NAMI Greater Orlando

Logo_NAMIWalks_NAMIGO

SAVE THE DATE 

 Saturday, May 3rd

Lake Lily, Maitland

NAMIWalks_NAMIRocks

RegisterNow 

Facebook  

Join Our Mailing List 

Read our current quarterly

Beacon Newsletter!

Beacon Sign

Support & Education
for all people affected by mental illness
 
For the consumer or peer, the person with the diagnosis:
Connections Logo 
 
 
_____________________________
For the family member, friend, or caregiver:
 
NAMIFamilySG_color
  
 
  
F2Flogopurple
_____________________________ 
 
For the educator, social worker, and health care provider:
Logo_ProviderEducation
 
Contact us at (407) 253-1900 to register for one of our signature education programs.
 
Hands 

We invite you to help strengthen NAMIGO by becoming a treasured volunteer! 

 

Please contact Mike Trainor @
(407) 253-1900 or [email protected]
if you feel called to serve as a volunteer.

 

Everybody can be great, because anybody can serve...  You only need a heart full of grace.   

A soul generated by love.

-  Martin Luther King, Jr.

Be sure to check our website at www.namigo.org for updates regarding support groups, education programs, advocacy activities, and special events.

 

Please contact us with any information or referral needs @ (407) 253-1900 or [email protected].

 

Like us on Facebook

If You're Not at the Table... 

 

 

A prominent D.C. lobbyist once said, "If you're not at the table, you're on the menu."

 

It's March 7th.  The last day to let your voice be heard regarding the Center for Medicare and Medicaid Services (CMS) proposal to limit access to psychiatric medications.

 

Will you stand up?  It takes 2 minutes to sign this petition.  While you are on that page, please take a look at the current federal legislative issues.

 

NAMI National is now using a tool called CQRC Engage that is a comprehensive advocacy and engagement platform that makes it easy for advocates like you to be informed on key issues and have the quick-and-easy tools to take action for this cause of mental health.  You can find your elected officials on the CQRC NAMI Homepage.

 

As mental health advocates, we impact our community every day by sharing our stories, resources, and educating people about mental health recovery.  Now we can stand up on a national level to voice our passion on legislation.

 

On a state level, we invite you to join NAMI Florida, NAMI affiliate leaders, Florida Partners in Crisis, and many other advocacy groups as we descend on Tallahassee for Behavioral Health Day on Wednesday, March 19th.  Let's make 2014 the tipping point for Florida to rise from being 49th in the country in mental health spending.  Come learn to share your story on Tuesday night, March 18th, with NAMI Florida's NAMI Smarts training.

 

Want a quick-and-easy way to advocate? Post this newsletter on your social media by clicking the share button at the top of this email.  Also, please take a moment to like our Facebook pageWe post the most current happenings in mental health from the latest research to useful tools to personal stories.  You are NOT alone.

 

Top2Click these links below for more NAMIGO news you can use:

NAMIBlogNAMI Blog:  Medication Choice Provides Greater Hope

 by Mary Giliberti, NAMI Executive Director 

 

There is no one path to recovery.

 

One size does not fit all.

 

These sometimes are hard facts to accept, because they mean there are no simple answers; however, they are still a source of hope for people living with mental illness.

 

More choices mean more hope. When there are several options to choose from, a person has a better chance of getting it right in finding an effective course of treatment. The key is working with a doctor and making decisions based on a person's specific circumstances and life goals. Getting it right also means avoiding unnecessary side effects or risks. It means getting the right help in time.

 

NAMI needs your help now to send a message to the federal government's Center for Medicare & Medicaid Services (CMS), which has proposed limiting access to certain psychiatric medications under the Medicare Part D program for seniors and people with disabilities. We are preparing to file a formal "comment" this week along with thousands of signatures on a petition in opposition to the proposal. We hope to have at least 10,000 signatures. Please help by signing here and sharing it with family, friends and others. We also urge you to send comments to CMS with your stories and those of people you know and love.

 

It doesn't matter whether choice involves medication, therapy, a support group, help from a peer, or an exercise routine. The principle is the same. Access is critical and barriers should be minimized. Choice is important and so is timing. As one woman who communicated with me explained, it can take time to find the right treatment. "What I learned is that different people respond to different medications differently. It is not a one size fits all. It took 10 years for me to find the right balance of medication and I had a very skilled doctor that cared and a lot of medications to choose from until we got it right. Taking away (these) choices limits a person's ability to find the right combination."

 

Currently under Medicare Part D, health care plans must include "all or substantially all" medications in six protected classes of medications in their "formularies," i.e., the list of medications the plans cover. This requirement has prevented insurers from imposing prior authorization, "fail first" requirements or other restrictive mechanisms that limit access to other options.

 

CMS' new rule proposal would eliminate protections for antidepressant medications in 2015 and antipsychotic medications in 2016. Overall, choices of medications would be greatly narrowed for individuals with depression, schizophrenia and other mental illnesses. For too many people, steps would be taken backward, rather than toward recovery-and stepping back means pain and risk of increased hospitalization, criminal justice involvement and despair.

 

Early effective treatment often hinges on making a smart choice at the outset rather than depending on a cheap cookie-cutter option. In addition, people with disabilities, including mental illnesses, have to wait two years to get onto Medicare, and by then many of these individuals have experience and know which medications work and can be tolerated well. We shouldn't make them jump through a number of hoops the get the right help. We know from experience that imposing complex processes interferes with good treatment.

 

In response to one of my previous blogs, I received a comment from a mom whose son's medication dosage was arbitrarily reduced by a private insurer after many years of stability and over the objections of his doctor. She asked for help and did not know where to turn. Placing the burden on doctors, individuals and families to overcome barriers to treatment makes no sense. The CMS proposal flies in the face of scientific knowledge and the personal experiences of many people living with mental illness. Prescribing decisions must be individualized, based on clinical history, side effect profiles and personal preferences.

 

Medication is usually just one part of the foundation needed to support a person's recovery from mental illness. Weaken any one part of the foundation and years of progress, are put at risk. Make sure that CMS knows the impact of this rule on real people and real lives. Join the NAMI movement and take action today - sign a petition, submit a comment, and tell CMS why Medicare Part D must continue to support recovery.

  

Read more HERE.

(back to top)

VideoWatch Rep. Tim Murphy Interrogate the Center for Medicare and Medicaid Services on Medicare Part D Drug Rule
It's not often that we get to cheer something that happens in Congress.
Rep. Murphy Interrogates CMS on Medicare Part D Drug Rule
Rep. Murphy Interrogates CMS on Medicare Part D Drug Rule

 

(back to top)

 LegislativeBehavioral Health Day in Tallahassee
Share Your Story with Your Representatives!

  

 

(back to top)

ClassScheduleUpcoming NAMI Signature Classes

     

New class starting 

Thursday evenings in SW Orlando beginning March 27th

 

Peer-to-Peer is a FREE ten-week education course for persons living with mental illness that focuses on recovery while establishing and maintaining wellness. Through the combination of lecture and interactive exercises, class participants will learn about the biological bases of all major mental illness, as well as complete a Relapse Prevention Grid and Psychiatric Advance Directive. Other topics covered in the class include: Coping Strategies; Language; Emotion; Addiction; Spirituality; Sleep; Relationships; and Advocacy.

To learn more about Peer-to-Peer, visit this NAMI Education page.

 

(back to top)

PathwaysPathways Drop-In Center:
Library Resources Running on Low

  PathwaysFaces.

Pathways Drop-In Center Wants Your

Books & Magazines!

 

"Pathways is a community mental health center that delivers phenomenally cost effective services to the seriously and persistently mentally ill by using their peers to deliver those services with the special insight that the brutal experience of mental illness gives those who survive it.  We are role models for the possibility of recovery.  We have zero tolerance for illegal drugs, alcohol, and aggression.  Our purpose is to solve problems. We are not about blame or guilt.  However, we are about responsibility." 

 

You may drop off your books and magazines at the NAMI office, at one of our support groups or education classes, or at Pathways itself, which is located at 1313 30th St, Orlando, FL (map).  You may call Donna Helsel for more information at 321-695-6790.

 

(back to top)

CharityEventSupport Federation of Families in
the Charity Challenge Raffle

    

(back to top)

CEUThingCultural Competence LGBT Workshop

    

(back to top)

ConsumerCornerConsumer Corner

UPCOMING CONSUMER ACTIVITIES

 

WHETHER YOU BOWL TURKEYS OR GUTTER BALLS...

 Bowling Turkey

BOWLING - Every Thursday

 Meet at Aloma Lanes in Winter Park @ 2:00 p.m. (map)  For more information, contact Rick Scott @ (407) 929-1527.

 

ChampionThank You to Our
New Community Partner

ChampionSelfStorage  

(back to top)

 

For more information, contact the NAMI Office @

(407) 253-1900 or [email protected].

Like us on Facebook

Thanks again for all you do for
NAMI Greater Orlando!
Your NAMIGO Team