Greetings!
American Childhood Cancer Organization is proud to announce the release of our newest free resource, a childhood cancer book entitled Understanding the Journey, A Parent's Guide to DIPG.
This is a 368 page comprehensive resource that guides the family through the difficult diagnosis of diffuse intrinsic pontine glioma (DIPG). Chapters are written by pediatric neuro-oncology experts and cover all aspects of treating a child with a DIPG. Topics include: diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, and chemotherapy and biologics.
Furthermore, helpful chapters on loss of communication and caring for the child at home provide practical advice. Research chapters focused on animal models of DIPG, stem cell research, vaccine research, convection enhanced delivery, and genomic research provide hope for a brighter future. The final chapters on organ and tissue donation, as well as integrating palliative care, answer the questions that families ask at their child's end of life. The book also includes 164 parent stories that provide personal insight to the DIPG journey.
We are confident this will act as a vital resource to families battling DIPG and are proud to be able to provide it. Please see below for ordering information.
Warmest Regards,
Amber Masso, ACCO Program Director
|