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Making Progress in Myeloma Research
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Participation in Clinical Trials: The Key to Improving Patient Outcomes
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by Aldo Del Col, Co-founder Chairman, Myeloma Canada
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"Since my diagnosis, overall survival has more than doubled thanks to new treatments. Last year alone, Health Canada approved four new myeloma drugs. And many more promising therapies are in the pipeline, many of which address the unmet needs of patients with relapsed and refractory myeloma."
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Dr Nizar Bahlis, Tom Baker Cancer Centre, Calgary
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MCRN 005 –
The BOSTON Study Has Officially Begun Recruiting Patients in Canada for the Pivotal Phase III Clinical Trial
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Informed by the Phase II STOMP (MCRN002) trial led by Dr Nizar Bahlis of Calgary, Karyopharm Therapeutics of Newton, Massachusetts has turned to Canada to lead the Phase III global registration trial for selinexor.
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ASCO 2017: Early BCMA
CAR T-Cell Therapy Results Look Promising
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Early results from an ongoing Phase I clinical trial (NCT03090659) in China has 33 out of 35 (94%) patients with relapsed or treatment-resistant (refractory) myeloma in clinical remission (complete or near complete) with only mild side effects.
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CBC Health Interviews Dr Vincent Rajkumar on Suspension of
Pembrolizumab (Keytruda) Trials in Multiple Myeloma
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"The same drugs that work in one cancer really well might not work in another cancer because each cancer is unique and the effects might be totally different," Dr Rajkumar told CBC Health.
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According to the 2017 Canadian Cancer Statistics, approximately 3,000 Canadians will be diagnosed with myeloma this year. Awareness and early detection is key to improving patient outcomes. Register for the 2017 Multiple Myeloma March and help put myeloma on the map!
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Download Your
Fundraising Toolkit
Below are some tools to help you with your fundraising activities.
Customizable Poster Click image to download poster. Then click on blue box, type your team name, and click save.
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Facebook Cover Photo Right click on this photo and click on “Save image as”.
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Offline Donation Form
If you are collecting cash or cheques for your March campaign, download and print this offline donation form.
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To register or donate, visit
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Spotlight on Rolland Manning :
A Caregiver's Story
"Three years is a long time to feel 'unwell' and be in pain. That's where my wife of 56 years found herself to be in the fall of 2016."
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Myeloma Canada Educational Webinar :
Managing Side Effects
Featuring Cindy Manchulenko, Clinical Trials Project Manager Clinical & Systems Transformation, and Board Member of the Myeloma Canada Research Network
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Myeloma Canada is Making Waves by Taking Action in Advocacy
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Our healthcare system is complex; no one would argue to the contrary. Over the past few years, an unprecedented number of new treatments became available to Canadian myeloma patients, however gaining access to these therapies has become a major issue. Here are a few ways Myeloma Canada is speaking out and making our voices heard:
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Recommendations on Proposed Amendments to the Patented Medicines Regulations
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There are many key decision makers at either federal, national or provincial levels that are responsible for the healthcare services Canadians receive from coast to coast to coast. Health Canada holds different responsibilities influencing the landscape of our health care system, including drug safety, quality and effectiveness. In addition, they play an important role with respect to drug pricing. We, as a patient organization, recognize the regulations overseeing drug pricing need to be re-evaluated, especially given the changes in our ecosystems since the inception of these regulations. Myeloma Canada has partnered with other patient organizations and coalitions to drive change in the healthcare system towards a more favourable patient-focused environment.
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Myeloma Canada Issues a Press Release to Bring Awareness and Drive Change in Canadian Oncology Drug Policies
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“Medication approval does nothing for patients if they cannot access life-changing treatment,” said Aldo Del Col, Co-founder and Chairman, Myeloma Canada. “Canadians living with multiple myeloma deserve access to approved treatment options now. Patients can’t wait. We will continue to advocate, engage, support research and raise our voices for Canadians living with multiple myeloma to ensure fair and enhanced access to approved treatments in our near-future.”
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Your Nurse, Your Hero
An oncology nurse is a nursing professional who specializes in caring for people with cancer. They are one of your main healthcare providers and they help coordinate the many aspects of your care throughout your treatment journey. You can call on your nurse in your time of need to seek advice, comfort or to ask questions. In many ways, oncology nurses are your dedicated caregiver. They make sacrifices for their patients every day.
Say thank you by nominating your favourite oncology nurse for the Myeloma Canada Marion State Memorial Nursing Award. Go ahead, they deserve it!
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Find out what’s happening in our community with Sam’s 2nd Annual Monte Carlo Casino Night in partnership with Myeloma Canada, a 5k marathon in Quebec City, Living to Tri – an update on Malcolm Stinson’s 30-day Half-Ironman challenge and a 60th birthday tribute!
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