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June 22, 2012

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ACCO

10920 Connecticut Avenue

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Kensington, MD 20895 

(855) 858-2226

 

 

 

 

  

 

 

Greetings!

 

American Childhood Cancer Organization is proud to announce the release of our newest free resource, a childhood cancer book entitled Understanding the Journey, A Parent's Guide to DIPG. 

 

This is a 368 page comprehensive resource that guides the family through the difficult diagnosis of diffuse intrinsic pontine glioma (DIPG). Chapters are written by pediatric neuro-oncology experts and cover all aspects of treating a child with a DIPG. Topics include: diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, and chemotherapy and biologics.

 

Furthermore, helpful chapters on loss of communication and caring for the child at home provide practical advice. Research chapters focused on animal models of DIPG, stem cell research, vaccine research, convection enhanced delivery, and genomic research provide hope for a brighter future. The final chapters on organ and tissue donation, as well as integrating palliative care, answer the questions that families ask at their child's end of life. The book also includes 164 parent stories that provide personal insight to the DIPG journey.

 

We are confident this will act as a vital resource to families battling DIPG and are proud to be able to provide it. Please see below for ordering information.

 

Warmest Regards, 

 

Amber Masso, ACCO Program Director  

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Ordering Information for DIPG Families
  
This book is now available on our online free resource form. You may also order a copy with our printable order form
 
If you have any questions, please contact Liz Dicus at 1-855-858-2226 Ext 102 or at LDicus@acco.org
 
Click HERE to JOIN ACCO and order a copy.
 
Click HERE to order if you are ALREADY A MEMBER.
Ordering Information for Healthcare Workers
  
You may request ONE free desk copy of this resource by emailing our Fulfillment Manager, Liz Dicus, at LDicus@acco.org. Please purchase additional copies through our web store.
 
If you are interested in purchasing Understanding the Journey, A Parent's Guide to DIPG in bulk for you hospital or organization, please contact Liz Dicus at 1-855-858-2226 Ext 102 or at LDicus@acco.org
 
To order for families by fax or mail:
Download our printable order form
 
To order for families online:
Click HERE to order on behalf of a family.