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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. January 02, 2018

In This Issue

Autism studies hampered by lack of reliable test for gut problems

Estimated Prevalence of Children With Diagnosed Developmental Disabilities in the United States, 2014-2016

New comedy series shot on Staten Island sheds light on raising children with autism

The Holiday Habit I'd Like to Break: Comparing My Son With Nonverbal Learning Disability to His Cousins

Parents and Others Looking for Help!!!

Autism Parent Power Lab: Setting Goals for Success

Conference: Teaching Social Competencies - More Than Social Skills

Annual Friends of Friendship Circle Dinner

The IEP Guy

Friendship Circle San Diego: Men's Club Bowling League

Cortica Care: Comprehensive Autism Treatment

Friendship Circle, San Diego Dojo 2018 Dates!!!

Saturday Night Social Dance Party!!!

Sports 4 Exceptional Athletes January Newsletter

TRIO Consultants

Happy New Years

SAVE THE DATE!!! March 17, 2018

Autism Adult Social Support Group

Central San Diego Family Pool and Pizza Party

Healthier Living with Chronic Conditions


 






  • Autism studies hampered by lack of reliable test for gut problems

  • In his first description of autism in 1943, Leo Kanner described children with social problems, repetitive behaviors and language difficulties. But one more feature in his description would become a mainstay of autism: gastrointestinal distress.

    Since his report was published, dozens of studies have documented gastrointestinal issues, such as constipation, diarrhea and abdominal pain, in people with autism.

    By some estimates, more than 70 percent of people with autism have gastrointestinal issues. But other studies have pegged the prevalence as low as 9 percent3. We suspect these discrepancies are in part due to the way gastrointestinal problems are measured.

    Although there are good tools for assessing gastrointestinal problems in clinical practice, there are no reliable tools for use in epidemiologic studies. For these studies, we need questionnaires that a participant or caregiver can complete outside of a doctor's office. Read on...

  • Estimated Prevalence of Children With Diagnosed Developmental Disabilities in the United States, 2014-2016
  • Key findings

    Data from the National Health Interview Survey

    --During 2014-2016, the prevalence of children aged 3-17 years who had ever been diagnosed with a developmental disability increased from 5.76% to 6.99%.

    --During this same time, the prevalence of diagnosed autism spectrum disorder and intellectual disability did not change significantly.

    --The prevalence of autism spectrum disorder, intellectual disability, other developmental delay, and any developmental disability was higher among boys compared with girls.

    --The prevalence of any developmental disability was lower among Hispanic children compared with children in all other race and ethnicity groups. Read on...

  • New comedy series shot on Staten Island sheds light on raising children with autism
  • STATEN ISLAND, N.Y. -- After raising two twin boys with autism, Tottenville resident Guzin Kurun wanted to create an element of "normalcy" around parenting of children with the condition.

    And she wanted to do it through comedy.

    After earning a degree in video and journalism and working as a freelancer at CNN-NY, Guzin decided to use her skills to create a scripted show, based on her and her family's "real life" scenarios related to autism. Read on...

  • The Holiday Habit I'd Like to Break: Comparing My Son With Nonverbal Learning Disability to His Cousins
  • The house is aglow. I can see cousins, aunties, uncles and grandparents hugging and greeting my husband and youngest son through big bay windows. The smell of the fire beckons me inside. Yet I can't move. My eldest, 5-year-old Darius, is in full protest mode. His sobs have soaked my silk top and his kicks have torn a run in my stockings. He knows what's awaiting him: Lots and lots of people.

    The very thought of entering the house terrifies him. And it fills me with dread.

    Back then-15 years ago-I didn't yet have a name for what was "wrong" with Darius. But already, my maternal sense was telling me he wasn't just a quirky kid who hated parties. As learning issues came up in school and socializing became more and more tortuous for my son, we searched for an explanation. Read on...

  • Parents and Others Looking for Help!!!


  • We are the family of an adult with intellectual disabilities and medical complexities. We are seeking others' experiences with Home Health Care agencies hoping to find one that is honorable, trustworthy and reputable. Is there any such thing? Positive and negative experiences are welcome. Thank you.
    Tflourie@aol.com



    I would appreciate any insights into the Winston School, not just for academic support but also behavioral support. My child would be starting mid-year seventh grade. If you have any feedback, please email me at Lisacmurphy1@gmail.com. Thank you!



    Has your child attended TERI's Country School? If so, please email me - I'd like to get your feedback. Thank you! Michelle Ohnstad: michelle.ohnstad@gmail.com



    Our daughter is 17 (she turns 18 in June) and is in an out of state residential program. She needs to a different program soon, as she can't stay where she is beyond 18. We are planning to apply for conservatorship/guardianship. Do we apply in California since we live here? Do we apply in Florida where she is now? Should we apply in the state where she goes next (which we don't know yet)? Any help you can give or advice (if you have gone through the process of conservatorship) would be greatly appreciated. Thank you, Mo Ruchhoeft (moru@san.rr.com)



    Our 19-year-old autistic son and daughter need to have their wisdom teeth removed along with dental fillings. Can anyone recommend a dentist/oral surgeon who have experience working with autistic adults so we can do BOTH procedures in one setting? Please contact me directly mayahuchan@gmail.com or 619-253-8826. Thank you.



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Autism Parent Power Lab: Setting Goals for Success
  • Wed, January 10, 2018
    6:00 PM - 7:30 PM
    Sanford Autism Consulting
    San Diego, CA 92120
    Cost: $20
    Start your year off right! Join us for our first Autism Parent Power Lab. Come with questions, leave empowered!
    Click here for all the info!!!

  • Conference: Teaching Social Competencies - More Than Social Skills
  • Our mission is to help people develop social competencies to better connect with others and live happier, more meaningful lives. We do this by creating concepts, curricula, and materials that help professionals and parents teach social competencies and help individuals as young as four and across the lifespan meet their personal, academic, and professional goals.

    Join us in San Diego! March 12-15, 2018
    EARLY BIRD - 20% OFF!!!

    Learn practical strategies for self-regulation, executive functioning, perspective taking, and more at the four-day conference. Learn More & Register!

  • Annual Friends of Friendship Circle Dinner
  • You are invited to celebrate with us at our annual Friends of Friendship Circle Dinner on Sunday, January 7th!

    Join us for a festive evening of camp themed entertainment including dinner, singing songs, guest speakers and more! Come enjoy as we thank our volunteers and supporters and celebrate another year of friendship together.

    Sunday, January 7th
    6:00pm - 8:00pm
    16934 Chabad Way, Poway, CA 92064


    Dress code is camping attire and smiles!

    RAFFLE!

    Bring cash or checks to purchase raffle tickets for the following wonderful prizes, or purchase online below and show your email receipt at the event to redeem for tickets. $5 for 1 ticket, $20 for 5 tickets, $80 for 20 tickets.

    Click here for all the info!!!!

  • The IEP Guy
  • Developing an appropriate IEP should not feel like trying to unravel a Rubik's cube.

    The IEP Guy is an experienced non-attorney special education advocate working side by side with families to obtain appropriate placement, services, and outcomes for students.

    The IEP is the heart and soul of special education. Think of it as the heliocentric model of our solar system. Just as the planets orbit around the sun, so do placement, services, and outcomes revolve around the IEP.

    Therefore, it is imperative that parents develop an appropriate IEP for their child given the major impact it has on the student's academic and functional performance.

    Services
    Say goodbye to hourly rates! All services are provided on a flat fee basis. No surprises!


    IEP Services

    • IDEA Compliance
    • Student Eligibility
    • Placement
    • Related Services
    • Goal Development
    • Evaluations
    • Manifestation Determinations
    • State Complaint Procedure
    • Due Process
    Discipline
    • Student Suspension and Expulsion
    • Involuntary Transfers
    • Exclusion from Extracurricular Activities
    Academic Disputes
    • Grade Reduction and Loss of Credit
    • Student Record Removal
    • Student Promotion and Retention (K-8)
    Parent Coaching
    • Administrative Complaint Procedures
    • Section 504 Plans
    • Education Code

    Leo Marchena
    The IEP Guy
    4275 Executive Square, Suite 200
    La Jolla, CA 92037
    858-345-6536
    www.theiepguy.com

  • Friendship Circle San Diego: Men's Club Bowling League
  • Maxime Keyson
    Program & Marketing Director
    Friendship Circle SD
    Maxime@FriendshipCircleSD.org
    858.487.4879

  • Cortica Care: Comprehensive Autism Treatment
  • Experience a unique and effective approach to autism therapy.

    Our aim is to bring to families everywhere the most effective therapies for the treatment of autism. Our integrated care model is based on the scientific research and clinical practice of our founder, Dr. Suzanne Goh. We seek to set a new global standard for autism care by achieving superior developmental outcomes for the children and families we serve.

    At Cortica, we believe the world needs a higher standard of care for all those living with autism, or a potential diagnosis of autism. Families like yours deserve effective, collaborative, caring therapies that are accessible and reasonably priced, no matter who you are or where you live.

    Meet our extraordinary team of autism specialists.
    Our multi-disciplinary team includes specialists from many different fields. All of our team members have specialized training and expertise in autism care.

    • Pediatric Neurologists
    • Electroencephalography & Neuromodulation Specialists
    • Neurology Nurse Practitioners
    • Nutrition and Holistic Health Practitioners
    • Speech-Language Therapists
    • Occupational Therapists
    • Physical Therapists
    • Music Therapists
    • Board Certified Behavior Analysts (BCBA)
    • Registered Behavior Technicians (RBT)
    • Social Workers and Marriage-Family Therapists
    • Special Education Teachers
    We provide every child at Cortica with an individualized program to accelerate learning and development. An essential ingredient for success is collaboration among physicians, therapists, parents, children, and our extended communities.

    Together, we clarify the complex, celebrate extraordinary efforts, and witness moments of brilliance as our children grow new skills and abilities. Many of our services are covered by medical insurance plans. Contact us for all the info!!!

    Cortica Care
    7090 Miratech Drive
    San Diego, CA 92121
    858-304-6440
    http://www.corticacare.com

  • Friendship Circle, San Diego Dojo 2018 Dates!!!
  • Maxime Keyson
    Program & Marketing Director
    Friendship Circle SD
    Maxime@FriendshipCircleSD.org
    858.487.4879

  • Saturday Night Social Dance Party!!!
  • RSVP to Caroline at 602-502-2743
    http://www.innerdancers.org

  • Sports 4 Exceptional Athletes January Newsletter
  • s4ea

    Click here to read their latest newsletter for all the info about upcoming activities!!

  • TRIO Consultants
  • What's The TRIO?

    The Expert: Cynthia LaBrie Norall, PhD, BCBA-D
    The Individual: Evan Wooton, Social Coach & Facilitator
    The Family: Julie Marie Miller, Mother. Writer. Ally.


    We are advocates, counselors and coaches for those with hidden disabilities such as ASD, ADD/ADHD and dyslexia in schools, in communities and in the workplace. With our TRIO of perspectives, we are able to offer an innovative approach unique to our field.

    Services Offered:

    • Autism Coaching
    • Educational Diagnosis
    • Expert Family Law Testimony
    • Parent Coaching and Support
    • Friends' Club
    • Job Transition Facilation
    • Job Coaching
    • Hidden Disability Educational Support
    • Educator Disability Coaching
    • Employer Disability Training
    • IEP Review and Advocacy
    • New Diagnosis Counseling
    Your challenges become our goals as we seek to provide an empathetic experience while leading and guiding, to ultimately teaching you the skills of self-advocacy through resources, and support along with proven methods. With a pool of resources gained over two decades, we can offer referrals to you to help you turn your roadblocks and struggles into meaningful life experiences. Through many combined years of trials and successes, we are excited to become your number one alliance toward peace of mind toward the future.

    julie@trioconsultants.net
    Tel : 760.207.3802
    https://www.trioconsultants.net

  • Happy New Years
  • Click here to read their latest newsletter for all the info!!!

  • SAVE THE DATE!!! March 17, 2018
  • Finding Our Balance
    For parents of children with special needs & the professionals who work with them


    Saturday, March 17, 2018
    Handlery Hotel in Mission Valley, San Diego

    The Involved Exceptional Parents Day conference plays a vital role in the San Diego County special needs community. Focusing on education and support for families of children with special needs, a committee of parents and professionals work together to provide parent and student resources, learning opportunities and hope.

    Come Learn With Us!

    http://www.iepday.org

  • Autism Adult Social Support Group
  • Saturday, January 6, 2018
    6:00 PM to 8:00 PM
    United Way Building
    4699 Murphy Canyon Rd
    San Diego, CA


    Join us for our new Autistic Adult Social Support Group! This group is a place for autistic adults to come together for support and understanding. Make new friends, share questions and concerns, and get support from your peers, in a non judgmental and accepting atmosphere. This group is a open to all adults with autism as well as any support people that you require to participate successfully. We look forward to seeing you!

    Autism Society San Diego County
    info@autismsocietysandiego.org
    858-715-0678

  • Central San Diego Family Pool and Pizza Party
  • Friday, January 12, 2018
    6:00 PM to 8:00 PM
    Aqua Pros Swim School/Boys and Girls Club
    4635 Clairemont Mesa Blvd.
    San Diego, CA


    Bring the entire family to enjoy a swim in an indoor, heated pool with free pizza and drinks. Lifeguards are provided. For safety purposes, no flotation devices or "floaties" are permitted. A special thank you to Aqua Pros for making this event possible. RSVPs are greatly appreciated! Contact info@autismsocietysandiego.org or 858-715-0678.

    ** Admission is free but a $5 donation is suggested per family to help cover the cost of the food and venue

    ** Unfortunately, we will no longer be serving GFCF pizza. If you have specific dietary restrictions, feel free to bring your own food

    ** For the safety of your children, we ask that you do not enter the pool area until 6:00 pm

  • Healthier Living with Chronic Conditions
  • Meeting located at MCRD San Diego. For more info or to register contact 619-524-0916.
    www.healthierlivingsd.org

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    Upcoming dates:
    • January 20, 2018
    • February 17, 2018
    • March 17, 2018
    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • San Diego Sibshop


  • October 2017 - August 2018

    WANTED: Siblings who have a brother/sister with special needs

    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    Dec. 10: Mission Trails Regional Park Visitor Center
    Feb. 25: Mission Trails Regional Park Visitor Center
    March 25: Mission Trails Regional Park Visitor Center
    May 20: Mission Trails Regional Park Visitor Center
    August 19: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies and lunch for the kids

    REGISTRATION: Pre-registration requested by email (if possible) the Thursday before the event.

    CONTACT: Email patmoulton@cox.net for a Sibshop registration form and / or additional information.

    Sibshop Leaders:
    Jody BonDurant-Strong, Administrator
    Ndoto BonDurant-Strong - adult sibling & CSUSM student
    Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    Directions for Mission Trails Regional Park Visitor's Center (MTRP):
    1 Father Juniper Serra Trail (92119). Interstate 8 to 15 North / East on Friars Road.
    Stay to left - turns into Mission Gorge Road / Turn left on 1 Father Juniper Serra.

    https://www.facebook.com/sandiegosibshop/

  • Therapeutic Recreation Services, Winter 2017-2018 Calendar

  • The City of San Diego Park & Recreation Therapeutic Recreation Services program provides sports, recreation, leisure and outreach services to people with physical, mental and emotional disabilities.

    Services include therapeutic recreation programs and adaptive sports opportunities. These address the special needs of individuals with disabilities who have difficulty accessing and participating in recreation opportunities offered to the general public.

    Under the direction of Certified Therapeutic Recreation Specialists, activities and services are designed to maintain or improve the physical, cognitive and social functioning of those who have limitations. The target population is children and adults, ages 3 and up, with any type of disability.

    Click here to view the Winter Calendar!!

    Click here to register!!

  • Parents and Caregivers Needed for Online Survey

  • I am Arek Yetenekian, and as part of my doctoral research at Alliant International University I require the participation of parents or primary caregivers of non-communicative children with autism. Participants are requested to complete the survey packet via the provided URL, within a web browser. The study consists of several measures of mostly multiple-choice responses related to a child's quality of life, as well as related areas of interest such as familial quality of life and parenting stress. Demographic information will also be collected. Participants with at least a fifth grade reading level, residing in the US, with at least one minor child with autism who is unable to communicate through oral and written means, are required. Thank you very much for your consideration.

    Survey URL: https://newqtrial2015az1.az1.qualtrics.com/jfe/form/SV_bq1Ye1UEEfFAuz3

    If you have any questions or concerns, please do not hesitate to contact me at: 818-406-5199 ayetenekian@alliant.edu

    IRB #1607037250

  • Participate in Research: Attention Differences in Persons with ASD and their Family Members

  • Verbally fluent children with ASD between the ages of 8 and 16 and both of their biological parents are invited to participate in a new study examining attention skills. This study will follow recently published work that showed ¬≠both the male sibling of a child with ASD and the child with ASD demonstrated similar attention abnormalities. This provides an important clue to the development of a better understanding of the genetic basis of ASD. This new study will examine trios, the child with ASD, and the mother and father. If one or both parents shows evidence of the attention difference we observed in children with ASD, we will have one of the first clear examples of a non-ASD core deficit that is experienced in first degree family members. Following with genetic analyses could potentially lead to a better understanding about the basic etiology of ASD. Families of a child with ASD are invited to participate in this research taking place at the Neuroscience Center of Alliant International University under the supervision of Alan Lincoln, Ph.D., MSCP, BCBA-D and Shamayne Brown, M.A.

    Study Requirements
    To participate in this study, both biological parents and your son must participate. Your family must be able to come to the Neuroscience Center at Alliant International University in San Diego, California. Participation for you and your son's other parent involves:
    • Completing questionnaires about yourself. This should take about 25 minutes.
    • Completing a brief standard cognitive measure. This should take about 30 minutes.
    • Completing a computer task. This should take about 30 minutes.
    Participation for your son:
    • Will require your child to complete the brief standard intelligence measure. This should take your child about 30 minutes.
    • You will be asked some background questions about your child and will be asked to complete forms related to your child's skills, abilities, and behaviors. This should take you about 25 minutes.
    • Your child will then be shown how to play the same computer games you will be shown and asked to play them as best he can. This should take about 30 minutes.
    We will try to accommodate your schedule as much as possible. Family members may come to the lab on different days if necessary. Some individuals may be excluded from participation in the study on-site. If your child is excluded, he will receive a $5.00 cash gift for his participation in the preliminary assessment. Upon the completion of participation in this study, each child will receive a $20.00 cash gift. Parents will each receive a $10 gift card upon completion of their participation. If a parent is excluded, he or she will be given a $5 gift card for participation in the preliminary assessment. You may also receive, upon request, results of your performance and/or your child's performance.

    If you are interested in participating, please contact us at our confidential e-mail: 858-635-4068, or by email: sbrown7@alliant.edu or alincoln@alliant.edu. Thank you in advance for your time and assistance. I look forward working with you and your family soon.

  • Participate in a Research Survey!
  • business_finance_research.jpg


    I am a graduate student of Communication Disorders at Eastern New Mexico University. The reason I'm reaching out is to see if ValeriesList can assist me with my graduate research. My focus is how applied behavior analysis (ABA) techniques are viewed by parents of children with autism. To collect information for my research I have an online questionnaire with a 12 minute video on survey monkey. Would it be possible for you to put the survey link in a newsletter or email to reach your followers? This research is very exciting to me, as it will illuminate perceptions of an important strategy in improving the lives of children with autism.

    https://www.surveymonkey.com/r/VNYK8H6

    Principal Investigator: Erin Bishop
    Email: erin.weaver@enmu.edu
    This project has been reviewed by the IRB of Eastern New Mexico University and approved as protocol # 1718006. Records pertaining to proposal review and approval are available upon request.

  • UCSD Autism Center of Excellence- SPARK

  • UCSD Autism Center of Excellence is working with the Simons Foundation Autism Research Initiative (SFARI) as part of an exciting research partnership called SPARK, and we would like to invite you and your family to take part. SPARK is an online, national genetics research partnership that seeks to improve the lives of people with autism. Through DNA analyses of saliva samples, the ultimate goal of SPARK is to gain a better understanding of causes and best treatments for autism. To get started, sign up and a saliva collection kit will be mailed to your home. A gift card totaling up to $50 will be sent to you once saliva samples from both parents and individual with ASD are received. We already have 1,991 participants registered on the website, help us reach our goal of 3,000 today!!!

    To register for SPARK: go to www.sparkforautism.org/ucsd.sarrc

    For additional information contact Hannah Kaplan at the UCSD ACE: h1kaplan@ucsd.edu or 858- 534- 6906

  • Children with Autism and Their Mothers are Needed for Student Reseach

  • Ariane Myers-Turnbull, MA
    Clinical Psychology Doctoral Student
    California School of Professional Psychology

    If interested please contact amyers-turnbull@alliant.edu or call 858-414-1076!

  • BRAIN DEVELOPMENT IMAGING LABS - Recruiting Participants

  • If you are interested in participating in any of these studies, please call 619-594- 0176 or email BDIL@sdsu.edu.

  • Join Our Study! Video Games to Train Attention and Eye Movement

  • Join our study at UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. Click here to view the brochure!!!

  • Parents and Children Needed for Student Research

  • My name is Shamayne Brown and I am a doctoral student at Alliant International University. This study is examining the attention abilities of kids with ASD and their parents. I am recruiting families with a child with ASD as well as families with typically developing children.

    We are looking for boys, ages 8 to 16 years old, who have a diagnosis of ASD and their biological parents - both mother and father need to participate. We are also looking for boys, ages 8 to 16 years old, who are typically developing and both of their biological parents to serve as a control group.

    If you and your family are eligible for participation, you will be asked to come to a lab at the Neuroscience Institute at Alliant International University. You and your child's other parent will be asked to complete consent forms and questionnaires about your own behaviors; this should take you each about 25 minutes. You will also be given questionnaires about your child's behaviors. Only one parent needs to fill out these questionnaires and should take about 25 minutes complete. You, your child, and your child's other parent will complete a cognitive test, which will take about 30 minutes. Each of you will then play some games on a computer. This will take each person about 30 minutes. Your child's participation will take approximately one hour. Your participation and that of your child's other parent will take approximately one and a half to two hours.

    After your child completes his tasks, he will receive a $20 cash gift as an appreciation for his participation. Once you and your child's other parent have completed all tasks, you will each receive a $10 gift card as a token of appreciation for your participation. For further information, please contact Shamayne Brown at sbrown7@alliant.edu or 619-416-1799. Thank you for your time.

    *Approved by Alliant IRB
    IRB #1604025150

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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