadway

NOTE: Thursday, March 13th is the last day to pre-order Paint the Pony Purple t-shirts!
Save the Date for the Women's Caregiver Retreat
Join us in celebration of National Women's Health Week for our 10th Annual Women's Caregiver Retreat. The day will be filled with dynamic speakers, health screenings, exhibitors, relaxation techniques, a healthy lunch, cooking demo, yoga, zumba and much more! Continue reading
 
Friday, May 16, 2014
8:30 a.m. - 3:00 p.m.
Robert Wood Johnson Fitness & Wellness Center
Mercerville, NJ
 

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