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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. January 04, 2018

In This Issue

Signs of autism emerge early in babies with related condition

Opinion: Joey Travolta urges hiring people with disabilities

Why I Let My Son Wear Shorts in the Winter

Parents and Others Looking for Help!!!

Saturday Night Social Dance Party!!!

Conference: Teaching Social Competencies - More Than Social Skills

Sensory Friendly Family Roller Skating Party!

The IEP Guy

ZONES of Regulation 10 Week Workshop

Cortica Care: Comprehensive Autism Treatment

Jeremiah's Ranch January Newsletter

Therapeutic Approach to Growth

Therapeutic Approach to Growth Bringing RDI to Temecula!

Social Communication Specialists

Happy New Years

January Newsletter

Join Super Soccer Star's Shine Program!!!

Healthier Living with Chronic Conditions


 






  • Signs of autism emerge early in babies with related condition

  • Infants who have neurofibromatosis type 1, a genetic condition linked to autism, show motor difficulties and communication delays at 10 months of age, according to the first study to thoroughly characterize these babies1.

    The work suggests that motor problems are central to neurofibromatosis type 1, or NF1, and may also be critical to autism. About one in four children with neurofibromatosis also has autism.

    NF1 is characterized by benign tumors on nerves. Signs of the condition are often evident at birth or soon after, as characteristic spots on the skin. The study is small but suggests that children with the condition also have developmental challenges that start in infancy. Read on...

  • Opinion: Joey Travolta urges hiring people with disabilities
  • Ninety percent of adults with developmental and intellectual disabilities in California are unemployed. This number baffles me, especially since the state's overall unemployment rate is only 6 percent.

    From my experience in the film and entertainment industry, I have been lucky enough to work with hundreds of adults with disabilities who are exceptional employees. And when businesses overlook these applications, they miss out on incredible opportunities.

    When ABC agreed to hire an additional employee on set of "The Neighbors," I knew Hayek, an adult with a disability, would be perfect. He was well-trained, a hard worker and an absolute pleasure to be around. Hayek and his job coach arrived on set at 6 a.m., an hour before call time, and waited in the dark for the crew to arrive. After 90 minutes of work, Hayek's job coach was sent home. Hayek went on to work two seasons on the set of "The Neighbors." Read on...

  • Why I Let My Son Wear Shorts in the Winter
  • It's a blustery 35 degrees outside and we're waiting at the school bus stop. All the kids are milling about bundled up in hats, gloves, boots and big puffy jackets. But one child is doing something different.

    That child is my son. He sticks out like a sore thumb because he's wearing shorts and sneakers. No hat. No gloves. And underneath his hoodie is just a T-shirt.

    I should explain how we got here.

    My son has always been finicky about clothing. Among the things he doesn't like are jeans, denim, zippers, buttons, wool, winter boots, "itchy" sweaters, clothes that are too loose, clothes that are too tight and socks that go higher than his ankles. Read on...

  • Parents and Others Looking for Help!!!


  • We are the family of an adult with intellectual disabilities and medical complexities. We are seeking others' experiences with Home Health Care agencies hoping to find one that is honorable, trustworthy and reputable. Is there any such thing? Positive and negative experiences are welcome. Thank you.
    Tflourie@aol.com



    I would appreciate any insights into the Winston School, not just for academic support but also behavioral support. My child would be starting mid-year seventh grade. If you have any feedback, please email me at Lisacmurphy1@gmail.com. Thank you!



    Has your child attended TERI's Country School? If so, please email me - I'd like to get your feedback. Thank you! Michelle Ohnstad: michelle.ohnstad@gmail.com



    Our daughter is 17 (she turns 18 in June) and is in an out of state residential program. She needs to a different program soon, as she can't stay where she is beyond 18. We are planning to apply for conservatorship/guardianship. Do we apply in California since we live here? Do we apply in Florida where she is now? Should we apply in the state where she goes next (which we don't know yet)? Any help you can give or advice (if you have gone through the process of conservatorship) would be greatly appreciated. Thank you, Mo Ruchhoeft (moru@san.rr.com)



    Our 19-year-old autistic son and daughter need to have their wisdom teeth removed along with dental fillings. Can anyone recommend a dentist/oral surgeon who have experience working with autistic adults so we can do BOTH procedures in one setting? Please contact me directly mayahuchan@gmail.com or 619-253-8826. Thank you.



    My son has autism and his first insurance is anthem blue cross and secondary insurance is medi-cal. Alexa's playc is the service we are trying to get covered. First insurance will only cover 60% and Medi-cal phone representative I talked with said they will not cover the remaining 40% because Alexa's playc is not registered with them. Neither will they reimburse me if Alexa's playc bill me directly. I am wondering whether any parents had the similar situation and had a way to work around it.
    Also, can you recommend some special needs attorney? liyingee@gmail.com



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Saturday Night Social Dance Party!!!
  • RSVP to Caroline at 602-502-2743
    http://www.innerdancers.org

  • Conference: Teaching Social Competencies - More Than Social Skills
  • Our mission is to help people develop social competencies to better connect with others and live happier, more meaningful lives. We do this by creating concepts, curricula, and materials that help professionals and parents teach social competencies and help individuals as young as four and across the lifespan meet their personal, academic, and professional goals.

    Join us in San Diego! March 12-15, 2018
    EARLY BIRD - 20% OFF!!!

    Learn practical strategies for self-regulation, executive functioning, perspective taking, and more at the four-day conference. Learn More & Register!

  • Sensory Friendly Family Roller Skating Party!
  • Hosted by Autism Society San Diego
    Sunday, January 14 at 5:30 PM - 7:30 PM
    Skateworld San Diego
    6907 Linda Vista Rd
    San Diego, California 92111

    For Tickets and Information:
    https://autismsocietysandiego.rallybound.org/skateparty/Donate/Tickets

  • The IEP Guy
  • Developing an appropriate IEP should not feel like trying to unravel a Rubik's cube.

    The IEP Guy is an experienced non-attorney special education advocate working side by side with families to obtain appropriate placement, services, and outcomes for students.

    The IEP is the heart and soul of special education. Think of it as the heliocentric model of our solar system. Just as the planets orbit around the sun, so do placement, services, and outcomes revolve around the IEP.

    Therefore, it is imperative that parents develop an appropriate IEP for their child given the major impact it has on the student's academic and functional performance.

    Services
    Say goodbye to hourly rates! All services are provided on a flat fee basis. No surprises!


    IEP Services

    • IDEA Compliance
    • Student Eligibility
    • Placement
    • Related Services
    • Goal Development
    • Evaluations
    • Manifestation Determinations
    • State Complaint Procedure
    • Due Process
    Discipline
    • Student Suspension and Expulsion
    • Involuntary Transfers
    • Exclusion from Extracurricular Activities
    Academic Disputes
    • Grade Reduction and Loss of Credit
    • Student Record Removal
    • Student Promotion and Retention (K-8)
    Parent Coaching
    • Administrative Complaint Procedures
    • Section 504 Plans
    • Education Code

    Leo Marchena
    The IEP Guy
    4275 Executive Square, Suite 200
    La Jolla, CA 92037
    858-345-6536
    www.theiepguy.com

  • ZONES of Regulation 10 Week Workshop
  • This workshop will be facilitated by
    Jamie Segal M.S. CCC-SLP speech-language therapist and owner of Crimson by the Sea
    &
    Jontue Koff M.S. OTR/L occupational therapist and owner of At Play Occupational Therapy


    The Zones is designed to help children understand how to consciously regulate their actions. Children will learn to identify different states they experience throughout their day and build tool boxes that can help them achieve a more optimal state of alertness when faced with a challenging situation. The facilitators have designed fun filled sessions that promote the learning of social-emotional concepts and active participation by all children.

    This 10-week program is beneficial for children who demonstrate impulsive type behaviors, disruptive behaviors that impact function at home and school (including, but not limited to attention difficulties or difficulty sitting still) or difficulty with self regulation (e.g. gets angry or sad easily, reacts aggressively).
    If you aren't sure whether your child would benefit or not please call or email and therapist will provide additional input.

    Click here for all the info!!!!

  • Cortica Care: Comprehensive Autism Treatment
  • Experience a unique and effective approach to autism therapy.

    Our aim is to bring to families everywhere the most effective therapies for the treatment of autism. Our integrated care model is based on the scientific research and clinical practice of our founder, Dr. Suzanne Goh. We seek to set a new global standard for autism care by achieving superior developmental outcomes for the children and families we serve.

    At Cortica, we believe the world needs a higher standard of care for all those living with autism, or a potential diagnosis of autism. Families like yours deserve effective, collaborative, caring therapies that are accessible and reasonably priced, no matter who you are or where you live.

    Meet our extraordinary team of autism specialists.
    Our multi-disciplinary team includes specialists from many different fields. All of our team members have specialized training and expertise in autism care.

    • Pediatric Neurologists
    • Electroencephalography & Neuromodulation Specialists
    • Neurology Nurse Practitioners
    • Nutrition and Holistic Health Practitioners
    • Speech-Language Therapists
    • Occupational Therapists
    • Physical Therapists
    • Music Therapists
    • Board Certified Behavior Analysts (BCBA)
    • Registered Behavior Technicians (RBT)
    • Social Workers and Marriage-Family Therapists
    • Special Education Teachers
    We provide every child at Cortica with an individualized program to accelerate learning and development. An essential ingredient for success is collaboration among physicians, therapists, parents, children, and our extended communities.

    Together, we clarify the complex, celebrate extraordinary efforts, and witness moments of brilliance as our children grow new skills and abilities. Many of our services are covered by medical insurance plans. Contact us for all the info!!!

    Cortica Care
    7090 Miratech Drive
    San Diego, CA 92121
    858-304-6440
    http://www.corticacare.com

  • Jeremiah's Ranch January Newsletter
  • jr

    Click here to read their latest newsletter all the info about upcoming events!!!

  • Therapeutic Approach to Growth
  • The Holistic Approach to Therapy

    Therapeutic Approach to Growth believes that every individual is unique and has the potential for significant growth. We assume and foster competence while honoring family values and priorities. Our holistic approach is built upon trusting, supportive relationships and collaboration between disciplines and families.

    TAG, Inc. supports individuals of all ages and functioning levels. The following is a list of potential diagnoses we serve; however, this is not an exhaustive list: Autism Spectrum Disorders, Attention Deficit Disorder, with or without Hyperactivity, Brain Injury, Bipolar Disorder, Auditory Processing Disorders, Down Syndrome, Dysgraphia, Learning Disabilities, Non Verbal Learning Disorder, Sensory Processing Disorder, Tourette's Syndrome.

    Here are the programs we offer:

    • Adult Program
    • Art Therapy
    • Handle
    • Home Programs
    • Life Balance Yoga Therapy
    • Long Distance Services
    • Occupational Therapy
    • Professional Training
    • RDI
    • Sage Learning Center
    • Speech Therapy
    • Summer Programs
    Offering support in the San Diego, Carlsbad, Orange County, Riverside County, and Bay area.
    In addition to supporting our clients directly, we offer guidance to parents, grandparents, therapists, teachers, siblings, school staff, babysitters etc.

    San Diego Office
    9466 Black Mountain Road, Suite 100
    San Diego, CA 92126
    Phone: (858) 689-2027
    Email: admin@tagforgrowth.com


    Carlsbad Office
    5411 Avenida Encinas, Suite 110
    Carlsbad, CA 92008
    Phone: (760) 448-5837
    Email: cbadmin@tagforgrowth.com

    Temecula Office
    43537 RidgePark Dr.
    Temecula, CA 92590 Phone: (858) 689-2027
    Email: admin@tagforgrowth.com
    http://tagforgrowth.com

  • Therapeutic Approach to Growth Bringing RDI to Temecula!
  • Join us for lunch and learn all about us! Please RSVP to admin@tagforgrowth.com or call 858-689.2027.
    http://tagforgrowth.com

  • Social Communication Specialists
  • At Social Communication Specialists, we help socially quirky kids, teens and young adults connect.

    We understand the social challenges kids face today. In order to have healthy friendships, kids need to understand not just the "how", but the "why" of social interactions.

    Executive Functioning
    Does this sound familiar?Help with Executive Functioning

    Your child...

    • leaves a trail of papers, clothes and belongings behind him?
    • stuffs schoolwork into her backpack which will never see the light of day?
    • has a meltdown because he thinks a task will take much longer that it actually will?
    • waits until the last minute to get started on big, long term projects?
    Even the brightest students can struggle to keep track of assignments, plan out and manage their time and prioritize and initiate tasks needed to meet their goals.

    Executive functioning skills help us with everything from getting dressed and out the door on time to managing distractions so we can complete the task at hand. While these skills develop naturally for most of us, some children need direct teaching and therapeutic treatment to help develop these skills and put them into practice. Click here for all the info about our Executive Function Program!

    Social Thinking
    Our program is for bright kids, teens and young adults with good language skills. Many of our students have a diagnosis of High Functioning Autism, Asperger Syndrome, ADHD or Social Anxiety while others have no formal diagnosis. Our students are intelligent, creative and want to have friends but often struggle with social interactions.

    SCS's cutting-edge Social ThinkingĀ® groups are based on the work of world renowned expert Michelle Garcia Winner. Social Thinking teaches the thinking that we do when we interact with others. This helps students use their social skills in a variety of settings. Our program teaches a wide variety of concepts with the lessons targeted to the needs of the students in each group. Click here for all the info about our Social Thinking Program!

    Social Communication Specialists
    5703 Oberlin Dr, Ste 207
    San Diego, CA 92121
    (858) 558-9552
    http://socialcommunicationspecialists.com


    Social communication groups enrolling now! For more information about our program and registration information, please call us at 858-558-9552 or email us at janet@socialcommunicationspecialists.com

  • Happy New Years
  • Click here to read their latest newsletter for all the info!!!

  • January Newsletter
  • Click here to read their latest newsletter for all the info!!!

  • Join Super Soccer Star's Shine Program!!!
  • sd@supersoccerstars.com
    (619) 577-4009
    supersoccerstars.com

  • Healthier Living with Chronic Conditions
  • Meeting located at MCRD San Diego. For more info or to register contact 619-524-0916.
    www.healthierlivingsd.org

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    Upcoming dates:
    • January 20, 2018
    • February 17, 2018
    • March 17, 2018
    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • San Diego Sibshop


  • October 2017 - August 2018

    WANTED: Siblings who have a brother/sister with special needs

    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    Dec. 10: Mission Trails Regional Park Visitor Center
    Feb. 25: Mission Trails Regional Park Visitor Center
    March 25: Mission Trails Regional Park Visitor Center
    May 20: Mission Trails Regional Park Visitor Center
    August 19: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies and lunch for the kids

    REGISTRATION: Pre-registration requested by email (if possible) the Thursday before the event.

    CONTACT: Email patmoulton@cox.net for a Sibshop registration form and / or additional information.

    Sibshop Leaders:
    Jody BonDurant-Strong, Administrator
    Ndoto BonDurant-Strong - adult sibling & CSUSM student
    Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    Directions for Mission Trails Regional Park Visitor's Center (MTRP):
    1 Father Juniper Serra Trail (92119). Interstate 8 to 15 North / East on Friars Road.
    Stay to left - turns into Mission Gorge Road / Turn left on 1 Father Juniper Serra.

    https://www.facebook.com/sandiegosibshop/

  • Therapeutic Recreation Services, Winter 2017-2018 Calendar

  • The City of San Diego Park & Recreation Therapeutic Recreation Services program provides sports, recreation, leisure and outreach services to people with physical, mental and emotional disabilities.

    Services include therapeutic recreation programs and adaptive sports opportunities. These address the special needs of individuals with disabilities who have difficulty accessing and participating in recreation opportunities offered to the general public.

    Under the direction of Certified Therapeutic Recreation Specialists, activities and services are designed to maintain or improve the physical, cognitive and social functioning of those who have limitations. The target population is children and adults, ages 3 and up, with any type of disability.

    Click here to view the Winter Calendar!!

    Click here to register!!

  • Parents and Caregivers Needed for Online Survey

  • I am Arek Yetenekian, and as part of my doctoral research at Alliant International University I require the participation of parents or primary caregivers of non-communicative children with autism. Participants are requested to complete the survey packet via the provided URL, within a web browser. The study consists of several measures of mostly multiple-choice responses related to a child's quality of life, as well as related areas of interest such as familial quality of life and parenting stress. Demographic information will also be collected. Participants with at least a fifth grade reading level, residing in the US, with at least one minor child with autism who is unable to communicate through oral and written means, are required. Thank you very much for your consideration.

    Survey URL: https://newqtrial2015az1.az1.qualtrics.com/jfe/form/SV_bq1Ye1UEEfFAuz3

    If you have any questions or concerns, please do not hesitate to contact me at: 818-406-5199 ayetenekian@alliant.edu

    IRB #1607037250

  • Participate in Research: Attention Differences in Persons with ASD and their Family Members

  • Verbally fluent children with ASD between the ages of 8 and 16 and both of their biological parents are invited to participate in a new study examining attention skills. This study will follow recently published work that showed Ā­both the male sibling of a child with ASD and the child with ASD demonstrated similar attention abnormalities. This provides an important clue to the development of a better understanding of the genetic basis of ASD. This new study will examine trios, the child with ASD, and the mother and father. If one or both parents shows evidence of the attention difference we observed in children with ASD, we will have one of the first clear examples of a non-ASD core deficit that is experienced in first degree family members. Following with genetic analyses could potentially lead to a better understanding about the basic etiology of ASD. Families of a child with ASD are invited to participate in this research taking place at the Neuroscience Center of Alliant International University under the supervision of Alan Lincoln, Ph.D., MSCP, BCBA-D and Shamayne Brown, M.A.

    Study Requirements
    To participate in this study, both biological parents and your son must participate. Your family must be able to come to the Neuroscience Center at Alliant International University in San Diego, California. Participation for you and your son's other parent involves:
    • Completing questionnaires about yourself. This should take about 25 minutes.
    • Completing a brief standard cognitive measure. This should take about 30 minutes.
    • Completing a computer task. This should take about 30 minutes.
    Participation for your son:
    • Will require your child to complete the brief standard intelligence measure. This should take your child about 30 minutes.
    • You will be asked some background questions about your child and will be asked to complete forms related to your child's skills, abilities, and behaviors. This should take you about 25 minutes.
    • Your child will then be shown how to play the same computer games you will be shown and asked to play them as best he can. This should take about 30 minutes.
    We will try to accommodate your schedule as much as possible. Family members may come to the lab on different days if necessary. Some individuals may be excluded from participation in the study on-site. If your child is excluded, he will receive a $5.00 cash gift for his participation in the preliminary assessment. Upon the completion of participation in this study, each child will receive a $20.00 cash gift. Parents will each receive a $10 gift card upon completion of their participation. If a parent is excluded, he or she will be given a $5 gift card for participation in the preliminary assessment. You may also receive, upon request, results of your performance and/or your child's performance.

    If you are interested in participating, please contact us at our confidential e-mail: 858-635-4068, or by email: sbrown7@alliant.edu or alincoln@alliant.edu. Thank you in advance for your time and assistance. I look forward working with you and your family soon.

  • Participate in a Research Survey!
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    I am a graduate student of Communication Disorders at Eastern New Mexico University. The reason I'm reaching out is to see if ValeriesList can assist me with my graduate research. My focus is how applied behavior analysis (ABA) techniques are viewed by parents of children with autism. To collect information for my research I have an online questionnaire with a 12 minute video on survey monkey. Would it be possible for you to put the survey link in a newsletter or email to reach your followers? This research is very exciting to me, as it will illuminate perceptions of an important strategy in improving the lives of children with autism.

    https://www.surveymonkey.com/r/VNYK8H6

    Principal Investigator: Erin Bishop
    Email: erin.weaver@enmu.edu
    This project has been reviewed by the IRB of Eastern New Mexico University and approved as protocol # 1718006. Records pertaining to proposal review and approval are available upon request.

  • UCSD Autism Center of Excellence- SPARK

  • UCSD Autism Center of Excellence is working with the Simons Foundation Autism Research Initiative (SFARI) as part of an exciting research partnership called SPARK, and we would like to invite you and your family to take part. SPARK is an online, national genetics research partnership that seeks to improve the lives of people with autism. Through DNA analyses of saliva samples, the ultimate goal of SPARK is to gain a better understanding of causes and best treatments for autism. To get started, sign up and a saliva collection kit will be mailed to your home. A gift card totaling up to $50 will be sent to you once saliva samples from both parents and individual with ASD are received. We already have 1,991 participants registered on the website, help us reach our goal of 3,000 today!!!

    To register for SPARK: go to www.sparkforautism.org/ucsd.sarrc

    For additional information contact Hannah Kaplan at the UCSD ACE: h1kaplan@ucsd.edu or 858- 534- 6906

  • Children with Autism and Their Mothers are Needed for Student Reseach

  • Ariane Myers-Turnbull, MA
    Clinical Psychology Doctoral Student
    California School of Professional Psychology

    If interested please contact amyers-turnbull@alliant.edu or call 858-414-1076!

  • BRAIN DEVELOPMENT IMAGING LABS - Recruiting Participants

  • If you are interested in participating in any of these studies, please call 619-594- 0176 or email BDIL@sdsu.edu.

  • Join Our Study! Video Games to Train Attention and Eye Movement

  • Join our study at UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. Click here to view the brochure!!!

  • Parents and Children Needed for Student Research

  • My name is Shamayne Brown and I am a doctoral student at Alliant International University. This study is examining the attention abilities of kids with ASD and their parents. I am recruiting families with a child with ASD as well as families with typically developing children.

    We are looking for boys, ages 8 to 16 years old, who have a diagnosis of ASD and their biological parents - both mother and father need to participate. We are also looking for boys, ages 8 to 16 years old, who are typically developing and both of their biological parents to serve as a control group.

    If you and your family are eligible for participation, you will be asked to come to a lab at the Neuroscience Institute at Alliant International University. You and your child's other parent will be asked to complete consent forms and questionnaires about your own behaviors; this should take you each about 25 minutes. You will also be given questionnaires about your child's behaviors. Only one parent needs to fill out these questionnaires and should take about 25 minutes complete. You, your child, and your child's other parent will complete a cognitive test, which will take about 30 minutes. Each of you will then play some games on a computer. This will take each person about 30 minutes. Your child's participation will take approximately one hour. Your participation and that of your child's other parent will take approximately one and a half to two hours.

    After your child completes his tasks, he will receive a $20 cash gift as an appreciation for his participation. Once you and your child's other parent have completed all tasks, you will each receive a $10 gift card as a token of appreciation for your participation. For further information, please contact Shamayne Brown at sbrown7@alliant.edu or 619-416-1799. Thank you for your time.

    *Approved by Alliant IRB
    IRB #1604025150

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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