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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. February 08, 2018

In This Issue

Adults with autism learn life and job skills at new facility

Company Offers Autistic Adults Training for Jobs on Film Crews With Reel People Program

Duplication of DNA on chromosome 7 increases risk of autism

Chemical tags on genomes in neurons altered in autism brains

Family and Others Looking for Help!!!

Are you building a team for the Race for Autism?

Therapeutic Approach to Growth

Save the Date: Love and Autism Conference

Conference: Teaching Social Competencies - More Than Social Skills

Registration for Camp I CAN Opens Soon!

The Movement Method

The Art of Autism February Newsletter

The IEP Guy

Movie: Keep the Change

Hamantaschen Bake with Friendship Circle

Purim Under the Sea with Friendship Circle

Announcing... the 2018 NFAR Community Project Grant Awards!

Registration is open for INVOLVED EXCEPTIONAL PARENTS' DAY!

East County Autism Support Group

An Orientation To College Life For Youth with Disabilities


 








  • Adults with autism learn life and job skills at new facility
  • Turning 21 is a time when most people celebrate their first steps into adulthood. But for young people with autism and their families, turning 21 means the end of their school-funded programs.

    It's a stressful time, when their families - with financial help from the state - must put together the services that will sustain them.

    Families that banded together more than two decades ago to establish schools for their young children have set to work again, in some places in New Jersey. They've extended the schools' mission, raised funds and built new facilities to serve their now grown-up kids: adults with autism. Read on...

  • Company Offers Autistic Adults Training for Jobs on Film Crews With Reel People Program
  • A few years ago, sound man Jimmy Lifton began a licensed training institute to help military veterans, including homeless vets, get jobs in below-the-line trades.

    Last month his organization - the Lifton Institute for Media Arts & Sciences, or LIMS - expanded its scope with the addition of its Reel People program, designed to find jobs in film for a new group: high-functioning autistic adults.

    Lifton, a producer and sound department veteran who has taken home two Daytime Emmys and five Golden Reels, has helped bring vets together with below-the-line workers he's collaborated with through the years, many of whom are repeats to the program. When it came time to train the autistic adults - who, like the vets, are not charged for the training - he observed some of the same work ethic qualities: focus, determination, attention to detail and general stick-with-it-ness. Read on...

  • Duplication of DNA on chromosome 7 increases risk of autism

  • Roughly one in five children who has an extra piece of chromosome 7 also meets the criteria for an autism diagnosis, according to a new study1.

    The study is the first rigorous look at autism features in children with a duplication of chromosomal region 7q11.23. The resulting syndrome, dubbed Dup7, can lead to intellectual disability, language problems and social anxiety. A deletion in the same region leads to Williams syndrome, a condition characterized by intellectual disability and extreme friendliness.

    The researchers found that 12 of 63 children with Dup7 meet the criteria for autism, as measured by a combination of 'gold-standard' clinical assays and expert assessments. The results were published 6 January in the Journal of Autism and Developmental Disorders. The team has found a similar rate for children with Williams syndrome, according to unpublished data. Read on...

  • Chemical tags on genomes in neurons altered in autism brains

  • Neurons from people with autism have an unusual pattern of chemical tags that turn genes on and off, a study of postmortem brains suggests1.

    Though preliminary, the results add to mounting evidence that these tags, called methyl groups, contribute to autism, says lead investigator Evan Elliott, assistant professor of molecular and behavioral neuroscience at Bar-Ilan University in Safed, Israel.

    The results also hint at the pathways by which methyl tags might influence brain development: The affected genes regulate inflammation, and communication between neurons. Read on...

  • Family and Others Looking for Help!!!


  • My name is Sara and I'm wondering if anyone has success with Vital Links headphones? Do you have a used pair you'd like to sell? Contact me: sjinsd@yahoo.com



    My son has autism and I would like to work on his focus and auditory processing. Does anyone have any good therapies that have helped address these two areas? I'd also be interested in any positive experiences with acupuncture. Thanks.
    Best, Kathy (kathyng.tskn@gmail.com)



    Can you ask the group if anyone has set up an Able account for their son or daughter. I know a law pass to allow up to $100,000 to be set aside in an account.

    However California does not have this in place yet. Other states do have this in place and will allow person out of state to open an account. So I was just wondering if anyone had yet and what their experience has been.
    Thanks Laura S. jrschley@att.net



    Does anyone have a great referral for multiple overnight respite or IHSL care in Encinitas area? My son is 18, high functioning ASD, healthy, happy and easy to be with but needs supervision and direction. Not untypical of this age, he no longer wants to travel with his parents,​​ which we do for business and pleasure We are wanting to hire someone who has the flexibility and availability to stay with him 3-7 days/nights occasionally. When he is in school no care is needed from 8am-3pm. Regional Center nor our Respite Care providers have given us any good options.​ Looking for referrals or ideas. Thank you, Kalli​ kallihs@gmail.com



    Can anyone share their experience with San Diego Center for Children residential program, good or bad. Thank you! melanielanders@att.net



    Hi there, I'm wondering if you might have any resources for schools in North County SD that have a reputation for being good for kids with Autism? Public, Private, Charter, any...? Thank you!!! kathrynwdaly@gmail.com



    We are moving within SDUSD boundaries (Carson) is the school within our boundary. It is too big for my son who is in 2nd grade with an IEP for ADHD, SPD and ODD (Oppositional Defiant Disorder).
    He thrives right now in our current school with no Aide/One to one and he has been in Gen Ed since the start of school 76% of his day 24% of his day spent in SPED classroom. He is doing amazing! The only complaint is he 'is bored' He is ahead academically and required quite a bit of redirection to stay on task during his day. He requires a smaller environment and a very Structured, Patient, Positive Teacher.
    Has anyone heard of any Elementary schools within SDUSD boundaries (closer to Mission Valley, Pt. Loma, Linda Vista, Bay Park, OB, Hillcrest, Mission Hills etc. ) that have strong 2nd grade Teachers and the children have been challenged academically and happy at? Thank you for any suggestions! 1badkitty03@gmail.com



    I am looking for a summer camp for my 6-year-old son who has autism in Southern California since we are moving to the area this coming May. Please let me know what camps are good!
    Best,
    Razan razan.kattoa@gmail.com



    Looking for a daytime assistance for a 13 year old with autism. Someone to help with homeschooling and occasional appointments. Please email resume zghorishi@hotmail.com



    I am looking for some resources for my son. He has high functioning autism, adhd and sensory integration disorder. He also has behaviors that can be pretty aggressive at school. I am trying to find a school in San Diego north county that maybe able to assist. I would appreciate any suggestions. mdhiggins48@gmail.com



    Hello, I am a of mom of beautiful boy with autism and also a graduate student of clinical counseling program from University of Phoenix. I am couple weeks away from finishing my theoretical classes and looking for the agency, center or private practice that might be able to host me for my practicum and 2 internships, 700 hours, towards my Master Degree in Clinical Counseling. I have an extensive experience in autism field and I am open to any sites that can be autism and family therapy oriented. Please let me know if you might have some ideas or if you would be to provide those hours for me.
    Thank you much !
    Yulia
    858/342-3118 YuliaSV@hotmail.com



    I'm a mom of a 17 year old student with high functioning autism who will be applying to college this fall. I wondered if anyone has worked with a professional college coach/planner who has some knowledge of best colleges for students with high functioning autism. Would love to talk to other parents for advice on making the transition from high school to college. Please email me at taskerbrood@yahoo.com



    Hi! I am wondering if anyone has a name of a Medical marijuana doctor in San Diego(north county preferred) not a recommendation doctor- but a real doctor who can give advice for strains and doses. Also any info for trials would be appreciated. Please email me at: mullinsroz@gmail.com
    Thank you!



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Are you building a team for the Race for Autism?
  • Are you building a team for the Race for Autism? Then the Justice League Package is perfect for you!
    >>>This offer is available now through February 15th<<<
    Our Justice League Package is designed for groups of 20+ persons, and includes: a flat rate of $28 per person (children, youth, adults) with chip-timing for runners and larger shirt sizes.

    Upon receipt of payment of $560 or more, your group will be set up with a special code for team members to register.

    To purchase a Justice League Package, please contact NFAR at 858-679-8800. http://www.raceforautism.org

  • Therapeutic Approach to Growth
  • Therapeutic Approach to Growth believes that every individual is unique and has the potential for significant growth. We assume and foster competence while honoring family values and priorities. Our holistic approach is built upon trusting, supportive relationships and collaboration between disciplines and families.

    TAG, Inc. supports individuals of all ages and functioning levels. The following is a list of potential diagnoses we serve; however, this is not an exhaustive list: Autism Spectrum Disorders, Attention Deficit Disorder, with or without Hyperactivity, Brain Injury, Bipolar Disorder, Auditory Processing Disorders, Down Syndrome, Dysgraphia, Learning Disabilities, Non Verbal Learning Disorder, Sensory Processing Disorder, Tourette's Syndrome.

    Here are the programs we offer:

    • Adult Program
    • Art Therapy
    • Handle
    • Home Programs
    • Life Balance Yoga Therapy
    • Long Distance Services
    • Occupational Therapy
    • Professional Training
    • RDI
    • Sage Learning Center
    • Speech Therapy
    • Summer Programs
    Offering support in the San Diego, Carlsbad, Orange County, Riverside County, and Bay area.
    In addition to supporting our clients directly, we offer guidance to parents, grandparents, therapists, teachers, siblings, school staff, babysitters etc.

    San Diego Office
    9466 Black Mountain Road, Suite 100
    San Diego, CA 92126
    Phone: (858) 689-2027
    Email: admin@tagforgrowth.com

    Carlsbad Office
    5411 Avenida Encinas, Suite 110
    Carlsbad, CA 92008
    Phone: (760) 448-5837
    Email: cbadmin@tagforgrowth.com

    Temecula Office
    43537 RidgePark Dr.
    Temecula, CA 92590
    Phone: (858) 689-2027
    Email: admin@tagforgrowth.com
    http://tagforgrowth.com

  • Save the Date: Love and Autism Conference
  • The 2018 Love & Autism conference dates have been set! Parents, professionals, self-advocates or anyone who wants to get involved with an organization that stands for acceptance and authenticity, you don't want to miss this year! https://loveandautism.com
    Click here to sign up to receive all the info about this upcoming conference!!

  • Conference: Teaching Social Competencies - More Than Social Skills
  • Our mission is to help people develop social competencies to better connect with others and live happier, more meaningful lives. We do this by creating concepts, curricula, and materials that help professionals and parents teach social competencies and help individuals as young as four and across the lifespan meet their personal, academic, and professional goals.

    Join us in San Diego! March 12-15, 2018
    Professionals save 20%
    Parents & students save 30%
    Offers expire February 27, 2018.


    Learn practical strategies for self-regulation, executive functioning, perspective taking, and more at the four-day conference. Learn More & Register!

  • Registration for Camp I CAN Opens Soon!
  • Coming Soon.
    Registration opens in March for Summer 2018


    Registration will begin soon for Camp I CAN at Toby Wells YMCA in Kearny Mesa and Magdalena Ecke Family YMCA in Carlsbad. For more information on Camp I CAN, click HERE.

    You will need to be a local resident, ability to show verifyable diagnosis, and have a current membership with Autism Society San Diego which can be easily accomplished HERE.

  • The Movement Method
  • Movement Method
    An evidence-based, kinetic learning theory, for children with neurocognitive difference such as autism. Through specific movement and interactive interventions, the child will experience increased curiosity and engagement with family members and their environment. Movement Method's focused interventions improve intrinsic motivation, attention, communication, social interaction and emotional regulation.

    February 10th 2018
    9am-12pm
    Liberty Station Conference Center
    Room 204A & 204B
    Point Loma


    Live workshop that will teach you the Movement Method and will give you practical advice you can start using immediately! Click here to register!!!

    www.familyguidanceandtherapy.com
    619-600-0683
    info@familyguidanceandtherapy.com

  • The Art of Autism February Newsletter
  • Click here to read their latest newsletter for all the info!!!

  • The IEP Guy
  • Developing an appropriate IEP should not feel like trying to unravel a Rubik's cube.

    The IEP Guy is an experienced non-attorney special education advocate working side by side with families to obtain appropriate placement, services, and outcomes for students.

    The IEP is the heart and soul of special education. Think of it as the heliocentric model of our solar system. Just as the planets orbit around the sun, so do placement, services, and outcomes revolve around the IEP.

    Therefore, it is imperative that parents develop an appropriate IEP for their child given the major impact it has on the student's academic and functional performance.

    Services:
    Say goodbye to hourly rates! All services are provided on a flat fee basis. No surprises!


    IEP Services

    • IDEA Compliance
    • Student Eligibility
    • Placement
    • Related Services
    • Goal Development
    • Evaluations
    • Manifestation Determinations
    • State Complaint Procedure
    • Due Process
    Discipline
    • Student Suspension and Expulsion
    • Involuntary Transfers
    • Exclusion from Extracurricular Activities
    Academic Disputes
    • Grade Reduction and Loss of Credit
    • Student Record Removal
    • Student Promotion and Retention (K-8)
    Parent Coaching
    • Administrative Complaint Procedures
    • Section 504 Plans
    • Education Code
    Leo Marchena
    The IEP Guy
    4275 Executive Square, Suite 200
    La Jolla, CA 92037
    858-345-6536
    www.theiepguy.com

  • Movie: Keep the Change
  • Call for visit the JCC Box Office: 858-362-1348 or http://www.sdcjc.org/sdjff/

  • Hamantaschen Bake with Friendship Circle
  • For all the info and to sign up please email Maxime@FriendshipCircleSD.org or call 858.487.4879!
    https://friendshipcirclesd.com

  • Purim Under the Sea with Friendship Circle
  • For all the info and to sign up please email Maxime@FriendshipCircleSD.org or call 858.487.4879!
    https://friendshipcirclesd.com

  • Announcing... the 2018 NFAR Community Project Grant Awards!
  • NFAR is pleased to announce our 2018 Community Project Grant awards.

    Each year, funds raised by the Race for Autism help to support autism programs and new initiatives in our community. Together, we have supported over 93 major initiatives, increasing the learning, social, training and employment opportunities for those with autism in San Diego. Click here to see who got the grants!!!

  • Registration is open for INVOLVED EXCEPTIONAL PARENTS' DAY!
  • Involved Exceptional Parents' Day (IEP Day) is an annual conference for parents, family members and caregivers of individuals with special needs. This year, the 35th annual conference, will be held on Saturday, March 17, 2018 at the Handlery Hotel in Mission Valley. We are busily making plans for the 15 featured workshops (offered in English and Spanish), a networking luncheon, huge resource fair and more for the nearly 400 people who attend. This year's conference theme is "Finding Our Balance".

    The Registration Packet and online registration are on the conference website: www.iepday.org. Scholarships and SDRC funding may be available. For scholarships please check the conference website. For SDRC funding, please talk with your service coordinator.

  • East County Autism Support Group
  • Monday, February 12, 2018
    6:30 PM to 8:00 PM
    Every 2nd Monday of the month

    Office of Dr. Rienzi Haytasingh
    5550 Baltimore Drive, Suite 150 · La Mesa, CA


    Support, information, resources and referral for families of persons on the autism spectrum. Join us to learn the experiences of others and share your own. Light refreshments. Click here for all the info!!!

  • An Orientation To College Life For Youth with Disabilities
  • Applications Now Being Accepted!
    Spend 6 nights and 5 days on a college campus experiencing all that college life has to offer.

    June 17 - 22, 2018
    On the Campus of The University of San Diego

    Project College is specially designed for those in college, entering college in the fall or completing their senior year of high school. Click here for all the info!!!

  • ASD Mornings at theNAT
  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • San Diego Sibshop


  • October 2017 - August 2018

    WANTED: Siblings who have a brother/sister with special needs

    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    Feb. 25: Mission Trails Regional Park Visitor Center
    March 25: Mission Trails Regional Park Visitor Center
    May 20: Mission Trails Regional Park Visitor Center
    August 19: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies and lunch for the kids

    REGISTRATION: Pre-registration requested by email (if possible) the Thursday before the event.

    CONTACT: Email patmoulton@cox.net for a Sibshop registration form and / or additional information.

    Sibshop Leaders:
    Jody BonDurant-Strong, Administrator
    Ndoto BonDurant-Strong - adult sibling & CSUSM student
    Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    Directions for Mission Trails Regional Park Visitor's Center (MTRP):
    1 Father Juniper Serra Trail (92119). Interstate 8 to 15 North / East on Friars Road.
    Stay to left - turns into Mission Gorge Road / Turn left on 1 Father Juniper Serra.

    https://www.facebook.com/sandiegosibshop/

  • Parents and Caregivers Needed for Online Survey

  • I am Arek Yetenekian, and as part of my doctoral research at Alliant International University I require the participation of parents or primary caregivers of non-communicative children with autism. Participants are requested to complete the survey packet via the provided URL, within a web browser. The study consists of several measures of mostly multiple-choice responses related to a child's quality of life, as well as related areas of interest such as familial quality of life and parenting stress. Demographic information will also be collected. Participants with at least a fifth grade reading level, residing in the US, with at least one minor child with autism who is unable to communicate through oral and written means, are required. Thank you very much for your consideration.

    Survey URL: https://newqtrial2015az1.az1.qualtrics.com/jfe/form/SV_bq1Ye1UEEfFAuz3

    If you have any questions or concerns, please do not hesitate to contact me at: 818-406-5199 ayetenekian@alliant.edu

    IRB #1607037250

  • Participate in Research: Attention Differences in Persons with ASD and their Family Members

  • Verbally fluent children with ASD between the ages of 8 and 16 and both of their biological parents are invited to participate in a new study examining attention skills. This study will follow recently published work that showed ­both the male sibling of a child with ASD and the child with ASD demonstrated similar attention abnormalities. This provides an important clue to the development of a better understanding of the genetic basis of ASD. This new study will examine trios, the child with ASD, and the mother and father. If one or both parents shows evidence of the attention difference we observed in children with ASD, we will have one of the first clear examples of a non-ASD core deficit that is experienced in first degree family members. Following with genetic analyses could potentially lead to a better understanding about the basic etiology of ASD. Families of a child with ASD are invited to participate in this research taking place at the Neuroscience Center of Alliant International University under the supervision of Alan Lincoln, Ph.D., MSCP, BCBA-D and Shamayne Brown, M.A.

    Study Requirements
    To participate in this study, both biological parents and your son must participate. Your family must be able to come to the Neuroscience Center at Alliant International University in San Diego, California. Participation for you and your son's other parent involves:
    • Completing questionnaires about yourself. This should take about 25 minutes.
    • Completing a brief standard cognitive measure. This should take about 30 minutes.
    • Completing a computer task. This should take about 30 minutes.
    Participation for your son:
    • Will require your child to complete the brief standard intelligence measure. This should take your child about 30 minutes.
    • You will be asked some background questions about your child and will be asked to complete forms related to your child's skills, abilities, and behaviors. This should take you about 25 minutes.
    • Your child will then be shown how to play the same computer games you will be shown and asked to play them as best he can. This should take about 30 minutes.
    We will try to accommodate your schedule as much as possible. Family members may come to the lab on different days if necessary. Some individuals may be excluded from participation in the study on-site. If your child is excluded, he will receive a $5.00 cash gift for his participation in the preliminary assessment. Upon the completion of participation in this study, each child will receive a $20.00 cash gift. Parents will each receive a $10 gift card upon completion of their participation. If a parent is excluded, he or she will be given a $5 gift card for participation in the preliminary assessment. You may also receive, upon request, results of your performance and/or your child's performance.

    If you are interested in participating, please contact us at our confidential e-mail: 858-635-4068, or by email: sbrown7@alliant.edu or alincoln@alliant.edu. Thank you in advance for your time and assistance. I look forward working with you and your family soon.

  • UCSD Autism Center of Excellence- SPARK

  • UCSD Autism Center of Excellence is working with the Simons Foundation Autism Research Initiative (SFARI) as part of an exciting research partnership called SPARK, and we would like to invite you and your family to take part. SPARK is an online, national genetics research partnership that seeks to improve the lives of people with autism. Through DNA analyses of saliva samples, the ultimate goal of SPARK is to gain a better understanding of causes and best treatments for autism. To get started, sign up and a saliva collection kit will be mailed to your home. A gift card totaling up to $50 will be sent to you once saliva samples from both parents and individual with ASD are received. We already have 1,991 participants registered on the website, help us reach our goal of 3,000 today!!!

    To register for SPARK: go to www.sparkforautism.org/ucsd.sarrc

    For additional information contact Hannah Kaplan at the UCSD ACE: h1kaplan@ucsd.edu or 858- 534- 6906

  • Children with Autism and Their Mothers are Needed for Student Reseach

  • Ariane Myers-Turnbull, MA
    Clinical Psychology Doctoral Student
    California School of Professional Psychology

    If interested please contact amyers-turnbull@alliant.edu or call 858-414-1076!

  • BRAIN DEVELOPMENT IMAGING LABS - Recruiting Participants

  • If you are interested in participating in any of these studies, please call 619-594- 0176 or email BDIL@sdsu.edu.

  • Join Our Study! Video Games to Train Attention and Eye Movement

  • Join our study at UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. Click here to view the brochure!!!

  • Parents and Children Needed for Student Research

  • My name is Shamayne Brown and I am a doctoral student at Alliant International University. This study is examining the attention abilities of kids with ASD and their parents. I am recruiting families with a child with ASD as well as families with typically developing children.

    We are looking for boys, ages 8 to 16 years old, who have a diagnosis of ASD and their biological parents - both mother and father need to participate. We are also looking for boys, ages 8 to 16 years old, who are typically developing and both of their biological parents to serve as a control group.

    If you and your family are eligible for participation, you will be asked to come to a lab at the Neuroscience Institute at Alliant International University. You and your child's other parent will be asked to complete consent forms and questionnaires about your own behaviors; this should take you each about 25 minutes. You will also be given questionnaires about your child's behaviors. Only one parent needs to fill out these questionnaires and should take about 25 minutes complete. You, your child, and your child's other parent will complete a cognitive test, which will take about 30 minutes. Each of you will then play some games on a computer. This will take each person about 30 minutes. Your child's participation will take approximately one hour. Your participation and that of your child's other parent will take approximately one and a half to two hours.

    After your child completes his tasks, he will receive a $20 cash gift as an appreciation for his participation. Once you and your child's other parent have completed all tasks, you will each receive a $10 gift card as a token of appreciation for your participation. For further information, please contact Shamayne Brown at sbrown7@alliant.edu or 619-416-1799. Thank you for your time.

    *Approved by Alliant IRB
    IRB #1604025150

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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